bims-librar Biomed News
on Biomedical librarianship
Issue of 2023‒08‒20
twenty papers selected by
Thomas Krichel
Open Library Society
  1. Providing reproductive health information to rural women: The potentials of public libraries.
  2. Madeline Earle Stanton (1898-1980): Librarian and Consultant of the Medical Historical Library at Yale University, Research Assistant in Bibliography in the Yale Department of the History of Medicine, Associate Editor of the Journal of the History of Medicine and Allied Sciences, and Secretary and Protégé of Harvey Cushing.
  3. A narrative review of recent tools and innovations toward automating living systematic reviews and evidence syntheses.
  4. Social Media Application as an Educational Tool for Viewers Searching "Oral Surgery".
  5. Can artificial intelligence separate the wheat from the chaff in systematic reviews of health economic articles?
  6. Methodological and users' surveys on the use of the LILACS database in Cochrane reviews identified desirable improvements to the database.
  7. Readability assessment of online patient education materials for central centrifugal cicatricial alopecia.
  8. The quality of German - language patient decision aids for oncological patients on the internet.
  9. Quality and Readability of Spanish-Language Online Information for Aortic Aneurysm and Its Endovascular Treatment.
  10. Internet Health Resources on Nocturnal Enuresis - A Readability, Quality and Accuracy Analysis.
  11. Evaluating the understandability and actionability of online educational videos on pre-dialysis chronic kidney disease.
  12. A content validity, reliability and quality analysis of peripheral intravenous catheterization videos on YouTube™.
  13. A content analysis of online videos containing dietary recommendations for gout and their alignment with evidence-based dietary guidelines.
  14. Quality and Content Analysis: Can YouTube Videos on Agoraphobia Be Considered a Reliable Source?
  15. Educational quality of YouTube content on brachial plexus injury and treatment.
  16. Exploring the Relationship between Health Information Literacy and Health Behaviors of the Elderly.
  17. Information needs and preferences of patients with an ankle fracture: User involvement study creating an mHealth solution.
  18. The Impact of Smokers' Information-Seeking Behavior on Smoking Cessation.
  19. Gender Affirmation-Related Information-Seeking Behaviors in a Diverse Sample of Transgender and Gender-Diverse Young Adults: Survey Study.
  20. Challenges related to records and quality of information in the Amazon.
  1. Afr J Reprod Health. 2021 Nov;25(s5): 210-218
    Providing reproductive health information to rural women: The potentials of public libraries.
    Promise Ilo, Goodluck Ifijeh, Chidi Segun-Adeniran, Happiness C Michael-Onuoha, Loveth Ekwueme.
      Access to reproductive health information is an integral part of the sustainable development goal3 of good health and well-being. The World Health Organization (WHO) recommends a gender-based approach to public health that should holistically address the physical, mental and emotional well-being of women. However, women in urban areas seem to be benefiting more from various laudable reproductive health programmes than those in rural areas. This scenario negates the concept of sexual and reproductive health and rights, which have fundamental bearing for sound economic development and poverty alleviation. It is against this background that this paper examined the provision of reproductive health information to rural women in Nigeria. It identified the reproductive health information needs of rural women, including information on fertility, management of unplanned pregnancies, sexually transmitted diseases, prenatal and postnatal care. It further discussed the problems hindering rural women from accessing reproductive health information. To alleviate these problems, the paper discussed various roles public libraries can play in helping rural women gain access to reproductive health information. It recommended adequate funding, community engagements, and collaboration with relevant agencies for public libraries to take their place in the dissemination of reproductive health information to rural women.
    Keywords:  Nigeria; Reproductive health information; information accessibility; public libraries; rural women
    DOI:  https://doi.org/10.29063/ajrh2021/v25i5s.19
  2. World Neurosurg. 2023 Aug 14. pii: S1878-8750(23)01141-5. [Epub ahead of print]
    Madeline Earle Stanton (1898-1980): Librarian and Consultant of the Medical Historical Library at Yale University, Research Assistant in Bibliography in the Yale Department of the History of Medicine, Associate Editor of the Journal of the History of Medicine and Allied Sciences, and Secretary and Protégé of Harvey Cushing.
    Abigail Jenkins, Pooja Venkatesh, Marianne I J Tissot, Donald Detchou, Umaru Barrie, Salah G Aoun.
      BACKGROUND: This historical account reviews the course and lasting impact of Madeline Earle Stanton (1898-1980) in neurosurgery.METHODS: The writing of this project was sparked by the discovery of original scientific and bibliographical information about Stanton. It is a thorough review of literature on Stanton and reflects the scope and depth of these prior works.
    RESULTS: Beginning with Madeline Stanton's venture with Dr. Harvey Cushing at Harvard and Peter Bent Brigham Hospital in Boston, this project follows the transformation of her role as Cushing's secretary to the Secretary of the Medical History Library at Yale. Stanton served as an integral role in the development of the Yale Medical History Library, becoming the Librarian of the Historical Collections and remaining a historical consultant after retirement. Stanton served as an assistant and associate editor for the Journal of the History of Medicine and Allied Sciences. Stanton's work created an access point to valuable medical literature for the furthering of medical education and development.
    CONCLUSIONS: Our article provides glimpses into the personality of Madeline Stanton and her marked impact on neurosurgery.
    Keywords:  Madeline Stanton; Neurosurgery; Yale Historical Library; Yale University
    DOI:  https://doi.org/10.1016/j.wneu.2023.08.038
  3. Z Evid Fortbild Qual Gesundhwes. 2023 Aug 16. pii: S1865-9217(23)00140-X. [Epub ahead of print]
    A narrative review of recent tools and innovations toward automating living systematic reviews and evidence syntheses.
    Lena Schmidt, Mark Sinyor, Roger T Webb, Christopher Marshall, Duleeka Knipe, Emily C Eyles, Ann John, David Gunnell, Julian P T Higgins.
      Living reviews are an increasingly popular research paradigm. The purpose of a 'living' approach is to allow rapid collation, appraisal and synthesis of evolving evidence on an important research topic, enabling timely influence on patient care and public health policy. However, living reviews are time- and resource-intensive. The accumulation of new evidence and the possibility of developments within the review's research topic can introduce unique challenges into the living review workflow. To investigate the potential of software tools to support living systematic or rapid reviews, we present a narrative review informed by an examination of tools contained on the Systematic Review Toolbox website. We identified 11 tools with relevant functionalities and discuss the important features of these tools with respect to different steps of the living review workflow. Four tools (NestedKnowledge, SWIFT-ActiveScreener, DistillerSR, EPPI-Reviewer) covered multiple, successive steps of the review process, and the remaining tools addressed specific components of the workflow, including scoping and protocol formulation, reference retrieval, automated data extraction, write-up and dissemination of data. We identify several ways in which living reviews can be made more efficient and practical. Most of these focus on general workflow management, or automation through artificial intelligence and machine-learning, in the screening process. More sophisticated uses of automation mostly target living rapid reviews to increase the speed of production or evidence maps to broaden the scope of the map. We use a case study to highlight some of the barriers and challenges to incorporating tools into the living review workflow and processes. These include increased workload, the need for organisation, ensuring timely dissemination and challenges related to the development of bespoke automation tools to facilitate the review process. We describe how current end-user tools address these challenges, and which knowledge gaps remain that could be addressed by future tool development. Dedicated web presences for automatic dissemination of in-progress evidence updates, rather than solely relying on peer-reviewed journal publications, help to make the effort of a living evidence synthesis worthwhile. Despite offering basic living review functionalities, existing end-user tools could be further developed to be interoperable with other tools to support multiple workflow steps seamlessly, to address broader automatic evidence retrieval from a larger variety of sources, and to improve dissemination of evidence between review updates.
    Keywords:  Automation; Automatisierung; Evidence Mapping; Evidence mapping; Guideline development; Lebende Evidenz; Lebende systematische Übersichtsarbeiten; Leitlinienentwicklung; Living Review; Living evidence; Living systematic review; Machine learning; Machinelles Lernen; Systematic review; Systematische Übersichtsarbeit; Text Mining; Text mining
    DOI:  https://doi.org/10.1016/j.zefq.2023.06.007
  4. J Oral Maxillofac Surg. 2023 Jul 26. pii: S0278-2391(23)00771-1. [Epub ahead of print]
    Social Media Application as an Educational Tool for Viewers Searching "Oral Surgery".
    Miracle Vania Firmalino, Sanjeeth George, Thomas Schlieve.
      BACKGROUND: TikTok (ByteDance, Beijing, China) is the fastest growing social media application (SMA) to date and has become a major source of information for medicine. The rising use of media platforms by patients and practitioners alike plays a significant role in the perception of healthcare.PURPOSE: The purpose of this study is to identify the presence and popularity of oral and maxillofacial surgery content on the SMA, to measure whether the information shared is useful for viewers, and whether there are differences in quality of the videos between video content producer groups.
    STUDY DESIGN, SETTING, AND SAMPLE: A cross-sectional study was used to evaluate oral and maxillofacial surgery content on the SMA. Included videos were published during a 3-month period (November 16, 2021 to February 17, 2022) and mentioned "oral surgery" or "wisdom teeth" in the video description, title, or hashtag.
    INDEPENDENT VARIABLE: The independent variable was video content producer-content created by health professionals versus laypersons.
    MAIN OUTCOME VARIABLE: Quality of each video was determined by the information in the video and its usefulness, using the Global Quality Scale (GQS) criteria.
    COVARIATES: Topic was categorized as educational or anecdotal. Popularity was measured by the number of likes accumulated.
    ANALYSES: Statistical analysis was performed using 2-sample t-tests. Statistical significance was achieved with a P value < .05 with 95% confidence interval.
    RESULTS: Of 558 videos searched, 426 videos met study criteria. GQS score was greater in health professional videos (MHP = 3.30) versus layperson videos (ML = 2.05) (P < .05). Most video content producers were laypersons (69%) and videos were mostly anecdotal (87%). Health professional videos had greater popularity than layperson videos (P < .05). Health professionals and laypersons averaged 25,148 likes and 2,109 likes, respectively. All videos combined totaled 3,939,685 likes.
    CONCLUSION: By analyzing GQS and the popularity of videos, it has shown that health professionals produced higher quality videos along with greater number of likes. With 39% of videos by health professionals being educational, it shows that we are using the SMA to instruct patients. However, there is still room to produce more educational rather than anecdotal videos with the goal to provide accurate information to patients.
    DOI:  https://doi.org/10.1016/j.joms.2023.07.138
  5. Expert Rev Pharmacoecon Outcomes Res. 2023 Aug 13. 1-8
    Can artificial intelligence separate the wheat from the chaff in systematic reviews of health economic articles?
    M J Oude Wolcherink, X G L V Pouwels, S H B van Dijk, C J M Doggen, H Koffijberg.
      OBJECTIVES: Artificial intelligence-powered tools, such as ASReview, could reduce the burden of title and abstract screening. This study aimed to assess the accuracy and efficiency of using ASReview in a health economic context.METHODS: A sample from a previous systematic literature review containing 4,994 articles was used. Previous manual screening resulted in 134 articles included for full-text screening (FT) and 50 for data extraction (DE). Here, accuracy and efficiency was evaluated by comparing the number of identified relevant articles with ASReview versus manual screening. Pre-defined stopping rules using sampling criteria and heuristic criteria were tested. Robustness of the AI-tool's performance was determined using 1,000 simulations.
    RESULTS: Considering included stopping rules, median accuracy for FT articles remained below 85%, but reached 100% for DE articles. To identify all relevant articles, a median of 89.9% of FT articles needed to be screened, compared to 7.7% for DE articles. Potential time savings between 49 and 59 hours could be achieved, depending on the stopping rule.
    CONCLUSIONS: In our case study, all DE articles were identified after screening 7.7% of the sample, allowing for substantial time savings. ASReview likely has the potential to substantially reduce screening time in systematic reviews of health economic articles.
    Keywords:  Artificial intelligence; accuracy; asreview; efficiency; simulation; stopping rule; systematic review
    DOI:  https://doi.org/10.1080/14737167.2023.2234639
  6. Health Info Libr J. 2023 Aug 13.
    Methodological and users' surveys on the use of the LILACS database in Cochrane reviews identified desirable improvements to the database.
    Camila Micaela Escobar-Liquitay, Laura Vergara-Merino, Catalina Verdejo, Matías Kirmayr, Bastian Schuller-Martínez, Eva Madrid, Nicolás Meza, Javier Bracchiglione, Juan Víctor Ariel Franco.
      BACKGROUND: Latin American and Caribbean Health Sciences Literature (LILACS) is the main reference database in the region; however, the way in which this resource is used in Cochrane systematic reviews has not been studied.OBJECTIVES: To assess the search methods of Cochrane reviews that used LILACS as a source of information and explore the Cochrane community's perceptions about this resource.
    METHODS: We identified all Cochrane reviews of interventions published during 2019, which included LILACS as a source of information, and analysed their search methods and also ran a survey through the Cochrane Community.
    RESULTS: We found 133 Cochrane reviews that reported the full search strategies, identifying heterogeneity in search details. The respondents to our survey highlighted many areas for improvement in the use of LILACS, including the usability of the search platform for this purpose.
    DISCUSSION: The use and reporting of LILACS in Cochrane reviews demonstrate inconsistencies, as evidenced by the analysis of search reports from systematic reviews and surveys conducted among members of the Cochrane community.
    CONCLUSION: With better guidance on how LILACS database is structured, information specialists working on Cochrane reviews should be able to make more effective use of this unique resource.
    Keywords:  database searching; information retrieval; review and systematic search; search strategies
    DOI:  https://doi.org/10.1111/hir.12505
  7. Int J Womens Dermatol. 2023 Oct;9(3): e105
    Readability assessment of online patient education materials for central centrifugal cicatricial alopecia.
    Ogechi Ezemma, Deega Omar, Jessica B Brown-Korsah, Jazmin Newton, Susan C Taylor.
      
    Keywords:  CCCA; education; hair loss; patient; readability
    DOI:  https://doi.org/10.1097/JW9.0000000000000105
  8. BMC Med Inform Decis Mak. 2023 Aug 18. 23(1): 161
    The quality of German - language patient decision aids for oncological patients on the internet.
    Julia Möller, Lena Josfeld, Christian Keinki, Nathalie Zieglowski, Jens Büntzel, Jutta Hübner.
      BACKGROUND: Previous studies have already shown that decision aids are a suitable tool for patient decision-making. The aim of this work is to conduct an online search for freely available, German-language patient decision aids (PDAs) for cancer patients, followed by an assessment of their quality. For this purpose, a rating tool that is as manageable as possible was developed on the basis of already existing quality criteria.METHODS: A simulated patient online search was conducted via the four most frequently used search engines in Germany. A quality assessment tool was created utilizing international and national guidelines, with a focus on practicality and manageability. Subsequently, the identified PDAs were rated by 4 raters based on the rating tool.
    RESULTS: The number of German-language oncology PDAs is low (n = 22 of 200 URLs) with limited variability regarding rare cancers. Most originate from non-profit organizations. The overall quality is low, as indicated by an average of 57.52% of the maximum evaluation points of the developed quality assessment tool. Reference values used to assess quality were related to e.g. support/effectiveness, adaptation, layout, etc. No qualitative differences were found regarding different publishers. Quality differed between PDAs of different length, with longer PDAs achieving better results.
    CONCLUSION: Overall, the supply and quality of German-language PDAs is not satisfactory. The assessment tool created in this study provides a solid, but more manageable basis, for developing and identifying high-quality PDAs.
    PRACTICE IMPLICATIONS: PDAs should be increasingly used by physicians in practice. For this, a quick qualitative assessment of PDAs in everyday life must be possible. Future research has to investigate especially the aspect of the length of a PDA in more detail.
    Keywords:  Cancer; Decision-making process; Internet research; Medical screening; Oncological patients; Patient decision aids; Patient information; Shared-decision-making; Therapy decision
    DOI:  https://doi.org/10.1186/s12911-023-02259-4
  9. Vasc Endovascular Surg. 2023 Aug 18. 15385744231196644
    Quality and Readability of Spanish-Language Online Information for Aortic Aneurysm and Its Endovascular Treatment.
    Enrique M San Norberto, Álvaro Revilla, José A Brizuela, James H Taylor.
      BACKGROUND: Aortic aneurysms represent a chronic degenerative disease with life-threatening implications. In order for patients to comprehend health related information, it must be written at a level that can be readily understood.STUDY DESIGN: In January 2023, we searched "aneurisma aorta" and "endoprótesis aorta" terms on Google, Yahoo and Microsoft/Bing. The 31th websites provided by each search engine were analyzed. Four readability measures were used to evaluate websites regarding aortic aneurysm and their endovascular treatment in Spanish language: Flesch Index, Flesch-Szigriszt Index, Fernández-Huerta Index and grading Inflesz scale. The quality on information was evaluated by the HONcode seal, the DISCERN instrument and the JAMA benchmark criteria.
    RESULTS: 180 websites containing the terms "aneurisma aorta" and "endoprótesis aorta" were analyzed. Among the websites retrieved, the mean Flesh index score (53.12 ± 6.09 and 47.48 ± 7.12, respectively; P = .019), the Flesch-Szigriszt index (56.39 ± 5.72 and 48.10 ± 8.33; P = .000), and the Fernández Huerta index (61.30 ± 5.59 and 53.19 ± 8.21; P = .000), corresponding to a "somewhat difficult" readability level. In addition, the Inflesz scale (2.62 ± .59 and 2.07 ± .61; P = .000) reported a "somewhat difficult" readability, higher for the websites regarding aortic aneurysm. The HONcode seal was only presented in websites regarding aortic aneurysm (16.7%), whereas none of the websites relating to aortic endoprostheses presented it (0%) (P = .000). Websites that presented the HONcode seal obtained higher DISCERN score (P = .000, 95% CI = 6.42-16.84) and JAMA score (P = .000, 95% CI = 3.44-11.32).
    CONCLUSION: Internet information on aortic aneurysms and aortic endoprostheses is too difficult to read for the general Spanish-speaking population and is lacking in quality.
    Keywords:  aneurysm; aorta; endoprosthesis; patient education; quality of information; readability
    DOI:  https://doi.org/10.1177/15385744231196644
  10. Eur J Pediatr Surg. 2023 Aug 18.
    Internet Health Resources on Nocturnal Enuresis - A Readability, Quality and Accuracy Analysis.
    Adrian Chi Heng Fung, Mathew Hon Lam Lee, Ling Leung, Ivy Hau Yee Chan, Wong Kenneth.
      Introduction Nocturnal enuresis is a common yet quality-of-life-limiting paediatric condition. There is an increasing trend for parents to obtain information on the disease's nature and treatment options via the internet. However, the quality of health-related information on the internet varies greatly and is largely uncontrolled and unregulated. With this study, a readability, quality and accuracy evaluation of the health information regarding nocturnal enuresis is carried out. Materials and Methods A questionnaire was administered to parents and patients with nocturnal enuresis to determine their use of the internet to research their condition. The most common search terms were determined, and the first 30 websites returned by the most popular search engines were used to assess the quality of information about nocturnal enuresis. Each site was categorised by type and assessed for readability using the Gunning-Fog score, SMOG index and Dale-Chall score; for quality using the DISCERN score; and for accuracy by comparison to the International Children's Continence Society (ICCS) guidelines by three experienced paediatric urologists and nephrologists. Results A total of 30 websites were assessed and classified into five categories: professional (n = 13), non-profit (n = 8), commercial (n = 4), government (n = 3) and other (n = 2). The information was considered difficult for the public to comprehend, with mean Gunning-Fog, SMOG index and Dale-Chall scores of 12.1+/-4.3, 14.1+/-4.3 and 8.1+/-1.3, respectively. The mean summed DISCERN score was 41+/-11.6 out of 75. Only seven (23%) websites were considered of good quality (DISCERN score > 50). The mean accuracy score of the websites was 3.2+/- 0.6 out of 5. Commercial websites were of the poorest quality and accuracy. Websites generally scored well in providing their aims and identifying treatment benefits and options, while they lacked references and information regarding treatment risks and mechanisms. Conclusions Online information about nocturnal enuresis exists for parents; however, most websites are of suboptimal quality, readability and accuracy. Paediatric surgeons should be aware of parents' health-information-seeking behaviour and be proactive in guiding parents to identify high-quality resources.
    DOI:  https://doi.org/10.1055/a-2156-4833
  11. Nephrology (Carlton). 2023 Aug 17.
    Evaluating the understandability and actionability of online educational videos on pre-dialysis chronic kidney disease.
    Emi Furukawa, Tsuyoshi Okuhara, Hiroko Okada, Yumiko Fujitomo, Mari Osa, Toyohiro Hashiba, Takahiro Kiuchi.
      AIM: It remains undetermined whether online education videos for Japanese patients with chronic kidney disease (CKD) are easy to understand and allow adoption of behavioural changes. This study quantitatively assessed the understandability and applicability of online education videos for patients with CKD.METHODS: In September 2021, we identified 200 videos on YouTube using the Japanese translations of the keywords 'kidney,' 'kidney disease,' 'CKD,' and 'chronic kidney disease.' We used the Japanese version of the Patient Education Materials Assessment Tool to evaluate the understandability and usability of webpages on a scale of 0% to 100%. The cut-off was set at 70%.
    RESULTS: A total of 54 videos were evaluated. The overall understandability and actionability of the materials were 57.6 (SD = 22.6) and 53.7 (SD = 33.4), respectively. Approximately 70% and 60% of the materials were considered insufficiently understandable and actionable, respectively. Most videos lacked a summary and had difficulty in using only everyday language. Most videos included at least one action for the audience to take. However, many failed to break down the action into sequential steps. They also lack visual aids to encourage the audience to take action.
    CONCLUSION: Our results suggest that current information on pre-dialysis chronic kidney disease was not presented in a manner that can be applied by laypeople.
    Keywords:  chronic kidney disease; health communication; patient education
    DOI:  https://doi.org/10.1111/nep.14226
  12. J Vasc Access. 2023 Aug 10. 11297298231186374
    A content validity, reliability and quality analysis of peripheral intravenous catheterization videos on YouTube™.
    Aysel Özsaban, Aysun Bayram.
      BACKGROUND: YouTube™ has become a potential way to integrate technology into nursing curriculum and acquire skills. However, it is important to review the accuracy of the information contained in YouTube™. This study was conducted to evaluate the content validity, reliability and quality of YouTube™ videos on peripheral intravenous catheterization.METHODS: In this descriptive study, videos were searched using the keyword 'Peripheral Venous Catheter'. The content validity, reliability and quality of the videos were evaluated using the 'Peripheral Intravenous Catheterization Insertion Skill Form', 'DISCERN Questionnaire', 'Global Quality Scale', respectively. These videos were categorized by their theme, upload source, technical features and analysed statistically.
    RESULTS: Of the 48 videos, 38 (79.2%) classified as an useful video, 24 (50%) were uploaded by medical educational platforms and 28 (58.3%) had an average technical feature. There was a statistically significant difference between the reliability, quality, content validity scores by the video theme (p < 0.05). The content validity, reliability and quality score of useful videos were higher than misleading videos. In addition, pairwise comparisons indicated that there was a statistically significant difference between the content validity, reliability and quality scores of Peripheral Intravenous Catheterization demonstrated on a person or a mannequin were higher than those applied with ultrasonography (p < 0.05).
    CONCLUSIONS: As a result of the reviewing of the videos, it was determined that these videos provided useful content. Despite this positive result, some videos provide risky information for patient safety due to issues such as ignoring the asepsis principles and not including proper Peripheral Intravenous Catheterization steps. It may be recommended to consider the Peripheral Intravenous Catheterization steps and patient safety principles in international guidelines in the preparation of videos showing the Peripheral Intravenous Catheterization insertion.
    Keywords:  Nursing education; Peripheral Intravenous Catheterization; nursing; nursing skill; venous catheterization
    DOI:  https://doi.org/10.1177/11297298231186374
  13. Public Health Nutr. 2023 Aug 14. 1-24
    A content analysis of online videos containing dietary recommendations for gout and their alignment with evidence-based dietary guidelines.
    Kirstie L Lamb, Margo E Barker, Anthony Lynn.
      OBJECTIVE: To assess the alignment of YouTube® videos providing dietary recommendations for gout with evidence-based guidelines targeted at the United Kingdom (UK) population and to establish their quality.DESIGN: A content analysis of YouTube® videos providing dietary recommendations for gout was undertaken. Videos were categorised by video source. Each video's dietary recommendations for gout were compared with three evidence-based guidelines for gout, producing a compliance score. Presence of non-guideline advice was assessed. Understandability and actionability were evaluated using the Patient Education Material Assessment Tool for Audio-Visual Materials. Reliability was assessed using an adapted-DISCERN tool and educational quality using the Global Quality Score Five-Point Scale. Differences between video source and continuous variables were assessed using one-way Kruskal-Wallis H tests. For categorical variables, associations were investigated using Fisher-Freeman-Halton tests.
    SETTING: Online, May-June 2020.
    PARTICIPANTS: 131 videos.
    RESULTS: Alignment of videos with evidence-based guidelines was poor (median compliance score 27% (IQR 17-37%)). Additionally, 57% of videos contained non-guideline advice. The health professional source group had the fewest videos containing non-guideline advice, but this was only significantly lower than the naturopath group (31% vs 81%, p = 0.009). Almost 70% of videos were considered poorly actionable and 50% poorly understandable. Most videos were rated poor for reliability (79%) and poor to generally poor for educational quality (49%).
    CONCLUSIONS: YouTube® videos providing dietary recommendations for gout frequently fail to conform to evidence-based guidelines and their educational quality, reliability, understandability, and actionability is often poor. More high-quality, comprehensive, evidence-based YouTube® videos are required for UK gout patients.
    Keywords:  YouTube; dietary recommendations; evidence-based practice; gout; patient education material
    DOI:  https://doi.org/10.1017/S136898002300160X
  14. Cureus. 2023 Aug;15(8): e43318
    Quality and Content Analysis: Can YouTube Videos on Agoraphobia Be Considered a Reliable Source?
    Ayse Erdogan Kaya, Beyza Erdogan Akturk.
      BACKGROUND: YouTube, known as an online video platform, is one of the most popular and dynamic video platforms in the world. it provides access to videos with a variety of content, both in health and many other areas. The fact that it is accessible to everyone and free of charge makes it frequently preferred by individuals. The effectiveness of social media platforms on the thoughts and behaviors of individuals has caused YouTube and other similar platforms to be the subject of health research in recent years. Agoraphobia is an anxiety disorder characterized by an intense fear of feeling trapped somewhere. Agoraphobia is a common type of anxiety disorder in society, and cognitive behavioral and psychopharmacological agents are used in its treatment. Our aim in this research is to examine YouTubeTM videos on agoraphobia in terms of reliability and quality.METHODS: The first 50 videos related to agoraphobia were included in the analysis, and the duration (minutes), video content, institutions/individuals who uploaded the video, the time elapsed since uploading, total views, and likes were recorded. In addition, all videos were evaluated on two different scales: Quality Criteria for Consumer Health Information (DISCERN) and the Global Quality Scale (GQS). The obtained data were analyzed statistically.
    RESULTS: The mean video duration was 11.4±9.38 minutes, the mean views count was 113299.5±333091, and the mean like count was 8512.76±31429.37. Videos were evaluated in terms of content; 50% included general information, 28% agoraphobia experience, and 22% information about overcoming agoraphobia. The GQS and DISCERN scores were significantly higher in professional videos than in non-professionals (p<0.005).
    CONCLUSION: As a result of the evaluation of YouTubeTM videos about agoraphobia in terms of quality and content, it has been determined that it is necessary to increase the rate of videos prepared by mental health professionals. Psychiatrists and other healthcare professionals working in the field of anxiety should be encouraged to provide videos with scientific and reliable content.
    Keywords:  agoraphobia; anxiety; discern; gqs; youtube
    DOI:  https://doi.org/10.7759/cureus.43318
  15. Microsurgery. 2023 Aug 14.
    Educational quality of YouTube content on brachial plexus injury and treatment.
    Dhruv Mendiratta, Daniel F Liggio, Michael F Levidy, Jasmine Mahajan, Alice Chu, Aleksandra McGrath.
      INTRODUCTION: While surgical literature exists on birth-related brachial plexus injury (BPI), there are not validated sources of information on BPI for patients, which can impact patient autonomy and decision-making. With YouTube as a popular source for patients to research diagnoses, this study aims to evaluate the quality of information regarding BPI and its treatment available on the platform.MATERIALS AND METHODS: BPI YouTube videos were screened independently by two reviewers. Videos were categorized by source: (1) academic, government, and non-profit organizations; (2) private practices, companies, and for-profit organizations; (3) independent users. Each video was evaluated for reliability, credibility, and quality using the modified DISCERN criteria (scale, 0-5), Journal of the American Medical Association (JAMA) criteria (scale, 0-4), and Global Quality Scale (GQS; scale, 1-5). Surgical treatment videos were analyzed by the senior author using a modified "treatment" DISCERN criteria (scale, 8-40). Non-English videos were excluded from this study. Analysis of variance tests were used to compare means.
    RESULTS: One hundred and fifteen videos were selected for final analysis. The mean modified DISCERN score was 3.26; JAMA was 2.31; GQS was 3.48. Videos were subdivided according to source. Group 1, 2, and 3 had 45, 24, and 46 videos, respectively. Modified DISCERN score was greater for Group 1 than Group 2 (3.58 vs. 3.04, p < .001) and Group 3 (3.58 vs. 3.07, p < .001). JAMA score was greater for Group 1 than Group 2 (2.63 vs 2.15, p = .041) and Group 3 (2.63 vs. 2.08, p = .002). GQS score was greater for Group 1 than Group 2 (3.93 vs. 3.31, p = .031) and Group 3 (3.93 vs. 3.13, p < .001). Of the 34 videos (44.7%) that mentioned treatment, the DISCERN score was 14.32.
    CONCLUSION: The videos analyzed were found to have moderate reliability, credibility, and quality. The reliability of information regarding treatments for BPI was poor. Healthcare providers should supply additional information on treatment of BPI.
    DOI:  https://doi.org/10.1002/micr.31099
  16. Iran J Public Health. 2023 Jul;52(7): 1439-1446
    Exploring the Relationship between Health Information Literacy and Health Behaviors of the Elderly.
    Lifang Tang, Jie Wang.
      Background: Population aging and health issues are one of the most crucial issues worldwide. Health behaviors are the most direct factor affecting the health of the elderly. This study aims to explore the relationship between the health information literacy and health behaviors of the elderly.Methods: A hypothesis model for the influence of health information literacy on health behaviors of the elderly was constructed. Based on survey data of 382 elderly people aged 60 and above in Hangzhou, China, from March 2022 to May 2022, the relationship between the health information literacy and health behaviors of the elderly was studied by using quantitative statistics and the structural equation model.
    Results: The health information literacy of the elderly had a significant positive impact on their health behaviors (P<0.01). Health information seeking played a partial mediating role between health information literacy and health behaviors. Social support exerted a significant moderating effect between health information literacy and health behaviors (P<0.05) and between health information literacy and health information seeking (P<0.05).
    Conclusion: Health information literacy is the decisive factor of the elderly's health behaviors. The higher level of health information literacy, the more health information seeking, thus promoting more active health behaviors.
    Keywords:  Elderly; Health behaviors; Health information literacy; Health information seeking; Social support
    DOI:  https://doi.org/10.18502/ijph.v52i7.13245
  17. Patient Educ Couns. 2023 Jul 18. pii: S0738-3991(23)00271-9. [Epub ahead of print]116 107891
    Information needs and preferences of patients with an ankle fracture: User involvement study creating an mHealth solution.
    Charlotte Abrahamsen, Rikke Serritslev, Charlotte Myhre Jensen.
      OBJECTIVE: The aim of this study was to employ a user-driven participatory design (PD) approach to develop an mHealth solution that addresses patients' information needs after surgical or non-surgical treatment for an ankle fracture.METHODS: Patients with an ankle fracture and health care professionals along the treatment pathway in both the hospital and municipality participated in four workshops (WS).
    RESULTS: We found that patients with an ankle fracture need information on topics such as "a typical course," "bandages and assistive devices," "what can I feel," "what may I do," "what to usually worry about," "medicine," "tips and tricks," and "contact information." Moreover, patients requested diverse modes of dissemination, preferably a combination of text, timelines, pictures, animations, and videos. Alpha and beta testing of the digital platform was conducted, and content-related improvements were made. A readability analysis showed reading ease of 40.1 of 100, meaning that it should be easily understood by 15-16 year-olds.
    CONCLUSION: Involving representatives of future users in creating this mHealth solution using PD demonstrates the benefits of creating a solution that aligns with users' needs.
    PRACTICE IMPLICATIONS: The mHealth solution is now ready for implementation and large-scale evaluation in phase three of the overall PD study. An mHealth usability questionnaire will be employed to assess usability by future patients with surgically or non-surgically treated ankle fractures.
    Keywords:  Ankle fracture; MHealth; Participatory design; Patient education; Patient information; User involvement
    DOI:  https://doi.org/10.1016/j.pec.2023.107891
  18. Adv Exp Med Biol. 2023 ;1425 645-662
    The Impact of Smokers' Information-Seeking Behavior on Smoking Cessation.
    Petros Kostagiolas, Sofia Parnavela, Panagiotis Theodorou.
      INTRODUCTION: Smoking has a harmful effect on human body and is rated to be the primary cause of preventable premature disease and death worldwide, while it is responsible for at least 25 life-threatening diseases.METHODS: An empirical investigation has been carried out through the development and distribution of a structured questionnaire. The sample of empirical investigation consisted of 150 smokers aged over 18 years (response rate 85.7%).
    ANALYSIS: Descriptive analysis and correlation control of questionnaire variables are used to report the findings of the study.
    RESULTS: Information about passive smoking, smoking consequences, and current therapies in quitting smoking were rated highest among smoke-related information needs. The main sources of information were family/relatives/friends/colleagues and Internet and less important factors were formal sources like medical staff, health professionals, and primary health care services. Ε-health literacy is correlated with higher self-efficacy, positive intention to quit smoking, and better educational level while is negatively correlated with increasing age.
    CONCLUSIONS: The creation of specialized programs and upgraded information services is fundamental for successful smoking cessation. These programs and services should be addressed to all socioeconomic groups and combined with the improvement in smokers' e-health literacy will contribute to a higher self-efficacy and finally drive them to quit smoking.
    Keywords:  Information literacy; Information-seeking behavior; Self-efficacy; Smoking cessation
    DOI:  https://doi.org/10.1007/978-3-031-31986-0_63
  19. JMIR Form Res. 2023 Aug 15. 7 e45952
    Gender Affirmation-Related Information-Seeking Behaviors in a Diverse Sample of Transgender and Gender-Diverse Young Adults: Survey Study.
    Elizabeth R Boskey, Meg Quint, Rena Xu, Jessica Kremen, Carlos Estrada, Regina Tham, Kaiden Kane, Sari L Reisner.
      BACKGROUND: Of the 1.6 million transgender and gender-diverse (TGD) people in the United States, approximately 700,000 are youth aged 13-24 years. Many factors make it difficult for TGD young people to identify resources for support and information related to gender identity and medical transition. These range from lack of knowledge to concerns about personal safety in the setting of increased antitransgender violence and legislative limitations on transgender rights. Web-based resources may be able to address some of the barriers to finding information and support, but youth may have difficulty finding relevant content or have concerns about the quality and content of information they find on the internet.OBJECTIVE: We aim to understand ways TGD young adults look for web-based information about gender and health.
    METHODS: In August 2022, 102 young adults completed a 1-time survey including closed- and open-ended responses. Individuals were recruited through the Prolific platform. Eligibility was restricted to people between the ages of 18-25 years who identified as transgender and were residents of the United States. The initial goal was to recruit 50 White individuals and 50 individuals who identified as Black, indigenous, or people of color. In total, 102 people were eventually enrolled.
    RESULTS: Young adults reported looking on the internet for information about a broad range of topics related to both medical- and social-gender affirmation. Most participants preferred to obtain information via personal stories. Participants expressed a strong preference for obtaining information from other trans people.
    CONCLUSIONS: There is a need for accessible, expert-informed information for TGD youth, particularly more information generated for the transgender community by members of the community.
    Keywords:  United States; accessibility; gender diverse; gender identity; health communication; information seeking; support; survey; transgender community; transgender youth; web-based health; web-based information; youth
    DOI:  https://doi.org/10.2196/45952
  20. Cad Saude Publica. 2023 ;pii: S0102-311X2023000700501. [Epub ahead of print]39(7): e00098323
    Challenges related to records and quality of information in the Amazon.
    Bernardo Lanza Queiroz.
      
    DOI:  https://doi.org/10.1590/0102-311XPT098323
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