bims-librar Biomed News
on Biomedical librarianship
Issue of 2023–08–06
fiveteen papers selected by
Thomas Krichel, Open Library Society



  1. Dev Med Child Neurol. 2023 Aug 01.
      Many sources document problems that jeopardize the trustworthiness of systematic reviews. This is a major concern given their potential to influence patient care and impact people's lives. Responsibility for producing trustworthy conclusions on the evidence in systematic reviews is borne primarily by authors who need the necessary training and resources to correctly report on the current knowledge base. Peer reviewers and editors are also accountable; they must ensure that systematic reviews are accurate by demonstrating proper methods. To support all these stakeholders, we attempt to distill the sprawling guidance that is currently available in our recent co-publication about best tools and practices for systematic reviews. We specifically address how to meet methodological conduct standards applicable to key components of systematic reviews. In this complementary invited review, we place these standards in the context of good scholarship principles for systematic review development. Our intention is to reach a broad audience and potentially improve the trustworthiness of evidence syntheses published in the developmental medicine literature and beyond.
    DOI:  https://doi.org/10.1111/dmcn.15719
  2. Nature. 2023 Aug 02.
      
    Keywords:  Databases; Machine learning; Research data
    DOI:  https://doi.org/10.1038/d41586-023-02470-3
  3. Ecancermedicalscience. 2023 ;17 1573
       Background: Prostate cancer remains a major public health challenge in the Arab world with few population-based screening programmes, a high incidence of advanced disease at diagnosis, and limited patient access to sub-specialist care. A large number of patients diagnosed with prostate cancer use the (World Wide Web) internet to learn more about the disease and treatment options; however, material in the Arabic language is scarce. This study aims to objectively assess the quality and reliability of the information on YouTube™, which is the most globally used video platform, pertaining to prostate cancer videos published in Arabic.
    Methods: A total of 100 videos were identified by searching specific keywords in Arabic (Prostate cancer, prostate cancer treatment and prostate). Retrieved videos were analysed and categorised into four groups according to content as useful, misleading, personal experience, or irrelevant. Useful videos were assessed using the global quality scale (GQS) as a validated measure of quality, which is graded on a 5-point Likert scale, with 1 representing poor quality and 5 representing excellent quality. The modified DISCERN tool was used as a measure of reliability. The tool has a potential total score of 5 points, with higher scores indicating higher reliability.
    Results: Most of the speakers in these videos identified themselves as health workers (77%). Only 8% of the videos sources were hospital or medical organisations. Of the 100 retrieved videos, 86% were found to have useful content, while 14% were found to be misleading or irrelevant. The median GQS score of the useful videos was 4 (IQR: 4-5), while the median modified DISCERN tool was 4 (IQR: 3-4).
    Conclusion: To our knowledge, this is the first in-depth study to objectively assess the quality and reliability of information pertaining to prostate cancer in the Arabic language on YouTube™. More efforts are needed to improve the quality of prostate cancer educational materials and videos in the Arabic language on YouTube™. Patient focus groups are planned as the next step to address the information gap for patients with prostate cancer in the Arabic language.
    DOI:  https://doi.org/10.3332/ecancer.2023.1573
  4. Oral Dis. 2023 Jul 30.
       OBJECTIVES: Online information on oral epithelial dysplasia (OED) is insufficient and of low quality. While only written information has been previously assessed, this study aims to evaluate the content and quality of audiovisual (AV) online information about OED.
    METHODS: One hundred and twenty-seven materials were initially considered using six key words across two search engines (YouTube and Google). Ultimately, 29 materials remained for the final assessment. These materials were then analysed for content, quality (DISCERN instrument, JAMA benchmarks), understandability and actionability.
    RESULTS: Most contents were scientific (n = 25), while three videos were educational, and one video was a personal experience with OED. On a scale of 1-5, the overall DISCERN score was (mean ± SD = 2.26 ± 0.79), suggesting poor quality of information. Regarding JAMA benchmarks, there was no single material that fulfilled or lacked all four benchmarks. The overall mean understandability score was 82% and the actionability mean score was significantly low at 29%.
    CONCLUSION: Although the vast majority of AV materials on OED were primarily produced for scientific purposes, these materials could be helpful as resources for patient education. Keeping in mind, however, that the desired quality and essential patient information about OED available online remains largely poor and missing.
    Keywords:  audiovisual health information; health education; mouth precancer education; oral epithelial dysplasia information; patient education; patient information
    DOI:  https://doi.org/10.1111/odi.14701
  5. Ital J Dermatol Venerol. 2023 Aug;158(4): 347-352
       BACKGROUND: Recently, YouTube has been frequently used by non-physicians and physicians to share information and experiences about diseases. This study aims to compare videos uploaded to YouTube about urticaria in terms of quality, reliability, usefulness, and popularity based on the uploaded source.
    METHODS: YouTube was searched using the keyword "urticaria". From the search returns, we selected the first 60 videos created by physicians and the first 60 videos created by non-physicians. We compared the two sets of videos in terms of reliability, usefulness, quality, and popularity using the Video Power Index (VPI) score, DISCERN score, global quality score (GQS) and usefulness score.
    RESULTS: The mean DISCERN score, GQS, and usefulness score were statistically significantly higher (P<0.001) for videos uploaded by physicians than those uploaded by non-physicians. Although not statistically significant, the median number of likes and comments, the rate of views, and the VPI scores were higher for videos uploaded by the non-physician group. The mean DISCERN scores, GQS, and usefulness scores were statistically significantly higher (P<0.001) for videos uploaded by specialist physicians (dermatologists and allergists) than for those uploaded by non-specialists. Specialist physicians mentioned medical treatment for the condition more than non-specialists, which was statistically significant (P<0.001).
    CONCLUSIONS: YouTube videos about urticaria uploaded by physicians, especially specialists, are of higher quality, reliable and useful, but videos uploaded by non-physicians are more popular and have higher viewing rates.
    DOI:  https://doi.org/10.23736/S2784-8671.23.07588-6
  6. Heliyon. 2023 Aug;9(8): e18427
      This study investigated the influence of information literacy (IL) skills on students' information seeking behaviour and lifelong learning skills in Higher Educational institutions in Ghana, with particular reference to the University of Cape Coast (UCC). Using a mixed method approach, 278 students from the College of Education Studies, UCC were sampled for the study. The components of the American College and Research Library (ACRL) model was used to measure the information literacy competence level of the students. A content and bibliographic evaluation of students' research projects were conducted using document analysis. Pearson product-moment correlation coefficient was used to determine the association between information literacy skills and information seeking behaviour of students from data collected through questionnaires, interviews and document analysis. The results revealed that respondents had developed substantial skills in information literacy and lifelong learning skills and thus adopted positive attitudes in information seeking. The paper concludes that majority of the students were confident users of information. The study recommends that academic libraries should make available a wide array of information sources and deliberately run programmes to introduce students to those information sources as a way of building their competency levels in information literacy.
    Keywords:  Information literacy instruction; Information literacy skills; Information seeking behaviour; Lifelong learning; University students
    DOI:  https://doi.org/10.1016/j.heliyon.2023.e18427
  7. J Librariansh Inf Sci. 2022 Sep;54(3): 350-362
      The aim of this research is to reveal academics' awareness, attitude, and use of open access. In line with the research purpose, the survey research design is adopted. This research consists 151 academics from 12 basic research areas; eight of them being Professor Dr, 17 being Associate Professor Dr, 49 being Doctor Lecturer, and 77 being Research Assistant or Lecturer. A questionnaire consisting of 19 open access and five demographic information questions was used for the data collection tool. The research results show that 75% of the academics have open access awareness and that their awareness is generally created by information that they obtain through the Internet and their friends. In addition, most of the academics indicate that their awareness of open access has increased during the pandemic period. When considering the level of academics' use of open access, it is found that 75% of the academics use articles in open access journals for their own research and 51% of the academics do not publish any articles in open access journals.
    Keywords:  Academicians; attitude; awareness; open access; use
    DOI:  https://doi.org/10.1177/09610006211016509
  8. Med J Malaysia. 2023 Jul;78(4): 503-507
       INTRODUCTION: Southeast Asia countries had been among the worst-hit countries by COVID-19. The misinformation was spread along with the increasing number of cases. This study aims to describe how Indonesians and Vietnamese behave in seeking information related to COVID-19.
    MATERIALS AND METHODS: The study used a cross-sectional design with purposive sampling technique (n=167). Targeted population was limited to 18 - 59 years of age. An online form was shared via WhatsApp, Facebook and Instagram of each contributor. Data collected includes sociodemographic data (age, gender, marital status, educational background, occupation, and residences), and data on information seeking behaviour. Data was analysed using SPSS V.20.
    RESULTS: Almost 95.70% of Indonesians and 89.20% of Vietnamese accessed the online information. A 75.68% Vietnamese and 46.24% Indonesians shared information with others, 59.14% of Indonesians and 20.3% of Vietnamese stated that they discussed the information with health workers.
    CONCLUSION: Both countries have implemented proper online-based information. However, a good mass communication strategies were needed to protect people from the misinformation.
  9. Discip Interdscip Sci Educ Res. 2022 ;4(1): 11
      COVID-19 creates an opportunity for science classrooms to relate content about viruses to students' personal experiences with the pandemic. Previous researchers have shown that students are interested in crisis situations like disease outbreaks; however, they primarily acquire information about these events through internet sources which are often biased. We argue that it is important to understand student interest, concerns, and information-seeking behaviors related to COVID-19 to support science classroom learning and engagement about the virus and other potential outbreaks. We surveyed 224 high school students and analyzed their responses to six open-ended questions. We found that students expressed the most interest in topics related to the origin of COVID-19 and vaccines. Their greatest concerns included contracting the virus or someone they know contracting the virus and vaccine distribution. Of our sample, only 6.7% reported using their teachers as their source of COVID-19 information. Science classrooms have the potential to pique students' situational interest by discussing COVID-19 topics that are important to students, which can increase their academic performance, content knowledge, attention, and engagement in learning about viruses. Moreover, classroom instruction about COVID-19 by teachers has shown to alleviate students' stress and anxiety. We provide key areas of student interest about COVID-19 to help educators address students' questions and improve curricular resources on viral pandemics.
    Keywords:  COVID-19; Information sources; Science learning; Student interest
    DOI:  https://doi.org/10.1186/s43031-022-00053-2
  10. Int J Med Inform. 2023 Jul 28. pii: S1386-5056(23)00183-1. [Epub ahead of print]177 105165
       BACKGROUND: Parents' play a proactive role in seeking health information to ensure optimal growth and development for their children. To date, very little is known about the differences between information seeking behaviour for child health and engagement with resources between culturally and linguistically diverse (CALD) and non-CALD parents.
    OBJECTIVE: To investigate the differences in resources used and trusted for information related to child health behaviours and engagement with online features among CALD and non-CALD respondents in Australia.
    METHODS: An analysis of a theory informed online cross-sectional survey was conducted using data from 122 CALD and 399 non-CALD parents who had a child younger than 24 months or were currently pregnant in Australia. Descriptive statistics and chi-squared were used to compare the differences, and logistic regression models were used to identify factors associated with using health resources.
    RESULTS: The most trusted sources for information reported by respondents were health professionals (76.2 %), websites run by health professionals (59.5 %), and government websites (53.2 %). Social media was significantly more trusted as a source of information for child health behaviours among CALD respondents than non-CALD respondents (odds ratio (OR) 1.92, P = 0.01). In contrast, booklets/ pamphlets and friends were significantly more trusted by non-CALD parents than for CALD parents (OR 0.54, P = 0.02). General search engines were used very frequently among CALD respondents for child health information (39.3 % vs 24.1 %, p = 0.013). Overall, the most common features respondents enjoyed on websites were images (81 %), videos (40.1 %), and discussion forums (39.9 %). CALD respondents significantly favoured videos (p = 0.003) while non-CALD respondents preferred obtaining information through attachments (p < 0.001).
    CONCLUSIONS: Despite parents' reporting health professionals, websites run by health professionals, and government websites as trustworthy, general search engines and social media were still the most frequently used information source for parents with young children. Credible resources parents deem as trustworthy should take into account effective and engaging means of disseminating information that are accessible to both CALD and non-CALD communities.
    Keywords:  Child health; Culturally and linguistically diverse; Health behavior; Health information seeking behavior; Information resources; Internet; Online features
    DOI:  https://doi.org/10.1016/j.ijmedinf.2023.105165
  11. Health Info Libr J. 2023 Aug 01.
       BACKGROUND: Patients can often access the internet and social media for health information but it is not clear how much they trust and use the information retrieved.
    OBJECTIVE: To investigate the social media and internet use rates and preferences of orthopaedic patients, to reveal to what extent they self-treat, and to probe the affecting factors.
    METHODS: Two thousand fifty-eight patients admitted to an orthopaedic polyclinic were asked to fill out a survey (voluntarily) consisting of 15 items, to collect demographic data, preference for platforms and sources used, trusted sources, and the extent to which information obtained was used for self-care.
    RESULTS: The most preferred and most trusted sources of information were Google and other search engines, and physicians' personal websites (p < 0.001).
    DISCUSSION: Variables such as age, gender, educational level and occupation affect the research preferences. Reliance on social media decreases with increasing educational levels (p < 0.001).
    CONCLUSION: Health information and knowledge services should work with health professionals to improve aspects of health literacy among orthopaedic patients.
    Keywords:  consumer health information; internet; patient information; social media; surveys
    DOI:  https://doi.org/10.1111/hir.12503
  12. Prostate Cancer Prostatic Dis. 2023 Jul 29.
       BACKGROUND: The proportion of health-related searches on the internet is continuously growing. ChatGPT, a natural language processing (NLP) tool created by OpenAI, has been gaining increasing user attention and can potentially be used as a source for obtaining information related to health concerns. This study aims to analyze the quality and appropriateness of ChatGPT's responses to Urology case studies compared to those of a urologist.
    METHODS: Data from 100 patient case studies, comprising patient demographics, medical history, and urologic complaints, were sequentially inputted into ChatGPT, one by one. A question was posed to determine the most likely diagnosis, suggested examinations, and treatment options. The responses generated by ChatGPT were then compared to those provided by a board-certified urologist who was blinded to ChatGPT's responses and graded on a 5-point Likert scale based on accuracy, comprehensiveness, and clarity as criterias for appropriateness. The quality of information was graded based on the section 2 of the DISCERN tool and readability assessments were performed using the Flesch Reading Ease (FRE) and Flesch-Kincaid Reading Grade Level (FKGL) formulas.
    RESULTS: 52% of all responses were deemed appropriate. ChatGPT provided more appropriate responses for non-oncology conditions (58.5%) compared to oncology (52.6%) and emergency urology cases (11.1%) (p = 0.03). The median score of the DISCERN tool was 15 (IQR = 5.3) corresponding to a quality score of poor. The ChatGPT responses demonstrated a college graduate reading level, as indicated by the median FRE score of 18 (IQR = 21) and the median FKGL score of 15.8 (IQR = 3).
    CONCLUSIONS: ChatGPT serves as an interactive tool for providing medical information online, offering the possibility of enhancing health outcomes and patient satisfaction. Nevertheless, the insufficient appropriateness and poor quality of the responses on Urology cases emphasizes the importance of thorough evaluation and use of NLP-generated outputs when addressing health-related concerns.
    DOI:  https://doi.org/10.1038/s41391-023-00705-y