bims-librar Biomed News
on Biomedical librarianship
Issue of 2023–07–16
ten papers selected by
Thomas Krichel, Open Library Society
  1. Faculty-Librarian Collaboration to Enhance Information Literacy Skills in an Online Nursing Course.
  2. Organizing training workshops on gene literature retrieval, profiling, and visualization for early career researchers.
  3. In search of health information….
  4. Evaluating the Effectiveness of Artificial Intelligence-Powered Large Language Models (LLMS) Application in Disseminating Appropriate and Readable Health Information in Urology.
  5. Is the internet a sufficient source of information on sarcoidosis?
  6. Assessment of Lung Cancer YouTube Videos for Patient Education.
  7. YouTube as a source of information on ectopic pregnancy: A qualitative and quantitative analysis.
  8. English-language videos on YouTube as a source of information Human Papilloma Virus vaccination.
  9. Assessing Patterns in Childhood Obesity Patient Education: A Quality of Online Health Information and Google Trends Analysis.
  10. Exploring Health Information Seeking Among Participants from a Black Ethnic Group in the UK: a Qualitative Study.
  1. Nurs Educ Perspect. 2023 Jul 11.
    Faculty-Librarian Collaboration to Enhance Information Literacy Skills in an Online Nursing Course.
    Sally Mahmoud, Tessa Withorn.
       ABSTRACT: This article describes an exemplary collaboration in which a librarian was fully embedded in beginner undergraduate nursing courses in a baccalaureate nursing program. The goal was to increase academic help-seeking behaviors and information literacy skills. Students benefited from the intervention and increasingly demonstrated the use of better sources for their evidence-based practice assignments. Library tutorials were permanently integrated into the courses. A collaborative approach to designing research assignments allowed the librarian and nursing faculty to lay a foundation of information literacy in the nursing program and encourage academic help-seeking behaviors.
    DOI:  https://doi.org/10.1097/01.NEP.0000000000001145
  2. F1000Res. 2021 ;10 275
    Organizing training workshops on gene literature retrieval, profiling, and visualization for early career researchers.
    Fatima Al Ali, Alexandra K Marr, Zohreh Tatari-Calderone, Mohamed Alfaki, Mohammed Toufiq, Jessica Roelands, Basirudeen Syed Ahamed Kabeer, Davide Bedognetti, Nico Marr, Mathieu Garand, Darawan Rinchai, Damien Chaussabel.
      Early-career researchers must acquire the skills necessary to effectively search and extract information from biomedical literature. This ability is for instance crucial for evaluating the novelty of experimental results, and assessing potential publishing opportunities. Given the rapidly growing volume of publications in the field of biomedical research, new systematic approaches need to be devised and adopted for the retrieval and curation of literature relevant to a specific theme. In this context, we present a hands-on training curriculum aimed at retrieval, profiling, and visualization of literature associated with a given topic. The curriculum was implemented in a workshop in January 2021. Here we provide supporting material and step-by-step implementation guidelines with the ISG15 gene literature serving as an illustrative use case. Workshop participants can learn several skills, including: 1) building and troubleshoot PubMed queries in order to retrieve the literature associated with a gene of interest; 2) identifying key concepts relevant to given themes (such as cell types, diseases, and biological processes); 3) measuring the prevalence of these concepts in the gene literature; 4) extracting key information from relevant articles, and 5) developing a background section or summary on the basis of this information. Finally, trainees can learn to consolidate the structured information captured through this process for presentation via an interactive web application.
    Keywords:  Concept extraction; Data visualization; Literature profiling; Science education
    DOI:  https://doi.org/10.12688/f1000research.36395.2
  3. Health Info Libr J. 2023 Jun;40(2): 123-124
    In search of health information….
    Maria J Grant.
      Searching for health information is a core activity for health library and knowledge workers, whether seeking to support health care workers in overcoming barriers to accessing drug information, exploring the potential of text mining in developing search filters, translating search filters for use on alternative databases, or the importance of updating search filters to ensure their ongoing utility.
    Keywords:  information seeking behaviour; review; search strategies; systematic
    DOI:  https://doi.org/10.1111/hir.12484
  4. J Urol. 2023 Jul 10. 101097JU0000000000003615
    Evaluating the Effectiveness of Artificial Intelligence-Powered Large Language Models (LLMS) Application in Disseminating Appropriate and Readable Health Information in Urology.
    Ryan Davis, Michael Eppler, Oluwatobiloba Ayo-Ajibola, Jeffrey C Loh-Doyle, Jamal Nabhani, Mary Samplaski, Inderbir Gill, Giovanni E Cacciamani.
       PURPOSE: The internet is a ubiquitous source of medical information, and natural language processors are gaining popularity as alternatives to traditional search-engines. However, suitability of their generated content for patients is not well understood. We aimed to evaluate the appropriateness and readability of natural language processor-generated responses to urology-related medical inquiries.
    MATERIALS AND METHODS: Eighteen patient questions were developed based on Google Trends and were used as inputs in ChatGPT. Three categories were assessed: oncological, benign, and emergency. Questions in each category were either treatment or sign/symptom-related questions. Three native English-speaking Board-Certified urologists independently assessed appropriateness of ChatGPT outputs for patient counseling using accuracy, comprehensiveness, and clarity as proxies for appropriateness. Readability was assessed using the Flesch Reading Ease and Flesh-Kincaid Reading Grade Level formulas. Additional measures were created based on validated tools and assessed by 3 independent reviewers.
    RESULTS: Fourteen of 18 (77.8%) responses were deemed appropriate, with clarity having the most 4 and 5 scores (P = .01). There was no significant difference in appropriateness of the responses between treatments and symptoms or between different categories of conditions. The most common reason from urologists for low scores was responses lacking information-sometimes vital information. The mean (SD) Flesch Reading Ease score was 35.5 (SD=10.2) and the mean Flesh-Kincaid Reading Grade Level score was 13.5 (1.74). Additional quality assessment scores showed no significant differences between different categories of conditions.
    CONCLUSIONS: Despite impressive capabilities, natural language processors have limitations as sources of medical information. Refinement is crucial before adoption for this purpose.
    Keywords:  AI; Artificial Intelligence; ChatGPT; Communication; Health; Symptoms; Treatments; Urology
    DOI:  https://doi.org/10.1097/JU.0000000000003615
  5. Front Med (Lausanne). 2023 ;10 1217146
    Is the internet a sufficient source of information on sarcoidosis?
    Katharina Buschulte, Philipp Höger, Claudia Ganter, Marlies Wijsenbeek, Nicolas Kahn, Katharina Kriegsmann, Finn M Wilkens, Jolene H Fisher, Christopher J Ryerson, Felix J F Herth, Michael Kreuter.
       Introduction: Many patients use the internet as a source of health information. Sarcoidosis is a complex disease, and internet resources have not yet been analyzed for reliability and content on sarcoidosis.
    Aims: Our study aimed to investigate the content and the quality of information on sarcoidosis provided by internet resources.
    Methods: Google, Yahoo, and Bing were searched for the term "sarcoidosis," and the first 200 hits were saved in each case. Those websites that met the inclusion criteria (English language, no registration fees, and relevant to sarcoidosis) were then analyzed by two independent investigators for readability, quality (HON, JAMA, and DISCERN), and content (25 predefined key facts) of the provided information.
    Results: The websites were most commonly scientific or governmental (n = 57, 46%), and the median time since the last update was 24 months. Quality was rated with a median JAMA score of 2 (1; 4) and a median overall DISCERN score of 2.4 (1.1; 4.1), both scores represent partially sufficient information. In total, 15% of websites had a HON certificate. Website content measured by the median key fact score was 19 (ranging from 2.5 to 25) with the lowest scores for acute vs. chronic course of the disease, screening for extrapulmonary disease, and diffuse body pain. Poor results were achieved in industry websites and blogs (p = 0.047) with significant differences regarding definition (p = 0.004) and evaluation (p = 0.021).
    Discussion: Sarcoidosis-related content of internet resources is partially sufficient; however, several important aspects are frequently not addressed, and the quality of information is moderate. Future directions should focus on providing reliable and comprehensive information on sarcoidosis; physicians from different disciplines and patients including self-support groups should collaborate on achieving this.
    Keywords:  content; information; internet; quality; sarcoidosis
    DOI:  https://doi.org/10.3389/fmed.2023.1217146
  6. J Cancer Educ. 2023 Jul 12.
    Assessment of Lung Cancer YouTube Videos for Patient Education.
    Brandon S Chai, Paris-Ann Ingledew.
      The internet is essential for obtaining information about lung cancer, which is the leading contributor to global cancer deaths. YouTube is a video-streaming platform that is popular among health consumers; however, the reliability of videos is variable, and few studies have evaluated their role in lung cancer education. This study uses a systematic approach to assess the characteristics, reliability and use of best practices of lung cancer YouTube videos for patient education. Using the search term "lung cancer," the first 50 YouTube videos were identified after applying exclusion criteria and removing duplicates. Two reviewers used a video assessment tool to evaluate 10 videos with minimal discrepancies. The remaining 40 videos were evaluated by one reviewer following a design based research approach. Under half the videos were published within 3 years. Mean video length was 6 min and 12 s. Video publishers were commonly from the USA (70%); were affiliated with a health care facility/ organization (30%), non-profit (26%) or commercial organization (30%); had a physician presenter (46%); were targeted towards patients (68%); and had subtitles (96%). Seventy four percent of videos supported optimal learning by including effective audio and visual channels. Lung cancer epidemiology, risk factors, and definitions (nature of the disease and classification) were among the most common topics covered. Prognostic and diagnostic information was covered less than expected. The reliability of the videos (measured by Modified DISCERN score) varied by presenter type; however, these results should be interpreted cautiously due to the absence of gold standard tools. This study encourages those producing health education videos to continue following best practices for video learning and provides strategies for healthcare providers and patients to support patient education.
    Keywords:  Lung cancer; Medical education; Patient education; YouTube
    DOI:  https://doi.org/10.1007/s13187-023-02332-6
  7. PLoS One. 2023 ;18(7): e0287603
    YouTube as a source of information on ectopic pregnancy: A qualitative and quantitative analysis.
    Camille Bulle, Marine Lallemant, Clara Rigori, Rajeev Ramanah.
       OBJECTIVE: The aim of this study was to assess the quality and reliability of YouTube videos on ectopic pregnancies for the public.
    METHOD: We searched for the key terms "ectopic pregnancy", "ectopic birth" and "extra uterine pregnancy" on YouTube. Each video that met the inclusion criteria was analyzed by two independent raters. Quantitative and qualitative metrics were recorded, and the videos were scored using the DISCERN instrument.
    RESULTS: A total of 37 videos met the inclusion criteria. The mean overall DISCERN score was 44.5 ± 15.6. Videos had significantly a higher DISCERN score if they contained explanations on anatomy (pvalue <0.01), physiopathology (p-value <0.01), diagnosis (p-value = <0.01), treatments (p-value <0.01), symptoms (p-value <0.01), clear information (p-value <0.01), animations (p-value <0.01) and if it was a physician speaking (p-value <0.01).
    CONCLUSION: YouTube videos on ectopic pregnancy have been assessed to be only fairly reliable. We identified the five best ones using the validated DISCERN instrument. While ectopic pregnancy is not uncommon, YouTube videos should be improved to provide more accurate information for the public.
    DOI:  https://doi.org/10.1371/journal.pone.0287603
  8. J Pak Med Assoc. 2023 Jun;73(6): 1197-1202
    English-language videos on YouTube as a source of information Human Papilloma Virus vaccination.
    Aylin Onder Dirican, Nazli Topfedaisi Ozkan, Gizem Bektas.
       OBJECTIVE: To assess the quality of information presented in YouTube videos about human papillomavirus vaccination.
    METHODS: The descriptive study was conducted at Konya Meram Education and Research Hospital, On October 15, 2019 when the YouTube website was search using the terms 'human papillomavirus', 'HPV vaccine' and 'Gardasil'. The vide-os were recorded to a playlist by two individual gynaecologists to prevent any change in the listed videos. The videos were categorised into 3 groups; useful in-formation group A, misleading information group B and insufficient information group C. The quality of the videos was scored using global quality scale from 1 = poor quality to 5 = excellent quality. DISCERN scale was used for reliability. A 10-point scale was used to evaluate comprehensiveness of the videos. Data was analysed using SPSS 20.
    RESULTS: Of the 200 videos assessed, 179(89.5%) were analysed. There were 17(9.5%) videos in group A, 38(21.2%) in group B and 124(69.3%) in group C. Mean global quality scale score was 3.94±1.39 group A, 1.84±0.59 group B and 3.13±0.94 group C (p<0.001). Mean reliability values were 4.18±1.13group A, 1.66±0.66 group B and 3.03±0.87 group C (p<0.001). Comprehensiveness scores were 6.94±2.49 group A, 1.53±0.95 group B and 4.87±1.72 group C (p<0.001).
    CONCLUSIONS: Professional organisations, university channels and doctors should provide accurate, unbiased and evidence-based information on YouTube for community awareness.
    Keywords:   HPV vaccine, Health information on YouTube, e-health, Health communication.
    DOI:  https://doi.org/10.47391/JPMA.6169
  9. Child Obes. 2023 Jul 13.
    Assessing Patterns in Childhood Obesity Patient Education: A Quality of Online Health Information and Google Trends Analysis.
    Pierce A Brody, Mehul Mehra, Madison Horinek, Salome M Herzstein, Jacqueline Chan.
      Background: Childhood obesity (CO) is rapidly increasing in prevalence and developing into a health crisis of developed nations. The condition is associated with increased risk of developing various comorbidities later in life. Current treatment algorithms primarily target family education. Thus, this study aims to understand the quality of information online regarding CO and common comorbidities, determine the readability of online information, and report patterns in public interest over time using Google Trends. Methods: Four validated quality of information tools and 6 readability tools were implemented across 36 websites derived from 4 Google searches. Pearson's correlation coefficient was used to determine the associations between Google Trends' relative search volumes (RSVs) and biennial BMI-based cumulative proportion of CO. Results: Results showed variable information quality among the websites as scores ranged from "fair" to "very poor." Using six readability formulas, no website scored at or below the sixth grade reading level recommended by the American Medical Association. Google Trends' RSVs for the term "Childhood Obesity" were repeatedly increased in the months that fall in the US academic school year (October-November and February-May), and decreased within months in the US vacation periods (December-January and June-September). Search volumes were also negatively correlated with CO and pediatric type 2 diabetes prevalence. Conclusions: In summary, while Google Trends analysis showed that schools may play a role in increasing interest and awareness online, quality of information and readability analysis displayed that the information and its accessibility are far too variable to be reliable.
    Keywords:  Google Trends; childhood obesity; quality of health information; readability
    DOI:  https://doi.org/10.1089/chi.2023.0015
  10. J Racial Ethn Health Disparities. 2023 Jul 14.
    Exploring Health Information Seeking Among Participants from a Black Ethnic Group in the UK: a Qualitative Study.
    Antony Ndungu, Laura Nellums, Louise Bramley.
      Empirical evidence has shown that individuals from minority ethnic communities have been at an increased risk of COVID-19 infections and adverse clinical outcomes including hospitalization, intensive care unit admission, and mortality. The COVID-19 vaccine has been heralded as key in ending the global pandemic. However, evidence suggests that although minority ethnic communities have been disproportionately affected by COVID-19, vaccine delivery to these communities has been poor. A barrier to the vaccine uptake has been health information. Health information is an important variable in the health decision-making process. Lack of or wrong health information has serious implications. Health information leads to better understanding of personal health and appropriate utilization of health services and consequently improves an individual's health outcomes. This study sought to explore the health information seeking practices among participants from a Black ethnic minority community in the UK. This study interviewed six Black Africans from the UK. The study explored and highlighted the thoughts, perceptions, and experiences of the participants while health information seeking. This study found challenges in health information access, assumptions about health information and feelings of being dismissed, and an information void. Participants acknowledge that there is a lot that could be done to improve their health information experiences. Targeted health information and measures such as cultural sensitivity and competency could be important in improving health information seeking, not just for Black Africans but all ethnic minorities in the UK.
    Keywords:  Ethnic minorities; Health information
    DOI:  https://doi.org/10.1007/s40615-023-01713-3
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