bims-librar Biomed News
on Biomedical librarianship
Issue of 2023–02–19
thirteen papers selected by
Thomas Krichel, Open Library Society
  1. Introducing the Library of Guidance for Health Scientists (LIGHTS): A Living Database for Methods Guidance.
  2. Exploring ChatGPT for information of cardiopulmonary resuscitation.
  3. ChatGPT, An Artificial Intelligence Chatbot, Is Impacting Medical Literature.
  4. AI chatbots are coming to search engines - can you trust the results?
  5. Prevalence and Age-Related Patterns in Health Information-Seeking Behaviors and Technology Use Among Skin Cancer Survivors: Survey Study.
  6. Accessibility and Cultural Inclusivity of Online Glaucoma-Based Video Content for Patient Education.
  7. Readability of Online Patient Education Materials for Graft-Versus-Host Disease.
  8. Characterization and reliability of internet resources on pulmonary rehabilitation for individuals with chronic lung disease.
  9. Examining understandability, information quality, and presence of misinformation in popular YouTube videos on sleep compared to expert-led videos.
  10. Quality of YouTube Videos Related to Colorectal Cancer Screening.
  11. Assessment of Understandability and Actionability of YouTube Videos on Hemolytic Disease of the Newborn.
  12. Evaluating YouTube Videos on Facelift Surgery for Facial Rejuvenation as a Resource for Patients.
  13. YouTube as a Source of Patient Information for Cubital Tunnel Syndrome: An Analysis of Video Reliability, Quality, and Content.
  1. JAMA Netw Open. 2023 Feb 01. 6(2): e2253198
    Introducing the Library of Guidance for Health Scientists (LIGHTS): A Living Database for Methods Guidance.
    Julian Hirt, Christof Manuel Schönenberger, Hannah Ewald, Daeria O Lawson, Davide Papola, Ramon Rohner, Katja Suter, Shanshan Lin, Federico Germini, Linan Zeng, Ali Shahabinezhad, Saifur Rahman Chowdhury, Ya Gao, Arunima Bhattacharjee, João Pedro Lima, Ana Marusic, Ivan Buljan, Arnav Agarwal, Gordon H Guyatt, Matthias Briel, Stefan Schandelmaier.
       Importance: Improving methodological quality is a priority in the health research community. Finding appropriate methods guidance can be challenging due to heterogeneous terminology, poor indexing in medical databases, and variation in formats. The Library of Guidance for Health Scientists (LIGHTS) is a new searchable database for methods guidance articles.
    Observations: Journal articles that aim to provide guidance for performing (including planning, design, conduct, analysis, and interpretation), reporting, and assessing the quality of health-related research involving humans or human populations (ie, excluding basic and animal research) are eligible for LIGHTS. A team of health researchers, information specialists, and methodologists continuously identifies and manually indexes eligible guidance documents. The search strategy includes focused searches of specific journals, specialized databases, and suggestions from researchers. A current limitation is that a keyword-based search of MEDLINE (and other general databases) and manual screening of records were not feasible because of the large number of hits (n = 915 523). As of September 20, 2022, LIGHTS included 1246 articles (336 reporting guidelines, 80 quality assessment tools, and 830 other methods guidance articles). The LIGHTS website provides a user-oriented search interface including filters for study type, specific methodological topic, research context, guidance type, and development process of the guidance. Automated matching of alternative methodological expressions (eg, enter loss to follow-up and find articles indexed with missing data) enhances search queries.
    Conclusions and Relevance: LIGHTS is a peer-supported initiative that is intended to increase access to and use of methods guidance relevant to health researchers, statisticians, methods consultants, methods developers, ethics boards, peer reviewers, journal editors, and funding bodies.
    DOI:  https://doi.org/10.1001/jamanetworkopen.2022.53198
  2. Resuscitation. 2023 Feb 09. pii: S0300-9572(23)00042-4. [Epub ahead of print] 109729
    Exploring ChatGPT for information of cardiopulmonary resuscitation.
    Chiwon Ahn.
      
    Keywords:  CPR; GPT-3; artificial intelligence; guideline; large language model
    DOI:  https://doi.org/10.1016/j.resuscitation.2023.109729
  3. Arthroscopy. 2023 Feb 01. pii: S0749-8063(23)00033-6. [Epub ahead of print]
    ChatGPT, An Artificial Intelligence Chatbot, Is Impacting Medical Literature.
    James H Lubowitz.
      
    DOI:  https://doi.org/10.1016/j.arthro.2023.01.015
  4. Nature. 2023 Feb 13.
    AI chatbots are coming to search engines - can you trust the results?
    Chris Stokel-Walker.
      
    Keywords:  Human behaviour; Information technology; Technology
    DOI:  https://doi.org/10.1038/d41586-023-00423-4
  5. JMIR Dermatol. 2022 Apr-Jun;5(2):pii: e36256. [Epub ahead of print]5(2):
    Prevalence and Age-Related Patterns in Health Information-Seeking Behaviors and Technology Use Among Skin Cancer Survivors: Survey Study.
    Michael Armando Marchetti, Liliane Sar-Graycar, Stephen W Dusza, Japbani K Nanda, Nicholas Kurtansky, Veronica M Rotemberg, Jennifer L Hay.
       Background: Information is an unmet need among cancer survivors. There is a paucity of population-based data examining the health information-seeking behaviors and attitudes of skin cancer survivors.
    Objective: We aimed to identify the prevalence and patterns of health information-seeking behaviors and attitudes among skin cancer survivors across age groups.
    Methods: We analyzed population-based data from the 2019 Health Information National Trends Survey 5 (Cycle 3).
    Results: The 5438 respondents included 346 (6.4%) skin cancer survivors (mean age 65.8 years); of the 346 skin cancer survivors, the majority were White (96.4% [weighted percentages]), and 171 (47.8%) were men. Most reported having ever looked for health- (86.1%) or cancer-related (76.5%) information; 28.2% stated their last search took a lot of effort, and 21.6% were frustrated. The internet was most often cited as being the first source that was recently used for health or medical information (45.6%). Compared to skin cancer survivors younger than 65 years old, those 65 years of age or older were more likely to see a doctor first for important health information (≥65 years: 68.3%;<65 years: 36.2%; P<.001) and less likely to have health and wellness apps (≥65 years: 26.4%; <65 years: 54.0%, P=.10), to have watched a health-related YouTube video (≥65 years: 13.3%; <65 years: 27.4%; P=.02), and to have used electronic means to look for information (≥65 years: 61.4%;<65 years: 82.3%, P<.001).
    Conclusions: Searches for health information are common among skin cancer survivors, but behaviors and attitudes are associated with age, which highlights the importance of access to doctors and personalized information sources.
    Keywords:  HINTS; analysis; cancer; dermatology; health information; information; internet; melanoma; oncology; skin cancer; survey
    DOI:  https://doi.org/10.2196/36256
  6. J Glaucoma. 2023 Jan 24.
    Accessibility and Cultural Inclusivity of Online Glaucoma-Based Video Content for Patient Education.
    Deena Dahshan, Nicholas Johnson, Rawan El-Hamdani, Kelly W Muir.
       PRCIS: This study is the first to evaluate the ease of access, understandability, and cultural inclusivity of online glaucoma related video content for patient education. Overall, materials were found to be poorly understandable and not culturally representative.
    PURPOSE: To assess the ease of access, readability, actionability, and cultural inclusivity of glaucoma-specific patient education videos found online.
    DESIGN: Cross-sectional study.
    SUBJECTS: 22 glaucoma-based patient education videos were reviewed for this study.
    METHODS: A survey of glaucoma specialists identified commonly recommended patient education websites which were analyzed for video content. Websites were reviewed by two independent reviewers for glaucoma-based patient education videos. Videos with content designated for medical providers, dedicated to research, or affiliated with private practices were excluded. Videos that were not glaucoma-specific or longer than 15 minutes were also excluded. The Patient Education Materials Assessment Tool (PEMAT) was used to score videos for understandability and actionability reviewing content, word choice, organization, layout, and use of visual aids. Videos were also reviewed for cultural inclusivity and accessibility measures including language availability. Agreement analysis with a kappa coefficient (k) over 0.6 was established with the first five videos between two independent reviewers and scoring discrepancies were resolved via a third independent reviewer.
    RESULTS: From 10 recommended websites, 22 videos met inclusion criteria for evaluation. The average PEMAT score was 68.3% (SD = 18.4) for understandability (k=0.63). Most videos (64%) were accessed within 3 clicks from the homepage. Only three videos were available in another language (Spanish). Most actors and images were White individuals (68.9%), followed by Black (22.1%), then Asian (5.7%) and other/ambiguous (3.3%).
    CONCLUSIONS: There is room for improvement regarding language accessibility, understandability and cultural inclusivity of glaucoma-based, publicly-available patient education video content.
    DOI:  https://doi.org/10.1097/IJG.0000000000002174
  7. J Cancer Educ. 2023 Feb 16.
    Readability of Online Patient Education Materials for Graft-Versus-Host Disease.
    Trisha Kaundinya, Salma El-Behaedi, Jennifer N Choi.
      Graft-versus-host disease (GVHD) is a complex systemic diagnosis which is associated with significant symptom distress in patients. Patient education has shown to mitigate uncertainty and distress, but to our knowledge, no studies have evaluated patient education materials on GVHD. We characterized the readability and understandability of patient education materials on GVHD available online. We conducted a Google search of the top 100 non-sponsored search results, selecting for full-text patient education that is not peer-reviewed or a news article. We evaluated the text of the eligible search results against the Flesch-Kincaid Reading Ease, Flesch Kincaid Grade Level, Gunning Fog, Automated Readability, Linsear Write Formula, Coleman-Liau Index, Smog Index, and Patient Education Materials Assessment Tool (PEMAT) for understandability. Among 52 included Web results, 17 (32.7%) were provider-authored and 15 (28.8%) were hosted on university Web sites. The total average scores on validated readability tools were Flesch-Kincaid Reading Ease (46.4), Flesch Kincaid Grade Level (11.6), Gunning Fog (13.6), Automated Readability (12.3), Linsear Write Formula (12.6), Coleman-Liau Index (12.3), Smog Index (10.0), and PEMAT Understandability (65.5). Provider-authored links scored poorer than non-provider-authored links on all metrics, with significant differences for the Gunning Fog index (p < 0.05). University-hosted links scored better than non-university-hosted links on all metrics. Evaluation of online patient education materials for GVHD demonstrates the need for more readable and understandable resources to mitigate the distress and uncertainty that patients may feel upon being diagnosed with GVHD.
    Keywords:  Graft-versus-host disease; Patient education; Readability
    DOI:  https://doi.org/10.1007/s13187-023-02271-2
  8. Chron Respir Dis. 2023 Jan-Dec;20:20 14799731231158119
    Characterization and reliability of internet resources on pulmonary rehabilitation for individuals with chronic lung disease.
    Tania Da Silva, Ashira Lokhandwala, Noor Al Kaabi, Julie Semenchuk, Gillian C Goobie, Encarna Camacho, W Darlene Reid, Jolene H Fisher, Christopher J Ryerson, Dmitry Rozenberg.
       BACKGROUND: Individuals with lung disease commonly use the internet as a source of health information on pulmonary rehabilitation (PR). The objective of this study was to characterize internet resources on PR, and to assess the content, readability, and quality of patient-directed PR resources.
    METHODS: The first 200 websites for the search term 'pulmonary rehabilitation resources and exercise' were analyzed on Google, Yahoo, and Bing. Website content was assessed based on 30 key components of PR from the 2013 and 2021 international consensus statements. Website quality was determined using DISCERN, JAMA benchmarks, and Global Quality Scale (GQS).
    RESULTS: 66 unique PR websites were identified with the two most common categories being scientific resources (39%) and foundation/advocacy organizations (33%). The average reading level of websites was 11 ± 3. PR content varied significantly across websites (mean range 13.4-21.5). Median DISCERN total score and GQS score were 4 (IQR 3-4) and 3.5 (IQR 2-4), respectively, representing moderate-good quality. Foundation/advocacy websites had higher DISCERN and GQS scores compared to other websites.
    CONCLUSION: Foundation/advocacy websites had the highest quality and reliability metrics; however, the higher-than-recommended reading levels may compromise patient comprehension and utilization. This study provides critical insight on the current state of online PR health-related information.
    Keywords:  chronic lung disease; exercise training; health education; internet resources; pulmonary rehabilitation
    DOI:  https://doi.org/10.1177/14799731231158119
  9. J Clin Sleep Med. 2023 Feb 16.
    Examining understandability, information quality, and presence of misinformation in popular YouTube videos on sleep compared to expert-led videos.
    Rebecca Robbins, Lawrence J Epstein, Jay Iyer, Matthew D Weaver, Sogol Javaheri, Olabimpe Fashanu, Stacy Loeb, Kristen Monten, Colin Le, Suzanne M Bertisch, Jan Van Den Bulck, Stuart F Quan.
      The Internet is a common source of sleep information, but may be subject to commercial bias and misinformation. We compared the understandability, information quality, and presence of misinformation of popular YouTube videos on sleep to videos with credible experts. We identified the most popular YouTube videos on sleep/insomnia and 5 videos from experts. Videos were assessed for understanding and clarity using validated instruments. Misinformation and commercial bias were identified by consensus of sleep medicine experts. The most popular videos received on average 8.2 (±2.2) million views; the expert-led videos received on average 0.3 (±0.2) million views. Commercial bias was identified in 66.7% of popular videos and 0% of expert videos (p<0.012). The popular videos featured more misinformation than expert videos (p<0.001). The popular videos about sleep/insomnia on YouTube featured misinformation and commercial bias. Future research may explore methods for disseminating evidence-based sleep information.
    Keywords:  YouTube; insomnia; misinformation; sleep
    DOI:  https://doi.org/10.5664/jcsm.10520
  10. Cureus. 2023 Jan;15(1): e33684
    Quality of YouTube Videos Related to Colorectal Cancer Screening.
    Aaron Kahlam, Suraj Pai, Jasneel Kahlam, Sushil Ahlawat.
      Introduction YouTube, an unregulated video-sharing website, is the second most visited website on the internet. As more patients turn to the internet for information about colon cancer screening, it is important to understand what they are consuming online. Our goal was to evaluate YouTube videos about colon cancer screening to better understand the information patients are accessing. Methods We searched YouTube on October 28, 2020, using the following search terms sorted by relevance and view count: colonoscopy, colon cancer screening, virtual colonoscopy, colonoscopy alternatives, and cologuard. Videos longer than 10 minutes, not in English, and duplicates were excluded. Three evaluators graded each video using the DISCERN criteria. Numerical data were averaged into a composite score. Two-sided t-tests and one-way ANOVA tests were used to compare mean ratings between groups. Results Fifty videos were analyzed, with a total of 23,148,938 views, averaging 462,979 views per video. The average overall rating was 3.16/5. There was no difference between search methods, search terms, or presence of a physician. The average ratings for videos with gastroenterologists (3.08), other physicians (3.35), and non-physicians (3.09) were not significantly different. Videos without physicians had more views on average (1,148,677) compared to videos with gastroenterologists (157,846, p=0.013) or other physicians (35,730, p=0.013). Conclusion YouTube videos related to colon cancer screening were of good quality regardless of search terms, search methods, or presence of a physician. However, videos without physicians were viewed more frequently. Physicians should continue making videos that address deficits while increasing viewership.
    Keywords:  adult gastroenterology; bowel cancer screening; colorectal cancer; internet technologies; patient education
    DOI:  https://doi.org/10.7759/cureus.33684
  11. Cureus. 2023 Jan;15(1): e33724
    Assessment of Understandability and Actionability of YouTube Videos on Hemolytic Disease of the Newborn.
    Iruvaram Sudhir Chaitanya Kumar, Anila Mani, Tvn Sriranjitha, I Muni Srikanth, K V Aswathy, Shesh Kumar Bhakta, Prudhvinath Reddy Annapureddy, Sarath Kumar Bojedla, Hari D Yellamilli, Cheranjeevi Jayam.
      Introduction With revolutions in Information Technology, information and misinformation are easier to be found online. YouTube is the largest and most commonly searched video content website in the world. It is assumed that, due to the coronavirus pandemic, most patients try to know about diseases through the internet and reduce the number of hospital exposures unless otherwise. In order to assess the understandability and actionability of such YouTube videos available freely online about the disease, Hemolytic disease of the newborn (HDN), this study was planned. Methods This is a cross-sectional study conducted with the first 160 videos available on May 14, 2021, with the search keyword "HDN" with a relevance filter and a duration of 4 to 20 minutes. The videos were further screened regarding the information content and language. These videos were assessed by three independent assessors using the patient educational materials assessment tool for audio-visual content. Results Out of the first 160 videos selected for screening, 58 videos were excluded due to a lack of content about the searched disease "HDN". Another 63 videos were excluded due to the language of instruction not being in English. Finally, 39 videos were assessed by three assessors. The understandability and actionability responses were checked for reliability and a Cronbach's alpha of 93.6% was found, indicating good data reliability. To reduce subjectivity, average scores of understandability and actionability were taken based on the scores of these three assessors. There were eight and 34 videos with average understandability and actionability scores of <70% respectively. The median average understandability and actionability scores were 84.4% and 50% respectively. There was a statistically significant difference between understandability and actionability scores with considerably lower actionability scores of YouTube videos on the disease, HDN (p<0.001). Conclusion There is a great need to include actionable information by content developers in videos. Most information available has adequate understandable content making it easier for the general public to know about the diseases. YouTube and similar social sites thus possibly are helping in the dissemination of information promoting awareness among the public in general and patients in particular.
    Keywords:  actionability; hemolytic disease of the newborn; patient education material; pemat score; understandability; youtube videos
    DOI:  https://doi.org/10.7759/cureus.33724
  12. Ann Otol Rhinol Laryngol. 2023 Feb 14. 34894231154410
    Evaluating YouTube Videos on Facelift Surgery for Facial Rejuvenation as a Resource for Patients.
    Zachary T Elliot, Joseph S Lu, Daniel Campbell, Kevin B Xiao, Vanessa Christopher, Howard Krein, Ryan Heffelfinger.
       OBJECTIVES: This study evaluated the content and patient educational quality of YouTube videos on facelift surgery for facial rejuvenation. This study investigated the relationship between education quality compared to video content, video metrics, and popularity.
    METHODS: Two hundred videos were identified across 4 search terms: "facelift surgery," "facelift surgery what to expect," "facelift surgery patient education," and "what is facelift surgery." Unrelated videos, operating room recordings, medical professional lectures, non-English, non-audio, and testimonials were excluded from review. Video quality was assessed using the Global Quality Score (GQS) (range: 1-5), modified DISCERN score (range: 5-25), and JAMA Benchmark Criteria (range: 0-4). Secondary outcomes included upload source, video metrics (views, likes, dislikes, duration, days since upload, comments), and Video Power Indexto measure popularity. The first 10 comments on videos were characterized as positive, neutral, or negative.
    RESULTS: One hundred forty-three videos were excluded (43 did not meet criteria, 100 duplicates), and 57 videos were included. Fifty-five videos (96.5%) were uploaded by private medical practices. Overall video quality was poor across all 3 scoring systems: GQS (2.92 ± 1.14), modified DISCERN (13.03 ± 3.64), and JAMA Benchmark Criteria (1.78 ± 0.52). Popularity positively correlated with JAMA Benchmark Criteria (R = .49, P < .05) but did not correlate with other quality criteria.
    CONCLUSIONS: For patients undergoing facelift surgery, there are limited educational videos on YouTube with few videos detailing indications, alternatives, complications, and the postoperative course. YouTube is a growing resource for patient education and opportunities exist for medical institutions to produce higher-quality videos for prospective patients.
    Keywords:  YouTube; facelift; patient education
    DOI:  https://doi.org/10.1177/00034894231154410
  13. Hand (N Y). 2023 Feb 17. 15589447231151428
    YouTube as a Source of Patient Information for Cubital Tunnel Syndrome: An Analysis of Video Reliability, Quality, and Content.
    Christopher J Lama, Davis A Hartnett, Joseph C Donnelly, Daniel S Yang, Lindsay R Kosinski, Julia A Katarincic, Joseph A Gil.
       BACKGROUND: This study seeks to examine the reliability, quality, and content of YouTube videos on cubital tunnel syndrome, on which there is presently a paucity of information.
    METHODS: The top 50 unique YouTube videos by relevance resulting from the Boolean search term "cubital tunnel + cubital tunnel syndrome" were identified, with video properties for analysis including source, upload date, duration, views, and comments. Content was assessed using the Journal of American Medical Association (JAMA) criteria, the Global Quality Score (GQS), and a "Cubital Tunnel-Specific Score" (CTSS).
    RESULTS: The average video saw 72 108 ± 199 362 views, with videos produced by allied (nonphysician) health professionals demonstrating the highest mean views (111 789 ± 294 471 views). Videos demonstrated low mean JAMA scores (2.4/4 ± 0.7), GQS (2.8/5 ± 1.3), and CTSS (7.5/21 ± 4.3), with academic and nonacademic physician videos demonstrating significantly greater mean GQS and CTSS scores when compared with videos by allied health professionals. Positive independent predictors for GQS included academic sources (β = 1.871), nonacademic physician sources (β = 1.651), and video duration (β = 0.102), which were likewise positive predictors for CTSS (β = 4.553, 4.639, 0.374). Content relating to surgical techniques or approaches for cubital tunnel decompression had the greatest CTSS scores (11.2 [4.2]).
    CONCLUSIONS: YouTube is a source of highly accessible information on cubital tunnel syndrome, although the average video presents generally poor and inadequate information. Directing patients toward higher quality video resources can be a meaningful component of patient education.
    Keywords:  anatomy; basic science; cubital tunnel syndrome; diagnosis; hand; nerve; nerve compression; nerve injury
    DOI:  https://doi.org/10.1177/15589447231151428
This page is being maintained by Thomas Krichel. It was last updated on 2024‒11‒22 at 4:18.