bims-librar 2022-09-18 papers

bims-librar

Biomed News

on Biomedical librarianship

Issue of 2022–09–18
eleven papers selected by
Thomas Krichel, Open Library Society

Quality of web-based information about the coronavirus disease 2019: a rapid systematic review of infodemiology studies published during the first year of the pandemic.
A Critical Appraisal of Web-Based Information on Shoulder Pain Comparing Biomedical Versus Psychosocial Information.
Quality of Late-Life Depression Information on the Internet: Website Evaluation Study.
Evaluating the readability, quality and reliability of online information on Behçet's disease.
Research synthesis as a strategy for advancing biomedical and health informatics knowledge.
Use of Internet as a Source of Oral Health Information in Riyadh Region, Saudi Arabia.
What to watch: Practical considerations and strategies for using YouTube for research.
The usefulness of YouTube videos on lung cancer.
YouTube as a platform to better understand the treatment of lymphoma using ibrutinib: a cross-sectional study.
Evaluating YouTube as a Source of Patient Information for Blefaroplasty.
Information Seeking Behavior on COVID-19 Among Older Adults: A Cross-Sectional Study in Northern Iran.

BMC Public Health. 2022 Sep 13. 22(1): 1734

Quality of web-based information about the coronavirus disease 2019: a rapid systematic review of infodemiology studies published during the first year of the pandemic.

Jenny Stern, Susanne Georgsson, Tommy Carlsson.

   BACKGROUND: Following the outbreak of the coronavirus disease 2019, adequate public information was of outmost importance. The public used the Web extensively to read information about the pandemic, which placed significant responsibility in, for many, an unfamiliar situation as the disease spread across the globe. The aim of this review was to synthesize the quality of web-based information concerning the coronavirus disease 2019 published during the first year of the pandemic.
MATERIALS AND METHODS: A rapid systematic review was undertaken by searching five electronic databases (CINAHL, Communication & Mass Media Complete, PsycINFO, PubMed, Scopus). Empirical infodemiology reports assessing quality of information were included (n = 22). Methodological quality and risk of bias was appraised with tools modified from previous research, while quality assessment scores were synthesized with descriptive statistics. Topics illustrating comprehensiveness were categorized with content analysis.
RESULTS: The included reports assessed text-based content (n = 13) and videos (n = 9). Most were rated good overall methodological quality (n = 17). In total, the reports evaluated 2,654 websites or videos and utilized 46 assessors. The majority of the reports concluded that websites and videos had poor quality (n = 20). Collectively, readability levels exceeded the recommended sixth grade level. There were large variations in ranges of the reported mean or median quality scores, with 13 of 15 total sample scores being classified as poor or moderate quality. Four studies reported that ≥ 28% of websites contained inaccurate statements. There were large variations in prevalence for the six categories illustrating comprehensiveness.
CONCLUSION: The results highlight quality deficits of web-based information about COVID-19 published during the first year of the pandemic, suggesting a high probability that this hindered the general population from being adequately informed when faced with the new and unfamiliar situation. Future research should address the highlighted quality deficits, identify methods that aid citizens in their information retrieval, and identify interventions that aim to improve the quality of information in the online landscape.

Keywords:  COVID-19; Communicable diseases; Communication; Consumer health information; Health education; Internet; SARS-CoV-2

DOI:  https://doi.org/10.1186/s12889-022-14086-9
J Shoulder Elbow Surg. 2022 Sep 12. pii: S1058-2746(22)00668-1. [Epub ahead of print]

A Critical Appraisal of Web-Based Information on Shoulder Pain Comparing Biomedical Versus Psychosocial Information.

Dustin R Barrett, James D Boone, Jacqueline O Butch, Jeanie A Cavender, Gisela Sole, Craig A Wassinger.

   BACKGROUND: Websites have become a primary way for patients to access health-related information which allows patients to not only understand their condition better but also to engage in better decision-making with their healthcare provider. However, this can be a double-edged sword, as information patients access may not be of high quality, easily readable, or could be biased based on website authorship. This study examines the readability and content quality of common websites about shoulder pain, with a specific focus on biomedical versus psychosocial information.
METHODS: The Flesch reading-ease score (FRES) and Flesch-Kincaid grade level (FKGL) instruments were used to assess website readability. Health on the net code of conduct (HONcode) certification and the DISCERN tool were used to evaluate the reliability and quality of information. Lastly, shoulder-specific content quality and focus was gauged using a shoulder-specific website appraisal tool (SWAT) created for this study. A systematic search protocol was used to identify popular shoulder injury websites. The websites were identified using 5 search terms (shoulder pain, shoulder muscle pain, shoulder impingement, shoulder rotator cuff pain, and shoulder pain diagnosis) across 5 English-speaking regions (US, Canada, UK, Australia, and New Zealand) using the Google search engine. The top 10 websites for each term and region combination were included and combined, yielding 41 original websites for appraisal; several (6) websites were omitted as duplicates, behind paywalls, or non-text (video) for a total of 35 websites appraised.
RESULTS: On average, the FRES shoulder pain websites readability was 55.37, which is categorized as "fairly difficult" to read, and a 7th or 8th grade reading level based on the FKGL. For trustworthiness and bias, 57% (20 out of 35) of the websites were HONcode certified. The quality of healthcare information utilizing the DISCERN score averaged 50.92%. Examining shoulder-specific content quality, the average SWAT score was 10.54 out of 14 possible points, with only one website reporting information on psychosocial aspects of shoulder pain.
CONCLUSIONS: This study suggests that shoulder pain websites present information that is at too high of a reading level for public consumption, has a strong bias towards biomedical causes of shoulder pain, and would benefit from implementation of website screening tools to improve evidence-based content.

Keywords:  DISCERN; Flesch reading-ease score; Flesch-Kincaid grade level; HONcode; Health Literacy; Psychosocial; Shoulder pain; web-based information

DOI:  https://doi.org/10.1016/j.jse.2022.07.023
JMIR Form Res. 2022 Sep 12. 6(9): e36177

Quality of Late-Life Depression Information on the Internet: Website Evaluation Study.

Teaghan A M Pryor, Kristin A Reynolds, Paige L Kirby, Matthew T Bernstein.

   BACKGROUND: The internet can increase the accessibility of mental health information and improve the mental health literacy of older adults. The quality of mental health information on the internet can be inaccurate or biased, leading to misinformation.
OBJECTIVE: This study aims to evaluate the quality, usability, and readability of websites providing information concerning depression in later life.
METHODS: Websites were identified through a Google search and evaluated by assessing quality (DISCERN), usability (Patient Education Materials Assessment Tool), and readability (Simple Measure of Gobbledygook).
RESULTS: The overall quality of late-life depression websites (N=19) was adequate, and the usability and readability were poor. No significant relationship was found between the quality and readability of the websites.
CONCLUSIONS: The websites can be improved by enhancing information quality, usability, and readability related to late-life depression. The use of high-quality websites may improve mental health literacy and shared treatment decision-making for older adults.

Keywords:  depression; information quality; internet; late-life; older adults; readability; usability; websites

DOI:  https://doi.org/10.2196/36177
Reumatismo. 2022 Sep 13. 74(2):

Evaluating the readability, quality and reliability of online information on Behçet's disease.

E Özduran, V Hanci.

There are concerns over the reliability and comprehensibility of health-related information on the internet. The goal of our research was to analyze the readability, reliability, and quality of information obtained from websites associated with Behçet's disease (BD). On September 20, 2021, the term BD was used to perform a search on Google, and 100 eligible websites were identified. The Flesch Reading Ease Score (FRES), Flesch-Kincaid Grade Level (FKGL), and Gunning Fog (GFOG) were used to evaluate the readability of the website. The JAMA score was used to assess the websites' reliability, the DISCERN score and the Health on the Net Foundation code of conduct (HONcode) were used to assess quality, and Alexa was used to analyze their popularity. Sections of the text were evaluated, and the results revealed that the mean FRES was 35.49±14.42 (difficult) and the mean GFOG was 14.93±3.13 years (very difficult). According to the JAMA scores, 36% of the websites had a high reliability rating and 20% adhered to the HONcode. The readability was found to significantly differ from the reliability of the websites (p<0.05). Moreover, websites with scientific content were found to have higher readability and reliability (p<0.05). The readability of BD-related information on the Internet was found to be considerably higher than that recommended by the National Health Institute's Grade 6, with moderate reliability and good quality. We believe that online information should have some level of readability and must have reliable content that is appropriate to educate the public, particularly for websites that provide with patient education material.

DOI: https://doi.org/10.4081/reumatismo.2022.1495
J Am Med Inform Assoc. 2022 Sep 12. 29(10): 1659-1660

Research synthesis as a strategy for advancing biomedical and health informatics knowledge.

Suzanne Bakken.

DOI: https://doi.org/10.1093/jamia/ocac145
J Pharm Bioallied Sci. 2022 Jul;14(Suppl 1): S331-S334

Use of Internet as a Source of Oral Health Information in Riyadh Region, Saudi Arabia.

Inderjit Murugendrappa Gowdar, Faisal Omar Arishi, Abdulhaleem Muhammad Ateen, Abdulaziz Abdullah Alzuabi, Ali Ayedh Al-Ahmari, Abdullah Bahjat Khojah.

   Aim: This study aimed to assess the use of Internet as a source of oral health among adult population in Riyadh region, Saudi Arabia.
Methodology: A self-administered questionnaire was distributed among adults aged above 18 years through Google Forms. Questionnaire consisting of demographic characteristics and questions related to use of Internet, reason for use of Internet, whether they use Internet for searching information related to oral health, which is the media they use more preferably to search oral health information, and does they found the information beneficial or not was asked.
Results: Almost 98.2% of the participants uses Internet for one or the other reasons. About 71.3% of the participants use the Internet for searching oral health information. Google is the most common platform for searching oral health information on the Internet. Age and education wise, there was a statistically significant difference in many responses (P < 0.050).
Conclusion: Majority of the study population have access to Internet, also search oral health information on the Internet. There is a need for regulations and guidelines so that oral health information available from the Internet can be used as a media to promote oral health.

Keywords:  Google; Internet; information; oral health

DOI:  https://doi.org/10.4103/jpbs.jpbs_817_21
Digit Health. 2022 Jan-Dec;8:8 20552076221123707

What to watch: Practical considerations and strategies for using YouTube for research.

Wuyou Sui, Anna Sui, Ryan E Rhodes.

  YouTube is the second-most visited webpage in the world and boasts over 2 billion users and 500 h of videos uploaded every hour. Despite this popularity, relatively few articles have discussed the practical use of searching and YouTube as a research tool and source of data. The purpose of our paper is to propose a step-by-step schematic for utilizing the YouTube platform. Our discussions include (a) when/whether to use YouTube for research; (b) selecting an appropriate research design; (c) how to search for YouTube data; (d) what data can be pulled from YouTube; and (e) the contextual limitations for interpreting YouTube data. Further, we provide practical strategies and considerations when searching, collecting, or interpreting YouTube data. These discussions are informed by our own work using the YouTube platform. Effective methods used to search for YouTube data are likely to extend beyond simply searching the platform itself; the search strategy and search results themselves should also be documented. While not exhaustive, we feel these considerations and strategies present themselves as a conceptual foothold for future research using the YouTube platform.

Keywords:  YouTube; big data; methodology; social media; tutorial

DOI:  https://doi.org/10.1177/20552076221123707
J Public Health (Oxf). 2022 Sep 13. pii: fdac092. [Epub ahead of print]

The usefulness of YouTube videos on lung cancer.

Hanieh Meteran, Simon Høj, Torben Sigsgaard, Caroline Skovsgaard Diers, Celine Remvig, Howraman Meteran.

   BACKGROUND: The use of social media as a source of health information is increasing, and the usefulness of the content may vary depending on the specific disease. Thus, this study was designed to assess the content, viewer engagement and usefulness of the most viewed YouTube videos on lung cancer.
METHODS: 167 videos were reviewed, and 143 met the eligibility criteria. Two authors evaluated the videos separately, and data on views, likes, dislikes and comments were extracted, and data on the source of uploader, duration and content quality were recorded.
RESULTS: 89 videos (62%) were classified as useful, 8 (6%) as misleading and 46 (32%) as neither. The misleading videos were significantly more popular in terms of views and likes compared with the useful videos: 845 643 versus 81 700, P = 0.003 and 12 170 versus 415, P < 0.001, respectively.
CONCLUSIONS: This study shows that YouTube videos on lung cancer are popular and that around two-thirds of the videos are useful in terms of patient education. However, the misleading videos are currently attracting higher viewer interaction and might compose a future challenge in terms of the spread of misinformation as the algorithms will prioritize popular videos rather than videos with evidence-based information.

Keywords:  Lung cancer; YouTube; misinformation; patient education; social media

DOI:  https://doi.org/10.1093/pubmed/fdac092
Ann Transl Med. 2022 Aug;10(16): 867

YouTube as a platform to better understand the treatment of lymphoma using ibrutinib: a cross-sectional study.

Lin Yang, Xiuliang Qiu, Qiuling Zhao, Hongqiang Qiu, Yu Cheng, Wenbin Liu, Ruixiang Xie.

   Background: Ibrutinib, one Food and Drug Administration-approved, orally available, small-molecule Bruton tyrosine kinase (BTK) inhibitor, is an effective targeted therapy for patients with chronic lymphocytic leukemia (CLL) and mantle cell lymphoma (MCL). YouTube is increasingly used for health purposes. However, videos for ibrutinib on YouTube have not been previously evaluated. This study assessed the accuracy and quality of YouTube videos on ibrutinib, to better understand the information shown on a dominant media platform.
Methods: The first 150 video results returned by the YouTube search engine in response to the keyword "ibrutinib" were included (up to June 27, 2022). Typically used predefined inclusion and exclusion criteria were applied to screen the videos based on our needs. A 5-point Global Quality Scale (GQS) determined whether the videos would be useful to patients or not, and the quality of content was analyzed by five content-specific items. The quality of the included videos was classified as "low", "moderate", or "excellent" according to GQS and content score. The median and interquartile range were used to describe the values and Kruskal-Wallis test were used in the analysis.
Results: A total of 99 videos with a median of 237 views met the inclusion criteria. The videos were categorized into educational videos (n=6, 6.07%), personal experience and blog (n=3, 3.03%) and interviews videos (n=90, 90.9%). Almost half of the videos were classified as moderate (n=51, 51.51%), followed by excellent (n=25, 25.26%) and low (n=23, 23.23%). Between the groups, no statistically significant differences were observed in the numbers of dislikes, comments, posted days, percentage positivity and viewing rate (P>0.05). There were marked differences in the length, likes, views, viewers' interaction and likeability (P<0.05).
Conclusions: YouTube could be an effective source for different groups of people to obtain helpful information about ibrutinib. The physicians, pharmacists, nurses and healthcare organizations should prepare and upload more comprehensible and reliable videos with evidence-based information.

Keywords:  Internet; YouTube; education; ibrutinib; lymphoma

DOI:  https://doi.org/10.21037/atm-22-3577
Facial Plast Surg. 2022 Sep 13.

Evaluating YouTube as a Source of Patient Information for Blefaroplasty.

Fatih Savran, Emine S Elibol.

This study aims to evaluate the content and quality of popular videos about blepharoplasty treatment in YouTube. Four keywords "blepharoplasty," "upper blepharoplasty," "lower blepharoplasty," and "blepharoplasty information" were searched in YouTube. After the videos were sorted by the number of views, the last 50 videos were based on general characteristics, primary purpose, information content, relevance, audiovisual quality, as well as viewer interaction index DISCERN score (minimum-maximum: 16-75), Journal of the American Medical Association (JAMA) score (minimum-maximum: 0-4), and Global Quality score (minimum-maximum: 0-5), and view rate formulas were calculated for each video. A total of the best 49 videos were evaluated in our study. The total number of views of these videos was 10,938,976. The total duration of these videos was 409minutes. The average duration of the videos was 8.35±8.38 (standard deviation [SD]). There was no significant (p>0.05) correlation between the measurement of DISCERN scores of the two observers. A significant (p<0.05) difference was observed between the JAMA score measurements of the two observers. There was no significant difference (p>0.05) between the GQS score measurements of the two observers. Currently, YouTube is not a viable resource for patients to learn about blepharoplasty. Physicians should be aware of the limitations and provide up-to-date and peer-reviewed content on the web site, and patients should also be warned about obtaining information.

DOI: https://doi.org/10.1055/s-0042-1744537
Gerontol Geriatr Med. 2022 Jan-Dec;8:8 23337214221120746

Information Seeking Behavior on COVID-19 Among Older Adults: A Cross-Sectional Study in Northern Iran.

Samad Karkhah, Saman Maroufizadeh, Elham Hakimi, Mohammad Javad Ghazanfari, Joseph Osuji, Nazila Javadi-Pashaki.

  This study aimed to assess the information-seeking behavior about COVID-19 among older adults in northern Iran. Two hundred-fifty three older adults living in Rasht, northern Iran, were enrolled in a cross-sectional study. Most older adults obtained information about COVID-19 from television, friends, and acquaintances. They relied less on special patient associations and the Ministry of Health telephone system. The use of social networks, the Ministry of Health telephone system, the Ministry of Health text message system, and friends and acquaintances for obtaining information about COVID-19 were significantly higher in people aged 60 to 70 years than in people aged >70 years. The use of newspapers/magazines to get information about COVID-19 was significantly higher in men than women. The use of websites, social networks, physicians, other health care workers, friends and acquaintances, newspapers/magazines, and special patients' associations for obtaining information about COVID-19 was significantly higher in people with tertiary education than in others. Older adults were more satisfied receiving information about COVID-19 from nurses and physicians. Therefore, it is recommended that policymakers and health managers pay special attention to developing health programs and social media programing to educate older adults about COVID-19 and access to the right media for accurate information.

Keywords:  COVID-19; Iran; information literacy; information-seeking behavior; older adults

DOI:  https://doi.org/10.1177/23337214221120746