bims-librar 2022-10-09 papers

bims-librar

Biomed News

on Biomedical librarianship

Issue of 2022–10–09
eightteen papers selected by
Thomas Krichel, Open Library Society

Keeping Up With the Literature: New Solutions for an Old Problem.
Search engine optimization for scientific publications: How one can find your needle in the haystack.
Building a 'Virtual Library': continuing a global collaboration to strengthen research capacity within Nepal and other low- and middle-income countries.
The art of ignoring others' work among academics: A guessing game model of scholarly information search.
Clustering-based fusion for medical information retrieval.
Data Exploration and Classification of News Article Reliability: Deep Learning Study.
Design of Cross-Platform Information Retrieval System of Library Based on Digital Twins.
Internet health information seeking by primary care patients.
Interactivity, Quality, and Content of Websites Promoting Health Behaviors During Infancy: 6-Year Update of the Systematic Assessment.
Evaluation of the Nystagmus Information Pack.
Assessment of Online Patient Education Material About Dysphagia.
Video clips of the Mediterranean Diet on YouTube TM: A social Media Content Analysis.
Exercise interventions in migraine patients: a YouTube content analysis study based on grades of recommendation.
YouTube as a source of information on endoscopic retrograde cholangiopancreatography.
Evaluation of YouTube Videos about Isotretinoin as Treatment of Acne Vulgaris.
YouTube as a source of information and education on endometriosis.
A content analysis of the reliability and quality of Youtube videos as a source of information on health-related post-COVID pain.
Developing video resources to reduce the burden of caring for persons with brain cancer.

J Pharm Pract. 2022 Oct 02. 8971900221131907

Keeping Up With the Literature: New Solutions for an Old Problem.

Katy S Stephens, Bryan P White.

  Pharmacists utilize medical literature to provide evidence-based care to patients. However, staying up to date with current literature can be challenging, especially with the increasing number of publications produced in a growing number of journals. While evaluating literature is a standard in pharmacy education and training, the specific skill of keeping up with the literature is often not included. We explore the following 5 strategies to help pharmacists stay up to date with the literature: medical journals, social media, podcasts, teaching/precepting, and continuing education/board certification. Pharmacists are encouraged to evaluate which tactics fit best into their practice and incorporate them into their workflow, as well as routinely reflect on the system they create and continue to modify as needed.

Keywords:  literature; pharmacists; social media

DOI:  https://doi.org/10.1177/08971900221131907
United European Gastroenterol J. 2022 Oct 03.

Search engine optimization for scientific publications: How one can find your needle in the haystack.

Willem Pieter Brouwer, Marcus Hollenbach.



Keywords:  SEO; article findability; guidance on SEO; improvement of citations; scientific SEO; scientific publications; search engine optimization

DOI:  https://doi.org/10.1002/ueg2.12311
Glob Health Action. 2022 Dec 31. 15(1): 2112415

Building a 'Virtual Library': continuing a global collaboration to strengthen research capacity within Nepal and other low- and middle-income countries.

Catherine E Elmore, Sandhya Chapagain Acharya, Soniya Dulal, Flannery Enneking-Norton, Pawan Kumar Hamal, Regina Kattel, Martha A Maurer, Damodar Paudel, Bishnu Dutta Paudel, Ramila Shilpakar, Deepak Sundar Shrestha, Usha Thapa, Daniel T Wilson, Virginia LeBaron.

  To fill the gap in health research capacity-building efforts, we created the 'Virtual Library' (VL) - a web-based repository of context-relevant resources for health researchers in low- and middle-income countries (LMICs). This paper describes the participatory process used to systematically develop the VL, and describes how our interprofessional team - representing both an LMIC (Nepal) and a high-income country (HIC) (USA, US) - engaged in shared meaning-making. A team of researchers and clinicians representing a range of subdisciplines from Nepal and the US created a replicable search strategy and standardized Resource Screening Guide (RSG) to systematically assess resources to be included within the VL. Descriptive methods were used to summarize findings from the RSG and lessons learned from the collaborative process. Collectively, 14 team members reviewed 564 potential resources (mean = 40, SD = 22.7). Mean RSG score was 7.02/10 (SD = 2). More than 76% of resources met each of the four quality criteria (relevant; reputable, accessible; understandable). Within the published VL, 298 resources were included, organized by 15 topics and 45 sub-topics. Of these, 223 resources were evaluated by the RSG; 75 were identified by team member expertise. The collaborative process involved regular meetings, iterative document revisions, and peer review. Resource quality was better than expected, perhaps because best practices/principles related to health research are universally relevant, regardless of context. While the RSG was essential to systematize our search and ensure reproducibility, team member expertise was valuable. Pairing team members during peer-review led to bi-directional knowledge sharing and was particularly successful. This work reflects a highly collaborative global partnership and offers a model for future health research capacity-building efforts. We invite engagement with the Virtual Library <https://lmicresearch.org> as one supportive pillar of infrastructure to develop individual and institutional research capacity.

Keywords:  Research capacity building; community based participatory research; digital library; low- and middle-income countries; non-communicable diseases

DOI:  https://doi.org/10.1080/16549716.2022.2112415
Soc Stud Sci. 2022 Oct 01. 3063127221119808

The art of ignoring others' work among academics: A guessing game model of scholarly information search.

Mikhail Sokolov.

  Why do scholars pay attention to some works, but not others? This article explores a theoretical model in which scholars search the literature to make sure that their findings are new to their immediate audience. Within the present model, individuals easily disregard literatures of which their audiences are probably unaware. Institutionally organized audiences thus serve as enforcers of the information search. Their members may tacitly collaborate in maintaining unawareness of intellectual developments outside of their common attention space. This model allows us to explain phenomena on which earlier models fail - for example why academics sometimes ignore apparently relevant sources of information or how groups of scholars turn into bubbles, censoring information about findings made in the outside world.

Keywords:  guessing games; information behaviour; information bubbles; information search; iterated reasoning; sociology of science

DOI:  https://doi.org/10.1177/03063127221119808
J Biomed Inform. 2022 Sep 30. pii: S1532-0464(22)00218-0. [Epub ahead of print]135 104213

Clustering-based fusion for medical information retrieval.

Qiuyu Xu, Yidong Huang, Shengli Wu, Chris Nugent.

  Medicine is a fast-moving field, and the number of medical publications has increased rapidly over recent years. How to find relevant information from this vast pool of research effectively and efficiently has therefore become highly challenges. Previous studies have demonstrated that data fusion can improve search performance if properly utilized. However, in most cases effectiveness is the only concern and efficiency is not considered. A fusion-based system is by nature more complicated and expensive computationally than other retrieval models such as BM25, because many component retrieval systems and an extra layer of fusion are required. The number of component retrieval systems involved is an important indicator of complexity of the fusion-based system. We aim to select the optimal k-subset of component retrieval systems for any given number k, to optimize both fusion performance and reduce the cost of data fusion. A clustering-based approach is proposed. First all the candidates are divided into clusters by the Chameleon clustering algorithm, then representatives from every cluster are chosen by Sequential Forward Selection for fusion. Evaluated with two datasets from TREC, the proposed method performs more effectively than the other baseline methods including the state-of-the-art subset selection method significantly. When either of the two typical fusion methods is used, an improvement rate of over 10% is observed for both measures Mean Average Precision and Recall-level Precision, and an improvement rate of over 5% is observed for both measures Precision at 10 document level and Mean Reciprocal Rank.

Keywords:  Clustering; Data fusion; Efficiency and effectiveness; Medical information retrieval; Subset selection

DOI:  https://doi.org/10.1016/j.jbi.2022.104213
JMIR Infodemiology. 2022 Jul-Dec;2(2):2(2): e38839

Data Exploration and Classification of News Article Reliability: Deep Learning Study.

Kevin Zhan, Yutong Li, Rafay Osmani, Xiaoyu Wang, Bo Cao.

   Background: During the ongoing COVID-19 pandemic, we are being exposed to large amounts of information each day. This "infodemic" is defined by the World Health Organization as the mass spread of misleading or false information during a pandemic. This spread of misinformation during the infodemic ultimately leads to misunderstandings of public health orders or direct opposition against public policies. Although there have been efforts to combat misinformation spread, current manual fact-checking methods are insufficient to combat the infodemic.
Objective: We propose the use of natural language processing (NLP) and machine learning (ML) techniques to build a model that can be used to identify unreliable news articles online.
Methods: First, we preprocessed the ReCOVery data set to obtain 2029 English news articles tagged with COVID-19 keywords from January to May 2020, which are labeled as reliable or unreliable. Data exploration was conducted to determine major differences between reliable and unreliable articles. We built an ensemble deep learning model using the body text, as well as features, such as sentiment, Empath-derived lexical categories, and readability, to classify the reliability.
Results: We found that reliable news articles have a higher proportion of neutral sentiment, while unreliable articles have a higher proportion of negative sentiment. Additionally, our analysis demonstrated that reliable articles are easier to read than unreliable articles, in addition to having different lexical categories and keywords. Our new model was evaluated to achieve the following performance metrics: 0.906 area under the curve (AUC), 0.835 specificity, and 0.945 sensitivity. These values are above the baseline performance of the original ReCOVery model.
Conclusions: This paper identified novel differences between reliable and unreliable news articles; moreover, the model was trained using state-of-the-art deep learning techniques. We aim to be able to use our findings to help researchers and the public audience more easily identify false information and unreliable media in their everyday lives.

Keywords:  COVID-19; deep learning; ensemble model; false information; infodemic; news article reliability

DOI:  https://doi.org/10.2196/38839
Comput Intell Neurosci. 2022 ;2022 7999091

Design of Cross-Platform Information Retrieval System of Library Based on Digital Twins.

Shanshan Shang, Zikai Yu, Kun Jiao, Yingshi Huang, Hua Guo, Guozhong Wang.

In order to improve the library's ability of cross-platform information retrieval and data scheduling and distribution, a library cross-platform information retrieval system based on digital twin technology is designed. Using data warehouse decision support and data source structured query methods, the spectral characteristics of Library cross-platform information resources are extracted. Using the method of Hadoop data parallel loading, the library cross-platform operation data is divided into decision-making data, computing resource pool data, and Hadoop parallel loading data. A library cross-platform information digital twin parallel retrieval and information fusion feature matching model is established, and the retrieval channels are allocated through multiple complex and balanced task scheduling sequences. According to the queue configuration model of Library cross-platform information retrieval, the optimization design of Library cross-platform information retrieval system is realized. The simulation test results show that the designed system has good recall ability of cross-platform information retrieval data, and improves the utilization rate of cross-platform resources and the dynamic scheduling ability of online resources.

DOI: https://doi.org/10.1155/2022/7999091
Rural Remote Health. 2022 Oct;22(4): 6585

Internet health information seeking by primary care patients.

Noemí E Terrero Ledesma, Alberto Nájera, Ricardo Enrique Reolid-Martínez, Francisco Escobar-Rabadán.

   INTRODUCTION: As patients seek health information more frequently on the internet, the impact on their health status and their relationship with doctors could be a matter of concern. The objective of this study is to know how frequently rural primary care patients seek health information on the internet and the factors associated with it.
METHODS: This cross-sectional study surveyed 850 patients aged over 15 years who attended two rural health centers in Cuenca (Spain). Consecutive case sampling was done. The participants were invited to answer a survey with sociodemographic and clinical aspects, and questions about possible internet searches for health information. The statistical analysis included the description of the variables and a bivariate analysis, and was completed with a logistic regression analysis.
RESULTS: Patients' median age was 54 years, interquartile range 39-67 years; 60.9% were female. Of those surveyed, 49.8% (95% confidence interval 46.3-53.2) stated that they used the internet to seek health information. Statistically significant differences were apparent for gender, age, level of education, disease and attendance (p<0.0001). A logistic regression analysis showed an independent relationship with health information seeking on the internet for the variables gender, age, level of education (p<0.0001) and having a chronic disease (p=0.004).
CONCLUSION: Roughly half the primary care patients in the rural area sought health information on the internet. Females, young people, those with a higher level of education and a chronic disease background did so more frequently.

Keywords:   Spain; family practice; internet; interviews; primary care; doctor–patient relationship

DOI:  https://doi.org/10.22605/RRH6585
J Med Internet Res. 2022 Oct 07. 24(10): e38641

Interactivity, Quality, and Content of Websites Promoting Health Behaviors During Infancy: 6-Year Update of the Systematic Assessment.

Danielle Jawad, Heilok Cheng, Li Ming Wen, Chris Rissel, Louise Baur, Seema Mihrshahi, Sarah Taki.

   BACKGROUND: As of 2021, 89% of the Australian population are active internet users. Although the internet is widely used, there are concerns about the quality, accuracy, and credibility of health-related websites. A 2015 systematic assessment of infant feeding websites and apps available in Australia found that 61% of websites were of poor quality and readability, with minimal coverage of infant feeding topics and lack of author credibility.
OBJECTIVE: We aimed to systematically assess the quality, interactivity, readability, and comprehensibility of information targeting infant health behaviors on websites globally and provide an update of the 2015 systematic assessment.
METHODS: Keywords related to infant milk feeding behaviors, solid feeding behaviors, active play, screen time, and sleep were used to identify websites targeting infant health behaviors on the Google search engine on Safari. The websites were assessed by a subset of the authors using predetermined criteria between July 2021 and February 2022 and assessed for information content based on the Australian Infant Feeding Guidelines and National Physical Activity Recommendations. The Suitability Assessment of Materials, Quality Component Scoring System, the Health-Related Website Evaluation Form, and the adherence to the Health on the Net code were used to evaluate the suitability and quality of information. Readability was assessed using 3 web-based readability tools.
RESULTS: Of the 450 websites screened, 66 were included based on the selection criteria and evaluated. Overall, the quality of websites was mostly adequate. Media-related sources, nongovernmental organizations, hospitals, and privately owned websites had the highest median quality scores, whereas university websites received the lowest median score (35%). The information covered within the websites was predominantly poor: 91% (60/66) of the websites received an overall score of ≤74% (mean 53%, SD 18%). The suitability of health information was mostly rated adequate for literacy demand, layout, and learning and motivation of readers. The median readability score for the websites was grade 8.5, which is higher than the government recommendations (<grade 8). Overall, 74% (49/66) of the websites obtained a poor rating for interactivity, measuring active control, 2-way communication, and synchronicity. The most common features found on websites were social media links (61/66, 92%), frequently asked questions (48/66, 73%), and videos (44/66, 67%). Only 14% (9/66) of websites presented culturally responsive information.
CONCLUSIONS: Quality, content, readability, and interactivity of websites promoting health behaviors during infancy ranged between poor and adequate. Since the 2015 systematic assessment, there was a slight improvement in the quality of websites but no difference in the Suitability Assessment of Materials rating and readability of information. There is a need for researchers and health care providers to leverage innovative web-based platforms to provide culturally competent evidence-based information based on government guidelines that are accessible to those with limited English proficiency.

Keywords:  accuracy; babies; baby; bottle feeding; breastfeeding; comprehensibility; consumer; eating; feeding; food; grading; health behavior; health information; health website; infant; infant food; interactivity; nutrition; quality; rating; readability; screen time; sleep; solid food; web-based information; web-based platform; websites

DOI:  https://doi.org/10.2196/38641
Br Ir Orthopt J. 2022 ;18(1): 111-120

Evaluation of the Nystagmus Information Pack.

Anne Bjerre, Helen Griffiths, Martha Foulds, Gemma Arblaster.

   Introduction: In response to the need for easily accessible, high-quality information about nystagmus, the Nystagmus Information Pack was created and made freely available online in 2017. This study was undertaken to evaluate the content and accessibility of the Nystagmus Information Pack.
Methods: Clinicians, eye clinic liaison officers (ECLOs), teachers, patients, families, and any person with an interest in nystagmus were invited to complete an online questionnaire about the content and accessibility of the Nystagmus Information Pack.
Results: One hundred and sixty respondents completed the questionnaire. Respondents who had previously accessed the Nystagmus Information Pack (n = 49, 30.6%) reported the content was appropriate (86%), of sufficient detail (94%), and easy to understand (88%). Minor suggestions were made to improve the content. Respondents who had not accessed the Nystagmus Information Pack (n = 111, 69.4%) reported not being aware of the resource (90%) but had already accessed nystagmus information from a wide range of sources. Poor vision was a barrier to accessing the resource for a small number of respondents (4.5%).
Conclusion: Some improvements to the content and accessibility of the Nystagmus Information Pack should be considered, in particular the format options in which it is available, to enable access in preferred formats and with poor vision. The availability of the Nystagmus Information Pack should be promoted and shared more widely, as the majority of respondents were unaware of the resource despite having an association with or interest in nystagmus.

Keywords:  nystagmus; patient information; questionnaire

DOI:  https://doi.org/10.22599/bioj.269
Dysphagia. 2022 Oct 07.

Assessment of Online Patient Education Material About Dysphagia.

Sarah M Steiner, Bonnie K Slavych, Richard I Zraick.

  To examine quality, readability, understandability, and actionability of English-language online educational materials about dysphagia. A Google search of "dysphagia" and related terms was conducted. Web page quality and accountability were measured using HON and URAC certification seals, the DISCERN instrument, and JAMA benchmark criteria. Understandability and actionability were assessed with the Patient Education Materials Assessment Tool for Printed Material (PEMAT-P). Readability was assessed using the Flesch Reading Ease (FRE), Flesch-Kincaid Grade Level (F-KGL), Gunning Fog (FOG), and the Simple Measure of Gobbledygook (SMOG) scores using dedicated readability software. Fifty web pages were analyzed. Seventeen web pages displayed a HON or URAC seal. DISCERN scores ranged from 17 to 50 (Mdn = 25.00; IQR = 32.25-21.00). Of the JAMA benchmark criteria, 88% of web pages met the disclosure criterion, while only 22% met the authorship, 20% met the attribution, and 16% met the currency criteria. PEMAT-P understandability and actionability scores were 69.38% ± 11.14% and 28.58% ± 22.19%, respectively. Readability scores, on average, exceeded the recommended grade reading levels for health information (FRE 46.34 ± 13.59, F-KGL 10.26 ± 2.29, FOG 12.11 ± 2.08, and SMOG 12.38 ± 1.70). Online materials about dysphagia can be improved by obtaining quality certificates and by including content that is more readable and easier to understand and act upon.

Keywords:  Dysphagia; Internet information; Quality; Readability; Swallowing disorder; Understandability

DOI:  https://doi.org/10.1007/s00455-022-10524-3
Am J Health Promot. 2022 Oct 03. 8901171221132113

Video clips of the Mediterranean Diet on YouTube TM: A social Media Content Analysis.

Nada Benajiba, Maha Alhomidi, Fahdah Alsunaid, Aljawharah Alabdulkarim, Elizabeth Dodge, Enmanuel A Chavarria, Basil H Aboul-Enein.

   PURPOSE: The present study conducted a social media content analysis on videos describing the Mediterranean Diet (MedDiet) posted onYouTube.
SETTING: YouTube TM online video sharing and social media platform.
METHOD: Three independent content experts evaluated 141 YouTube videos on the MedDiet in August 2020 utilizing standard rubric and protocol. Data abstracted include media source(s) of posted videos, and viewer exposure/engagement metrics. Information quality was measured by each content expert independently through use of the DISCERN instrument, a 16-item tool designed to assess reliability, dependability, and trustworthiness of an online source, scores were then aggregated for analysis.
RESULTS: A majority of videos (n = 102, 72.3%) were educational in nature. A third of videos were less clear and less credible on information presented (n = 46, 32.6%). Most videos were posted by an individual (n = 79, 56%), and the majority of videos were rated as medium quality (n = 88, 62.4%). Overall level of user engagement as measured by number of "likes," "dislikes," and user comments varied widely across all sources of media. Exploratory correlation analysis suggests that the number of a video's views, comments, likes, and dislikes are not correlated with quality.
CONCLUSION: Study findings suggest that MedDiet health promotion and education via YouTube has the potential to reach and inform clients; however, existing video content and quality varies significantly. Future intervention research focused on MedDiet should further examine possible predictors of high quality MedDiet content utilizing diverse online video sharing platforms.

Keywords:  internet; mediterranean diet; social media; youtube

DOI:  https://doi.org/10.1177/08901171221132113
PeerJ. 2022 ;10 e14150

Exercise interventions in migraine patients: a YouTube content analysis study based on grades of recommendation.

Álvaro Reina-Varona, Borja Rodríguez de Rivera-Romero, Carlos Donato Cabrera-López, José Fierro-Marrero, Irene Sánchez-Ruiz, Roy La Touche.

   Background: Migraine is the second leading cause of disability worldwide, engendering a high economic cost in developed countries. The adverse events related to pharmacological treatment use have increased interest in non-pharmacological interventions such as exercise. YouTube offers a public source of information for migraine patients regarding exercise interventions for migraine improvement. However, this information has not been validated to ensure the quality and validity of its content.
Objective: This qualitative content analysis study aims to review and evaluate YouTube videos regarding exercise for migraine.
Methods: A systematic review of the current evidence regarding exercise for migraine was performed to establish evidence classification and grades of recommendation with the Scottish Intercollegiate Guidelines Network tool. The data sources were PubMed, PEDro, Cochrane, EBSCO, Google Scholar and Web of Science. The quality of YouTube videos on exercise in migraine was reviewed using the Global Quality Scale and DISCERN scale. Finally, the classification in grades of recommendation was used to evaluate the included videos in terms of the various exercise modalities.
Results: The classification into recommendation grades showed a grade B for aerobic exercise, yoga and changes in lifestyle behavior regarding exercise. A total of 129 videos were included. The healthcare and exercise professional authors produced higher quality videos with a significant statistical difference, although the alternative therapists and patients' videos had a greater impact and a higher viewership based on correlation analysis. The evaluation of the videos based on the recommendation grades could only include 90 videos. 71% of these videos showed a B grade of recommendation, which corresponded to fewer than half of the total included videos.
Conclusions: YouTube needs higher quality videos on exercise for migraine, and healthcare and exercise professional authors need to improve their scoping strategies to acquire more views. The authors of YouTube videos should have better access to the best current evidence regarding exercise interventions in migraine.

Keywords:  Content analysis; Exercise; Migraine disorders; Social network; YouTube

DOI:  https://doi.org/10.7717/peerj.14150
Medicine (Baltimore). 2022 Sep 23. 101(38): e30724

YouTube as a source of information on endoscopic retrograde cholangiopancreatography.

Hoonsub So, Do Won Kim, Jun Seong Hwang, Sung Woo Ko.

Endoscopic retrograde cholangiopancreatography (ERCP) carries a higher risk of adverse events than standard endoscopy. Internet media platforms such as YouTube has emerged as a medical information source. Therefore, study aimed to identify whether YouTube videos provide appropriate information on ERCP to the general population. The YouTube search was performed using the terms "endoscopic retrograde cholangiopancreatography" and "ERCP". The top 50 results of both searches, sorted by relevance and view count, were collected. After filtering according to a set of inclusion and exclusion criteria, a total of 26 videos were eligible for the final analysis. For quality assessment, we created a scoring system called ERCP Data Quality score (E-DQS), based on a colonoscopy education video available on the American Society of Gastrointestinal Endoscopy website. Healthcare professionals uploaded 14 (53.8%) videos, and 10 (38.6%) uploaded by medical websites. Only one video was uploaded by a layperson and one by a TV channel. The overall median E-DQS score for enrolled videos was 6.5 out of 20. The majority of videos did not describe the unique features of ERCP. Only 50% of videos informed viewers that patients would be irradiated and only six videos described at least one adverse event related to ERCP. ERCP videos on YouTube provide inadequate information regarding ERCP. Considering the unique characteristics of this procedure, professionals and academic societies need to be vigilant and proactive in producing and promoting high-quality videos.

DOI: https://doi.org/10.1097/MD.0000000000030724
Ann Dermatol. 2022 Oct;34(5): 340-348

Evaluation of YouTube Videos about Isotretinoin as Treatment of Acne Vulgaris.

Byeong Chang Ko, Sik Haw.

   BACKGROUND: YouTube is one of the most popular video-sharing websites in Korea, but incorrect or biased information is not properly regulated. Acne is common in adolescents and young adults who are familiar with YouTube. Thus, misleading information about isotretinoin in YouTube videos could distort the perception of treatment.
OBJECTIVE: We evaluated the quality of information about isotretinoin in YouTube videos.
METHODS: The keywords searched on YouTube Korea on July 1, 2020 were: isotretinoin, Roaccutane, and Isotinone. The DISCERN tool was used to evaluate the reliability and quality of information, and eight items were used to evaluate scientific accuracy and comprehensiveness: mechanism, indications, dose regimen, contraindications, side effects, blood tests, drug interactions, and pregnancy-related issues.
RESULTS: The number of videos searched was 728. After excluding duplicate or inappropriate videos, 164 videos were analyzed. In the DISCERN tool, the mean overall quality score was 2.24 on a 5-point scale from 1 to 5. The mean score in the 8-issue-criteria, a 3-point scale from 0 to 2, was 0.61. Particularly, indications, blood tests, and drug interactions were poorly addressed in YouTube videos. Medical personnel offer better video quality than non-medical personnel. However, no significant difference in quality existed between the videos of dermatologists and those of other medical personnel. The quality score was not correlated with the popularity of the video.
CONCLUSION: YouTube videos covering isotretinoin showed poor overall quality. Content quality did not have a significant correlation with popularity, so incorrect information could be propagated on YouTube.

Keywords:  Acne vulgaris; Isotretinoin; Social media

DOI:  https://doi.org/10.5021/ad.21.143
Medicine (Baltimore). 2022 Sep 23. 101(38): e30639

YouTube as a source of information and education on endometriosis.

Kyong-No Lee, Hyun-Jin Tak, So-Yoon Park, Sung Taek Park, Sung-Ho Park.

Many patients seek information online, including on social media, regarding various health topics. This study aimed to investigate whether YouTube videos on endometriosis could be a useful source for the general population, surgical trainees, and specialists. A YouTube search was conducted on December 26, 2021, using the search terms "endometriosis," "endometrioma," and "endometriotic cyst." Videos were sorted by view count, and the 100 videos with the highest view counts were chosen. After excluding 48 videos for various reasons, 52 were included in the final analysis. The number of views, duration, likes and dislikes, content type, and source of each video were recorded. We referred to a previous study to evaluate video quality. The 52 videos related to endometriosis had a total of 35,220,141 views (median 233,688, range 48,874-10,452,366). Based on authorship, the videos were categorized into videos uploaded by the medical group and the nonmedical group. The medical group mainly uploaded videos directly related to endometriosis, such as explanations or detailed surgical procedures for endometriosis (26/27, 96%), whereas the nonmedical group mainly uploaded videos about personal experiences and others (24/25, 96%; P <.001). Evaluating the score by each type of content, videos containing personal experiences (median score 6, range 3-10) scored significantly lower than videos containing other content such as explanations of the disease (median score 14, range 7-18; P < .001) and surgical procedures (median score 9, range 5-17; P < .001). Analysis according to the source, the number of views and video power index was significantly higher in the videos uploaded by the nonmedical group (P < .05). YouTube is currently not an appropriate source for patients to gain information on endometriosis. Credible videos with accurate information and clear, high-quality operative clips with proper scientific commentary should be uploaded by medical professionals and medical institutions to critically and rapidly appraise the quality of online video-disseminated information on endometriosis. In addition, advanced filtering using categories by YouTube's staff appears to be necessary.

DOI: https://doi.org/10.1097/MD.0000000000030639
PeerJ. 2022 ;10 e14089

A content analysis of the reliability and quality of Youtube videos as a source of information on health-related post-COVID pain.

Erkan Ozduran, Sibel Büyükçoban.

   Background: The use of the internet as a source of information has increased during the pandemic, and YouTube has become an increasingly important source of information on Coronavirus disease 2019 (COVID-19). In the long COVID picture, which occurs when symptoms related to COVID-19 last longer than 1 month, pain involving the musculoskeletal system affects the quality of life quite negatively. The aim of this study was to investigate the informational value and quality of YouTube videos related to post-COVID pain.
Methods: In this study, 180 videos were listed using the search terms "pain after COVID," "post-COVID pain," and "long COVID and pain"(15 April 2022). Videos were classified according to video parameters and content analysis. Quality, reliability and accuracy of the videos were determined with the Global Quality Score (GQS), the Journal of American Medical Association (JAMA) Benchmark Criteria and the Modified DISCERN Questionnaire, respectively.
Results: One hundred videos that met the inclusion criteria were included in the assessment. Of these videos, 74 were found to be of low quality, 14 of moderate quality, and 12 of high quality; 21% contained insufficient data, 73% contained partially sufficient data, and 6% contained completely sufficient data. Videos uploaded by academic sources (66.7%) and physicians (12.5%) made up the majority of the high-quality group. A statistically significant correlation was found between the source of upload and number of views (p = 0.014), likes (p = 0.030), comments (p = 0.007), and video duration (p = 0.004). Video duration was found to have a poor positive correlation with GQS (r = 0.500), JAMA (r = 0.528), and modified DISCERN (r = 0.470) scores (p < 0.001).
Conclusion: The findings of this study revealed that the majority of YouTube videos on post-COVID pain had low quality and partially sufficient data. High-quality videos were found to have longer durations and were uploaded by academic sources and physicians. The fact that only videos with English content at a certain time can be counted among the limitations. For patients suffering from post-COVID pain whose access to healthcare services was interrupted during the COVID pandemic, YouTube can be considered as an alternative source as well as a means of telerehabilitation. It can be argued that higher quality videos created by healthcare professionals could aid in patient education in the future.

Keywords:  COVID-19; E-learning; Pain; Post-acute COVID-19 syndrome; YouTube

DOI:  https://doi.org/10.7717/peerj.14089
Eur J Oncol Nurs. 2022 Aug 28. pii: S1462-3889(22)00095-3. [Epub ahead of print]60 102187

Developing video resources to reduce the burden of caring for persons with brain cancer.

Elisabeth Coyne, Natalie Winter, Joan Carlini, Julia Robertson, Karin Dieperink.

   PURPOSE: Co-designed and accessible video resources improve an understanding of health information and can reduce unmet needs for caregivers of persons with brain cancer. This study developed and evaluated video resources that provide health information for persons caring for someone with brain cancer.
METHOD: A co-design approach with consumers was used to design, develop, and evaluate video resources.
RESULTS: Twelve videos were designed with persons with brain cancer, caregivers, and health professionals. The video design and topics were informed by current literature. The videos were filmed with consumers to ensure authenticity. The evaluation was completed using data analytics and seven interviews with consumers. Content analysis identified four themes: needing information, authenticity, visual engagement, and key messages. The video length and presentation were important aspects to engage the caregiver, particularly when dealing with stress. The storage on YouTube enabled accessibility and various presentation formats met different learning styles.
CONCLUSION: The development of co-designed health information videos provided resources to improve caregivers understanding of the information provided by the health professionals. The videos were easy to access and able to be viewed at home with family.

Keywords:  Cancer; Codesign; Digital resources; Family; Health information; Nursing; Videos

DOI:  https://doi.org/10.1016/j.ejon.2022.102187