bims-tyki2d Biomed News
on Thymidine kinase 2 deficiency
Issue of 2026–08–16
three papers selected by
Zoya Panahloo, UCB



  1. Expert Opin Pharmacother. 2026 Aug 15.
      
    Keywords:  TK2 deficiency; doxecitine; doxribtimine; mitochondrial DNA depletion syndrome; mitochondrial myopathy
    DOI:  https://doi.org/10.1080/14656566.2026.2720613
  2. J Clin Med. 2026 Jul 29. pii: 5906. [Epub ahead of print]15(15):
      This review examines the evolving role of muscle biopsy in the diagnosis of neuromuscular disorders in the era of modern genomic medicine. Historically the cornerstone of myopathy diagnosis, muscle biopsy enabled structural, histochemical, and ultrastructural characterization of muscle diseases. However, the introduction of next-generation sequencing and other genomic technologies has shifted the diagnostic paradigm, with genetic testing now serving as the preferred first-line approach for many hereditary myopathies due to its non-invasive nature and high diagnostic yield. However, muscle biopsy remains indispensable in the evaluation of inflammatory, toxic, metabolic, mitochondrial, and certain rare acquired myopathies. Biopsy is also valuable when genetic testing is inconclusive, particularly for interpreting variants of uncertain significance, through histopathological, immunohistochemical, and biochemical analyses. In certain disorders, diagnosis may rely primarily on biopsy findings. Emerging technologies, including RNA sequencing, transcriptomics, proteomics, spatial transcriptomics, and artificial intelligence-assisted pathology, are expanding the diagnostic value of muscle tissue beyond traditional morphological assessment. Rather than being replaced by genomic medicine, muscle biopsy is evolving into a complementary component of an integrated diagnostic strategy that combines clinical, pathological, and molecular data to improve diagnostic accuracy and guide precision medicine in neuromuscular disorders.
    Keywords:  immunohistochemistry; inflammatory myopathies; muscle biopsy; neuromuscular disorders; next-generation sequencing; variants of uncertain significance (VUS)
    DOI:  https://doi.org/10.3390/jcm15155906
  3. Perspect Clin Res. 2026 Jul-Sep;17(3):17(3): 156-161
       Purpose: The ethical reuse of genetic data in clinical trials poses significant challenges, particularly concerning informed consent, data privacy, and governance on genetic data re-uses. Understanding stakeholder perspectives is essential to developing responsible and transparent practices in genetic research.
    Aim: To explore the perspectives of key clinical trial stakeholders on the ethical issues associated with the reuse of genetic data.
    Settings and Design: A cross-sectional and questionnaire-based study was conducted at the Clinical Research Department of KLE Society's Dr. Prabhakar Kore Hospital and Medical Research Center, Belagavi, Karnataka, India.
    Subjects and Methods: The study involved 225 stakeholders, including clinical trial participants, investigators, ethics committee members, pathologists, and pharmaceutical sponsors/CROs. Data were collected using structured questionnaires designed to assess the ethical issues regarding genetic data reuse.
    Statistical Analysis Used: One-way ANOVA was applied to compare perceptions across stakeholder groups.
    Results: Potential misuse of genetic data emerged as a key concern, particularly among clinical trial participants (96%) and pathologists (82%). Ethical and legal uncertainties in data governance were reported by 62% of pharmaceutical sponsors. In addition, 56% of ethics committee members emphasized the importance of returning research results to individuals as a critical ethical issue.
    Conclusion: The study highlights pressing ethical concerns surrounding genetic data reuse in clinical trials, particularly in the context of consent, data security, and result disclosure. These insights can guide policy development and assist clinical researchers and ethics committees in fostering trust and ensuring ethically sound data practices.
    Keywords:  Clinical trials; data governance; data privacy; ethical issues; genetic data reuse; informed consent; stakeholder perspectives
    DOI:  https://doi.org/10.4103/picr.picr_92_25