bims-librar Biomed News
on Biomedical librarianship
Issue of 2023–02–05
sixteen papers selected by
Thomas Krichel, Open Library Society



  1. Proc Assoc Inf Sci Technol. 2022 ;59(1): 410-414
      During the COVID-19 pandemic of 2020-2021, public library leaders across the United States were forced to make decisions quickly that affected the services and resources they were able to provide. However, the health information they had to make decisions on was imperfect and constantly changing. Interviews with 23 public library managers and directors revealed that more authoritative local data was needed for decision-making and to share with their service populations. Overwhelmed public health system and/or suspicious or skeptical political environments hindered access to locally-specific health information. Several respondents were uncomfortable creating information or making decisions without the guidance of health officials. Additionally, the library managers and directors described working as crisis managers, making decisions that impacted the health of their staff and their communities. In capturing and analyzing these "pandemic decision-making stories," this research informs future library information responses to community needs during times of crisis.
    Keywords:  COVID‐19; Public libraries; community information needs; organizational authority; pandemic
    DOI:  https://doi.org/10.1002/pra2.643
  2. Nurse Educ. 2022 Dec 30.
       BACKGROUND: Health sciences librarians and nursing journal contributors have expressed concern about the impact of using strict parameters when searching the literature.
    PURPOSE: The purpose of this study was to explore the use of strict search criteria (eg, 5-year rule, "nurse as author") by direct care nurses and nursing students.
    METHODS: Fourteen online focus groups were conducted with 54 participants: direct care nurses, health sciences librarians, nursing faculty, and nursing students. Nursing faculty and health sciences librarians were included as participants to add perspective to the origins and effects of the use of stringent search criteria.
    RESULTS: The majority of the nurses viewed the 5-year rule and nurse as author search limits favorably, while noting that a strict date range may hamper successful searching. Librarians viewed these search criteria more unfavorably but recognized the value of topic-appropriate search limits.
    CONCLUSION: Reliance on strict limits can be detrimental to pertinent results; however, appropriate use is essential for relevant results. Pedagogy focused on searching the nursing literature needs to emphasize that limits are tools to be used judiciously.
    DOI:  https://doi.org/10.1097/NNE.0000000000001353
  3. J Med Internet Res. 2023 Jan 31.
       BACKGROUND: Assessment of the quality of medical evidence available online is a critical step in the systematic review of clinical evidence. Existing tools that automate parts of this task validate the quality of individual studies but not of entire bodies of evidence, and focus on a restricted set of quality criteria.
    OBJECTIVE: We propose a quality assessment task that consists of providing an overall quality rating for each outcome, as well as finer-grained justification for different quality criteria according to the GRADE formalisation framework. For this, we construct a new dataset and develop a machine-learning baseline system (EvidenceGRADEr). Our goal is to work towards evaluating the quality of a body of evidence (BoE) for a specific clinical question, rather than assessing the quality of individual primary studies.
    METHODS: We algorithmically extracted quality-related data from all summaries of findings found in the Cochrane Database of Systematic Reviews (CDSR). Each BoE is defined by a set of PICO criteria (population-intervention-comparison-outcome) and assigned a quality grade (high/moderate/low/very low) together with quality criteria (justification) that influenced that decision. Different statistical data, metadata about the review, and parts of review text are extracted as support for grading each BoE. After pruning the resulting dataset with various quality checks, we used it to train several variants of a feature-rich neural model. The predictions were compared against the labels originally assigned by the authors of the systematic reviews.
    RESULTS: Our quality assessment dataset, CDSR-QoE, contains 13,440 instances, or BoEs labelled for quality, originating from 2,252 systematic reviews published on the Internet in the years 2002--2020. Based on 10-fold cross-validation, the best neural binary classifiers for quality criteria detect risk of bias at .78 F1 (P: .68, R: .92) and imprecision at .75 F1 (P: .66, R: .86), while the performance on inconsistency, indirectness and publication bias criteria is lower (F1 in the range of .3-.4). The prediction of the overall quality grade into one of the four levels results in 0.5 F1. When casting the task as a binary problem by merging the GRADE classes (high+moderate vs. low+very low quality evidence), we attain .74 F1. We also find that the results vary depending on what supporting information is provided as input to the models.
    CONCLUSIONS: There are different factors affecting the quality of evidence in the context of systematic reviews of medical evidence. Some of them (risk of bias and imprecision) can be automated with reasonable accuracy. Other quality dimensions such as indirectness, inconsistency, and publication bias prove more challenging for machine learning, largely because they are much rarer. This technology could substantially reduce reviewer workload in the future and expedite quality assessment as part of evidence synthesis.
    CLINICALTRIAL:
    DOI:  https://doi.org/10.2196/35568
  4. JMIR Form Res. 2023 Feb 02. 7 e40466
       BACKGROUND: The internet is increasingly being used as a source of medicine-related information. People want information to facilitate decision-making and self-management, and they tend to prefer the internet for ease of access. However, it is widely acknowledged that the quality of web-based information varies. Poor interpretation of medicine information can lead to anxiety and poor adherence to drug therapy. It is therefore important to understand how people search, select, and trust medicine information.
    OBJECTIVE: The objectives of this study were to establish the extent of internet use for seeking medicine information among Norwegian pharmacy customers, analyze factors associated with internet use, and investigate the level of trust in different sources and websites.
    METHODS: This is a cross-sectional study with a convenience sample of pharmacy customers recruited from all but one community pharmacy in Tromsø, a medium size municipality in Norway (77,000 inhabitants). Persons (aged ≥16 years) able to complete a questionnaire in Norwegian were asked to participate in the study. The recruitment took place in September and October 2020. Due to COVID-19 restrictions, social media was also used to recruit medicine users.
    RESULTS: A total of 303 respondents reported which sources they used to obtain information about their medicines (both prescription and over the counter) and to what extent they trusted these sources. A total of 125 (41.3%) respondents used the internet for medicine information, and the only factor associated with internet use was age. The odds of using the internet declined by 5% per year of age (odds ratio 0.95, 95% CI 0.94-0.97; P=.048). We found no association between internet use and gender, level of education, or regular medicine use. The main purpose reported for using the internet was to obtain information about side effects. Other main sources of medicine information were physicians (n=191, 63%), pharmacy personnel (n=142, 47%), and medication package leaflets (n=124, 42%), while 36 (12%) respondents did not obtain medicine information from any sources. Note that 272 (91%) respondents trusted health professionals as a source of medicine information, whereas 58 (46%) respondents who used the internet trusted the information they found on the internet. The most reliable websites were the national health portals and other official health information sites.
    CONCLUSIONS: Norwegian pharmacy customers use the internet as a source of medicine information, but most still obtain medicine information from health professionals and packet leaflets. People are aware of the potential for misinformation on websites, and they mainly trust high-quality sites run by health authorities.
    Keywords:  credibility; credible; cross-sectional; eHealth; health information; information behavior; information retrieval; information science; information seeking; internet; medication; medicine information; misinformation; patient education; pharmaceutical; pharmacist; pharmacy; survey; trust; web-based information
    DOI:  https://doi.org/10.2196/40466
  5. ANZ J Surg. 2023 Jan 30.
       BACKGROUND: The most common general surgical emergency operations are laparoscopic appendicectomy, laparoscopic cholecystectomy, hernia repair, hemorrhoidectomy and colectomy. Patients commonly perform an internet search for more information prior to undergoing surgery, which can lead to an inappropriate understanding of their procedure. The aim is to assess the quality of information available on three of the most used search engines.
    METHODS: A search was conducted on Google.com, Bing.com and Yahoo.com using the terms related to laparoscopic appendicectomy, laparoscopic cholecystectomy, hemorrhoidectomy, hernia repair and colectomy. First 20 results from each search engine were collected for evaluation. Results were excluded if they were sponsored, duplicates, academic publications, advertisements, forums, audiovisual tools, social media or any non-English information. Included results were assessed for reliability using DISCERN and JAMA benchmark score. Readability was assessed using Flesch Reading Ease (FRE) Score and Simple Measure of Gobbledygook (SMOG).
    RESULTS: Hundred and ninety-seven websites were analysed, 44.7% were published by institutions, 34.5% by health websites and 20.8% by independent surgeons. Mean DISCERN scores for Institutions was 54.6 ± 11.3, independent surgeons 45.9 ± 11.4 and health websites 58.7 ± 10.3. Mean JAMA score for Institutions was 1.0 ± 1.0, independent surgeons 0.1 ± 0.4 and health websites 1.7 ± 1.1. FRE scores for institutions was 51.6 ± 10.3, independent surgeons 40.9 ± 10.2, and health websites 45.7 ± 12.3. SMOG scores were 9.8 ± 1.5 for institutions, 11.4 ± 1.6 for independent surgeons and 10.6 ± 1.7 for health websites.
    CONCLUSION: Health information on common general surgical procedures found on search engines are generally fair to good quality but still above the suggested reading level of the population. Information on surgical procedures should be written at recommended reading level of 13-14 years old.
    Keywords:  appendicectomy; cholecystectomy; colectomy; haemorrhoidectomy; hernia repair; patient information; readability; reliability; search engine; surgical procedures
    DOI:  https://doi.org/10.1111/ans.18289
  6. Patient Educ Couns. 2023 Jan 18. pii: S0738-3991(23)00020-4. [Epub ahead of print]110 107640
       OBJECTIVE: To evaluate the suitability, readability, quality, and usefulness of available online resources about the side effects of immunotherapy.
    METHODS: Resources were identified through online searches (Google, Microsoft Bing, and Yahoo search engines) and evaluated using the Suitability Assessment Materials (SAM), three readability formulae, the DISCERN tool (quality), and a checklist of symptom management strategies and self-management skills (usefulness). Hierarchical cluster analysis identified resources scoring highly for suitability and quality. Factors associated with the clusters were identified using Fischer's exact tests.
    RESULTS: The 51 resources retained for evaluation were of low suitability and quality and exceeded recommended reading levels. Resources were lacking key features to support learning (e.g., illustrations) as well as information about the risks of treatments and the effect of treatments on quality of life. Few resources addressed key self-management skills of problem-solving and taking action. The cluster analysis identified "low" and "moderate" clusters for suitability and quality, and pamphlets and booklets were more likely to be in the moderate cluster as compared to webpages.
    CONCLUSION: There is a lack of high-quality resources to support patients' learning to self-manage side effects of immunotherapy.
    PRACTICE IMPLICATIONS: Results identify the best available online resources for self-managing side effects of immunotherapy and gaps for future work. Based on findings, a template for patient education materials was developed.
    Keywords:  Cancer; Health literacy; Immunotherapy; Patient education; Self-management
    DOI:  https://doi.org/10.1016/j.pec.2023.107640
  7. Am J Orthod Dentofacial Orthop. 2023 Jan 31. pii: S0889-5406(23)00014-8. [Epub ahead of print]
       INTRODUCTION: The objective of this study was to assess the quality of online information on orthodontic treatment provided by orthodontic Web sites in the United States and investigate their claims.
    METHODS: Three hundred and one American orthodontic Web sites were identified after an advanced Google search. Data collection included: the location of the clinic, treatment options offered, quality-of-information assessment using the DISCERN tool, and finally, claims when promoting 1 treatment option against another, as well as the presence of information on relapse risk and retention needs.
    RESULTS: All Web sites belonged to private clinics, with more than half (60.5%) in a single location. Invisalign (Align Technology, Santa Clara, Calif) was the most commonly promoted treatment option (94%), followed by the full fixed appliance (FFA) (92%). The mean DISCERN total score was poor (36.78 out of 80.00), whereas the mean reliability (questions 1-8) and quality-of-information (questions 9-15) scores were 17.06 out of 40.00 and 16.85 out of 35.00, respectively. Almost one-third (28%) of the Web sites compared aligners to FFA, whereas 25% claimed that aligners are less painful than FFA, faster than FFA (14%), or give better results than FFA (1%). Almost half of the Web sites (47%) failed to display information on relapse risk and retention needs after orthodontic treatment (41%). The Web sites that displayed such info had higher DISCERN total scores (P <0.001).
    CONCLUSIONS: Invisalign seems to be the treatment modality most commonly mentioned online. According to DISCERN, U.S. orthodontic Web sites display poor or fair quality information. On many Web sites, aligner treatment was compared with FFA, with some stating that aligners cause less pain than FFA or are more efficient/faster than FFA. Moreover, almost half of the American orthodontic Web sites failed to display information on the relapse risk or retention need. Display of such information can be an indicator of better-quality Web sites. There is ample room for improvement in the online information American orthodontists provide to potential patients.
    DOI:  https://doi.org/10.1016/j.ajodo.2022.09.012
  8. Otol Neurotol. 2022 Dec 30.
       OBJECTIVE: According to the American Medical Association, Internet web site health information should be written at or below a 6th grade reading level. The purpose of this study was to evaluate the readability and quality of cochlear implant web site health information.
    STUDY DESIGN: Cross-sectional web site analysis.
    SETTING: Four Internet search engines involving the top 200 web sites (English and Spanish).
    INTERVENTION/METHODS: "Cochlear implant" was queried in four Internet search engines, and the top 200 English and Spanish web sites were aggregated. After removing duplicates, the web sites were evaluated for readability by using the following validated online readability calculators: Flesch Reading Ease score for English web sites and the Fernandez-Huerta Formula for Spanish web sites. Information quality was assessed using the validated DISCERN quality criteria and the presence of Health on the Net Code of Conduct (HONcode) certification.
    RESULTS: A total of 80 non-industry-sponsored (43 English and 37 Spanish) and 11 industry-sponsored (4 English and 7 Spanish) cochlear implant health information web sites were included in the study. English web sites were written at a higher reading level (mean = 50.88, SD = 11.98) compared with Spanish web sites (mean = 59.79, SD = 6.04) (p < 0.01). For both English and Spanish web sites, these scores correlate to the reading level of the average 10th to 12th grade student. Only 12% of Spanish web sites and 27% of English web sites were HONcode certified. The average DISCERN quality score was 41.67 for English web sites and 43.46 for Spanish, indicating significant concerns for quality. There was no association found between readability and quality of the web sites analyzed.
    CONCLUSIONS: Patient-directed English and Spanish web sites regarding cochlear implantation were written at reading levels that significantly exceed those recommended by the AMA. Furthermore, these web sites have significant quality shortcomings. Patients would benefit from more rigorous editing to improve readability and quality of content.
    DOI:  https://doi.org/10.1097/MAO.0000000000003791
  9. Laryngoscope. 2023 Feb 03.
       OBJECTIVE: The aim of this study was to evaluate the quality and the educational content of YouTube videos showing parotidectomy.
    METHODS: We searched for videos displaying parotidectomy on YouTube. To rate parotidectomy videos, we introduced the "Instructional Videos in Otorhinolaryngology by YO-IFOS (IVORY)-grading-system (GS)" derived from the IVORY Guidelines, which pose established consensus recommendations for the production of educational surgical videos in otolaryngology. The videos were rated using the IVORY-GS, and the total score was tested for statistical association with views, likes, likes/dislikes-ratio, age, and length of the videos for validation of the IVORY-GS.
    RESULTS: Overall, 50 parotidectomy videos were identified. Sixty-eight (68%) of the videos showed a superficial parotidectomy. The mean IVORY-GS total score was 24.9 (out of a maximum of 44 points). Video education quality was rated as moderate in 22% and high in 4%. There was a statistically significant correlation between the total score and the number of views (p = 0.03), the total score and the number of likes (p < 0.01), and the total score and the likes/dislikes ratio (p < 0.01). A higher total score was a significant predictor of more likes (p = 0.01) and a higher likes/dislikes ratio (p < 0.01).
    CONCLUSION: Our modification of the IVORY Guidelines is otolaryngology-specific, suitable, and recommended to evaluate parotidectomy videos. To date, most videos are of poor educational quality. Future efforts in otolaryngology surgical video education could focus on the establishment of an online video platform.
    LEVEL OF EVIDENCE: N/A Laryngoscope, 2023.
    Keywords:  Educational Videos; IVORY Guidelines; IVORY-Grading-System; Parotidectomy; YouTube
    DOI:  https://doi.org/10.1002/lary.30593
  10. medRxiv. 2023 Jan 09. pii: 2023.01.06.23284266. [Epub ahead of print]
       INTRODUCTION: E-cigarettes are frequently promoted on social media and portrayed in ways that are attractive to youth. While COVID-19 pandemic significantly affected people's lives, less known is how the pandemic influenced e-cigarette-related marketing and information on social media. This study identifies how e-cigarettes are portrayed during the COVID-19 pandemic on YouTube, one of the most popular social media platforms.
    METHODS: We searched for combinations of search terms related to e-cigarettes (i.e., "electronic cigarette", "e-cigarette", "e-cig", "vape" and "vaping") and COVID-19 (i.e., "corona", "COVID", "lockdown" and "pandemic"). To be included in the analysis, the video must be: uploaded after February 1, 2020, in English, related to e-cigarettes and COVID-19 and less than 30 minutes in length. We assessed video themes related to e-cigarettes and COVID-19, uploader characteristics, and featured e-cigarette products.
    RESULTS: We examined N=307 videos and found that N=220 (73.6%) were related to the health effects of e-cigarette use on COVID-19, followed by videos of how COVID-19 affects e-cigarette access/sales (N=40, 12.9%), and face mask-related videos (N=16, 5.1%) which included content regarding masks and e-cigarette use. Instructional videos on how to modify e-cigarettes to use with masks had the highest number of likes (Median=23; IQR=32) and comments (Median=10; IQR=7).
    CONCLUSIONS: This study identified various e-cigarette contents on YouTube during the COVID-19 pandemic. Our findings support the need for continuous surveillance on novel vaping-related content in reaction to policies and events such as the global pandemic on social media is needed.
    DOI:  https://doi.org/10.1101/2023.01.06.23284266
  11. Glob Health Epidemiol Genom. 2023 ;2023 1406035
       Introduction: Whilst the coronavirus disease 2019 (COVID-19) vaccination rollout is well underway, there is a concern in Africa where less than 2% of global vaccinations have occurred. In the absence of herd immunity, health promotion remains essential. YouTube has been widely utilised as a source of medical information in previous outbreaks and pandemics. There are limited data on COVID-19 information on YouTube videos, especially in languages widely spoken in Africa. This study investigated the quality and reliability of such videos.
    Methods: Medical information related to COVID-19 was analysed in 11 languages (English, isiZulu, isiXhosa, Afrikaans, Nigerian Pidgin, Hausa, Twi, Arabic, Amharic, French, and Swahili). Cohen's Kappa was used to measure inter-rater reliability. A total of 562 videos were analysed. Viewer interaction metrics and video characteristics, source, and content type were collected. Quality was evaluated using the Medical Information Content Index (MICI) scale and reliability was evaluated by the modified DISCERN tool.
    Results: Kappa coefficient of agreement for all languages was p < 0.01. Informative videos (471/562, 83.8%) accounted for the majority, whilst misleading videos (12/562, 2.13%) were minimal. Independent users (246/562, 43.8%) were the predominant source type. Transmission of information (477/562 videos, 84.9%) was most prevalent, whilst content covering screening or testing was reported in less than a third of all videos. The mean total MICI score was 5.75/5 (SD 4.25) and the mean total DISCERN score was 3.01/5 (SD 1.11).
    Conclusion: YouTube is an invaluable, easily accessible resource for information dissemination during health emergencies. Misleading videos are often a concern; however, our study found a negligible proportion. Whilst most videos were fairly reliable, the quality of videos was poor, especially noting a dearth of information covering screening or testing. Governments, academic institutions, and healthcare workers must harness the capability of digital platforms, such as YouTube to contain the spread of misinformation.
    DOI:  https://doi.org/10.1155/2023/1406035
  12. Foot Ankle Surg. 2023 Jan 13. pii: S1268-7731(23)00009-7. [Epub ahead of print]
       BACKGROUND: Medical professionals and patients commonly use the YouTubeTM platform in their research on health information. The quality of videos about talus osteochondral defect (OCD) and arthroscopic surgery has not been evaluated previously. The aim of this study was to interpret the quality and sufficiency of YouTubeTM videos about talus OCD and arthroscopic surgery.
    METHODS: The present study is a quality control study of videos on OCD and their arthroscopic treatment. The videos were interpreted in terms of Journal of the American Medical Association (JAMA), DISCERN (Quality Criteria for Consumer Health Information), The Global Quality Score (GQS) and Talus OCD - Specific Score (TOCDSS) by two blinded observers to assess the accuracy of these methods.
    RESULTS: Inter-observer agreement was "very high" for JAMA, DISCERN, and TOCDSS, while "high" for GQS. There was a statistical relationship and a positive correlation between the scoring systems.
    CONCLUSION: The content and quality of YouTubeTM videos about talus OCD and arthroscopic treatment are insufficient.
    Keywords:  Ankle; Arthroscopy; Sports surgery; Talus
    DOI:  https://doi.org/10.1016/j.fas.2023.01.008
  13. J Arthroplasty. 2023 Jan 27. pii: S0883-5403(23)00052-9. [Epub ahead of print]
       BACKGROUND: As the demand for total joint arthroplasty (TJA) continues to grow, patients increasingly turn to internet sources for accessible orthopaedic health information. We sought to evaluate the readability of online hip and knee arthroplasty patient education materials (PEMs).
    METHODS: Our systematic review followed the PRISMA-P guidelines (PROSPERO registration of the study protocol: CRD42022358872, September 19th, 2022). PubMed, EBSCOhost, Medline, and Google Scholar electronic databases were utilized to identify all studies evaluating online PEMs related to TJA between January 1st, 2000, and August 1st, 2022. The quality of studies was assessed with the Joanna Briggs Institute (JBI) scale.
    RESULTS: Our initial search yielded 360 publications, which were then screened for appropriate studies aligned with our review's purpose. A total of eleven cross-sectional studies were included. The total sample size across the studies consisted of 662 PEMs. Five studies evaluated professional or academic orthopaedic websites, six evaluated PEMs through web engines, and three evaluated apps or commercial websites. Most included studies found PEMs to be well above the recommended 6th-grade reading level.
    CONCLUSION: Arthroplasty PEMs produced by orthopaedic websites, web searches, and apps have readability scores well above the recommended levels. Given the importance of health literacy on patient outcomes and satisfaction, work needs to be done to improve the readability of these materials.
    Keywords:  Health Literacy; Patient Education; Readability; Shared Decision Making; Total Joint Arthroplasty
    DOI:  https://doi.org/10.1016/j.arth.2023.01.032
  14. Health Info Libr J. 2023 Feb 01.
      This Regular Feature is based on a PhD study assessing the level of health literacy among university students in Pakistan. A cross-sectional survey was carried out using the validated European Health Literacy Survey (HLS-EU-Q) and non-parametric tests used to analyse data with the aim of determining the influence of personal determinants on health literacy skills. The findings of the study concluded that the population had a low health literacy level with limited skills in accessing, understanding, appraising and applying information for health care. Gender, age, and native languages, all had a statistically significant influence on health literacy skills. Practical implications are presented for the role of university libraries in supporting the development of health literacy in their undergraduate student populations are presented, including the need for the provision of health information in native languages.
    Keywords:  Asia, south; access to information; health literacy; higher education; students
    DOI:  https://doi.org/10.1111/hir.12475