bims-librar Biomed News
on Biomedical librarianship
Issue of 2022–07–24
twelve papers selected by
Thomas Krichel, Open Library Society
  1. ProBioQuest: a database and semantic analysis engine for literature, clinical trials and patents related to probiotics.
  2. Current definitions of living systematic reviews and living guidelines need to change.
  3. People adaptively use information to improve their internal states and external outcomes.
  4. Does YouTubeTM Offer High-Quality Information About Nasoalveolar Molding?
  5. YouTube as a source of (mis)information on allergic rhinitis.
  6. Content and quality analysis of videos about multiple sclerosis on social media: The case of YouTube.
  7. Exploring the Most Visible Websites on Cutaneous T-cell Lymphoma-Revealing Limited Quality of Patient Health Information on the Internet.
  8. Quality of Online Information for Esophageal Cancer.
  9. Osteoporotic Vertebral Fractures: An Analysis of Readability and Quality of Web-Based information.
  10. Quality and Readability of Information Regarding Total Ankle Arthroplasty Available to Patients on the Internet.
  11. Orthodontic clear aligners and TikTok videos: A content, reliability and quality analysis.
  12. Call for Papers: Semantics-enabled Biomedical Literature Analytics.
  1. Database (Oxford). 2022 Jul 15. pii: baac059. [Epub ahead of print]2022
    ProBioQuest: a database and semantic analysis engine for literature, clinical trials and patents related to probiotics.
    Po Lam Chan, Susana Lauw, Ka Lee Ma, Nelson Kei, Ka Leong Ma, Yiu On Wong, Ho Yan Lam, Yee Yung Ting, Tsz Kwan Yau, Wenyan Nong, Dandan Huang, Yichun Xie, Peter Chi Keung Cheung, Hoi Shan Kwan.
      The use of probiotics to improve health via the modulation of gut microbiota has gained wide attention. The growing volume of investigations of probiotic microorganisms and commercialized probiotic products has created the need for a database to organize the health-promoting functions driven by probiotics reported in academic articles, clinical trials and patents. We constructed ProBioQuest to collect up-to-date literature related to probiotics from PubMed.gov, ClinicalTrials.gov and PatentsView. More than 2.8 million articles have been collected. Automated information technology-assisted procedures enabled us to collect the data continuously, providing the most up-to-date information. Statistical functions and semantic analyses are provided on the website as an advanced search engine, which contributes to the semantic tool of this database for information search and analyses. The semantic analytical output provides categorized search results and functions to enhance further analysis. A keyword bank is included which can display multiple tables of contents. Users can select keywords from different displayed categories to achieve easily filtered searches. Additional information on the searched items can be browsed via the link-out function. ProBioQuest is not only useful to scientists and health professionals but also to dietary supplement manufacturers and the general public. In this paper, the method we used to build this database-web system is described. Applications of ProBioQuest for several literature-based analyses of probiotics are included as examples of the various uses of this search engine. ProBioQuest can be accessed free of charge at http://kwanlab.bio.cuhk.edu.hk/PBQ/. Database URL: http://kwanlab.bio.cuhk.edu.hk/PBQ/.
    DOI:  https://doi.org/10.1093/database/baac059
  2. J Evid Based Med. 2022 06;15(2): 75-76
    Current definitions of living systematic reviews and living guidelines need to change.
    Susan L Norris.
      
    Keywords:  clinical practice guidelines; living guidelines; living systematic reviews; systematic reviews
    DOI:  https://doi.org/10.1111/jebm.12478
  3. Cognition. 2022 Jul 15. pii: S0010-0277(22)00212-8. [Epub ahead of print]228 105224
    People adaptively use information to improve their internal states and external outcomes.
    I Cogliati Dezza, C Maher, T Sharot.
      Information can strongly impact people's affect, their level of uncertainty and their decisions. It is assumed that people seek information with the goal of improving all three. But are they successful at achieving this goal? Answering this question is important for assessing the impact of self-driven information consumption on people's well-being. Here, over five experiments (total N = 727) we show that participants accurately predict the impact of information on their internal states (e.g., affect and cognition) and external outcomes (e.g., material rewards), and use these predictions to guide information-seeking choices. A model incorporating participants' subjective expectations regarding the impact of information on their affective, cognitive, and material outcomes accounted for information-seeking choices better than a model that included only objective proxies of those measures. This model also accounted for individual differences in information-seeking choices. By balancing considerations of the impact of information on affective, cognitive and material outcomes when seeking knowledge, participants became happier, more certain and made better decisions when they sought information relative to when they did not, suggesting that the actual consequences of receiving information aligned with their subjective expectations.
    Keywords:  Affect; Agency; Information-seeking; Uncertainty
    DOI:  https://doi.org/10.1016/j.cognition.2022.105224
  4. Cleft Palate Craniofac J. 2022 Jul 21. 10556656221115025
    Does YouTubeTM Offer High-Quality Information About Nasoalveolar Molding?
    Can Arslan, Elif Ceren Aksahin, Rahime Burcu Nur Yılmaz, Derya Germec Cakan.
       OBJECTIVE: To assess the content and quality of YouTubeTM videos concerning nasoalveolar molding (NAM).
    DESIGN: YouTubeTM was searched for videos containing information relevant to NAM with the 2 keywords "nasoalveolar molding," and "presurgical infant orthopedics." A total of 24 out of 51 videos were found to be applicable to this study and rated for quality using the Global Quality Scale (GQS). To determine whether the contents of the selected 24 videos were useful or not, a content usefulness index consisting of 8 parameters was created. The videos were classified according to the usefulness index as low or high content videos. Spearman rank correlation analysis, Kolmogorov-Smirnov, Shapiro-Wilk, and Mann-Whitney U-tests were used for statistical analysis.
    RESULTS: The mean GQS score of the 24 YouTubeTM videos on NAM was 2.3 ± 0.8, indicating overall poor quality. In terms of information, videos with high content (29.2%) were less in number than low content videos (70.8%). GQS values were found to be significantly higher in the high content group (P < .01). Regarding the source, video, and audio quality values were significantly higher in the expert group compared to the caregiver group (P < .01), whereas the usefulness index did not differ between groups (P > .05). A significant relationship was found between GQS and usefulness index, audio quality, and video quality (P < .001).
    CONCLUSIONS: YouTube™ videos on NAM were generally inadequate in their content information and poor in quality. Expert videos, showing better audiovisual quality and flow compared to non-expert videos, did not offer higher quality information about NAM considering the usefulness index.
    Keywords:  infant orthopedics; orthodontics; parental perception
    DOI:  https://doi.org/10.1177/10556656221115025
  5. Ann Allergy Asthma Immunol. 2022 Jul 14. pii: S1081-1206(22)00584-1. [Epub ahead of print]
    YouTube as a source of (mis)information on allergic rhinitis.
    Celine Lund-Nielsen Remvig, Caroline Skovsgaard Diers, Hanieh Meteran, Simon Francis Thomsen, Torben Sigsgaard, Simon Høj, Howraman Meteran.
       BACKGROUND: Allergic rhinitis (AR) is a very common chronic condition that affects nearly one-quarter of the adult population worldwide. The optimal management of AR includes useful information on the several aspects of the condition. Social media and online platforms are increasingly being used to obtain health related information.
    OBJECTIVE: The study aimed to examine and evaluate the popularity and usefulness of YouTube videos on allergic rhinitis.
    METHODS: Out of 225 screened videos, 86 met the inclusion criteria. A scoring scheme was designed to evaluate and rate the content of the extracted data. Data on views, likes, dislikes, and comments were extracted, and data on source of uploader, duration and content quality were recorded.
    RESULTS: 43% of the videos were classified as useful, 36 % as misleading, and 21 % as neither useful nor misleading. Although professional health care providers uploaded two-thirds of the videos, they accounted for only 24.4% of the total videos. Videos uploaded by TV shows and YouTube channels had by far the most user interaction, accounting for 66.9% of the total likes, 66.8 % of the total dislikes, and 54.0 % of the total comments. This source alone accounted for 23.4% of the total views, but for 48% of the total misleading videos.
    CONCLUSION: The usefulness of YouTube videos on allergic rhinitis is varying and less than half of the videos provided useful information. If the proper conditions are met, selected YouTube videos on allergic rhinitis can be used as a source of information for patient education.
    Keywords:  YouTube; allergy; digital health; patient education; rhinitis
    DOI:  https://doi.org/10.1016/j.anai.2022.06.031
  6. Mult Scler Relat Disord. 2022 Jul 06. pii: S2211-0348(22)00532-6. [Epub ahead of print]65 104024
    Content and quality analysis of videos about multiple sclerosis on social media: The case of YouTube.
    Erman Altunisik, Yasemin Ekmekyapar Firat, Yeliz Kiyak Keceli.
       BACKGROUND: YouTube (YT) has grown into the largest online video platform across the world. Known to have more than two billion users of all ages, YT also serves as an important educational tool and information source for patients and their families. YT videos have the potential to influence patients' understanding of their diagnoses and treatment decision-making.
    METHODS: Videos were identified using the keywords "multiple sclerosis," "multiple sclerosis treatment," "relapsing remitting MS," and "central demyelinating disorder" in the YT search bar. For each search term, the top 30 videos were reviewed. The videos were analyzed by two independent raters using the DISCERN and Global Quality Scale (GQS) scoring systems. Qualitative and quantitative data were recorded for each video.
    RESULTS: A total of 99 videos were analyzed. The mean DISCERN score was 43.44 out of 75 possible points, and the mean Global Quality Scale (GQS) score was 2.77 out of 5 possible points. Of all the videos, 14.1, 29.3, 15.2, and 29.3% were categorized as very poor, poor, moderate, good, and excellent, respectively. Videos that included qualitative features such as clear information; information related to symptomatology, etiology, diagnosis, treatment, treatment response, and epidemiology; and diagrams and radiological images had significantly higher scale scores. Audience engagement parameters were significantly higher for videos containing animation, treatment response, and radiological images.
    CONCLUSION: We maintain that sufficient, reliable, and useful content is not provided for those seeking information on YT about MS. Everyone seeking information about MS should always verify information provided in YT videos using more reliable sources of information. Video producers should optimize their videos to contain high-quality and reliable data and to attract larger audiences.
    Keywords:  DISCERN; Information; Multiple sclerosis; Qualitative; YouTube
    DOI:  https://doi.org/10.1016/j.msard.2022.104024
  7. J Eur Acad Dermatol Venereol. 2022 Jul 17.
    Exploring the Most Visible Websites on Cutaneous T-cell Lymphoma-Revealing Limited Quality of Patient Health Information on the Internet.
    Deniz Özistanbullu, Ronja Weber, Johannes Kleemann, Manuel Jäger, Stefan Kippenberger, Roland Kaufmann, Markus Meissner.
       BACKGROUND: Patients diagnosed with cancer frequently search the Internet for health information. Yet, the quality of CTCL online information has not been investigated so far.
    OBJECTIVES: The aim of this study was to identify and assess the most visible websites on CTCL.
    METHODS: An Internet search on the top three search engines Google, Yahoo and Bing was performed for the terms "cutaneous T-cell-lymphoma", "mycosis fungoides" and "Sézary syndrome". After selecting the most frequented websites suitable for patients' information, we investigated content quality, readability and popularity. 89 websites were evaluated for HONcode quality certification, social media popularity, Alexa popularity rank, topicality and readability levels. Furthermore, the websites' content on 13 major topics according to guidlines on CTCL was assessed.
    RESULTS: 23 (25.8%) websites were HONcode certified. Evaluated websites were difficult to read requiring at least nine years of US school education to properly understand the information. More than half of all websites (57.3%) have not been updated for three or more years (or did not contain any update information. We found greatly varying quality and popularity of online patient information. Out of 1,157 topics (equivalent to 13 different topics on 89 websites), 59.44% were mentioned on the websites. Of these, 40% contained incorrect or incomplete information. Publicly provided websites presented the different topics more thoroughly. We could further show that HONcode certified websites received better quality and readability scores.
    CONCLUSIONS: In summary, we found major shortcomings regarding readability, completeness and reliability of websites on CTCL. Nevertheless, highly selected websites on CTCL can serve as a valuable and reliable source of patient information. As a consequence, oncologists have an obligation to be aware of and guide their patients to available websites that contain reliable and appropriate information.
    Keywords:  Cutaneous T-cell Lymphoma; Internet information; Mycosis fungoides; Patient education; Sézary syndrome; Websites
    DOI:  https://doi.org/10.1111/jdv.18439
  8. J Cancer Educ. 2022 Jul 19.
    Quality of Online Information for Esophageal Cancer.
    Gurjit S Parmar, Samarpita Das, Paris-Ann Ingledew.
      The Internet is a readily available source of information, and patients in North America frequently access it. Esophageal cancer is the 7th most common cancer worldwide, but there is a lack of studies examining esophageal cancer website quality. This current study looks to systematically analyze the quality of websites accessed by patients with esophageal cancer. A previously validated website evaluation tool was used to analyze the quality of online esophageal cancer resources for patients. The term "esophagus cancer" was used to retrieve hits from the search engine Google and the meta-search engines Dogpile and Yippy. A 100 website list was compiled using pre-specified inclusion and exclusion criteria. Websites were evaluated regarding administration, accountability, authorship, organization, readability, content, and accuracy. The term "esophagus cancer" returned over 500 websites from the search engines. Of the 100 websites included for analysis, 97% disclosed ownership, sponsorship, and advertising. Only 35% identified an author and even fewer (31%) gave the author's credentials. Only 31% declared updates to their information within the past 2 years. Readability scores revealed only 9%, and 12% of sites scored at an elementary level, according to the Flesch-Kincaid (FK) and SMOG scoring scales, respectively. The average FK and SMOG scores were 12.6 and 11.0, respectively. Detection was the most accurately described (70%). However, few websites provided accurate incidence/prevalence (28%), stage-specific prognosis (27%), or preventative information (17%). The quality of websites offering information on esophageal cancer is variable. While they overwhelmingly disclose website ownership interests, most do not identify authors, poorly describe important domains of esophageal cancer, and overall readability exceeds the commonly accepted level for non-healthcare professionals.
    Keywords:  Esophageal cancer; Online health information; Patient education; Quality assessment
    DOI:  https://doi.org/10.1007/s13187-022-02198-0
  9. Cureus. 2022 Jun;14(6): e26029
    Osteoporotic Vertebral Fractures: An Analysis of Readability and Quality of Web-Based information.
    Yasir Hidayat, Ashley Ghanshyam Rajkoomar, Muhammad Abrar Qadeer, Lester G D'Souza.
      Introduction Vertebral compression fractures are among the most common fragility fractures with significant morbidity and mortality. With an aging population, the incidence of these fractures is on the rise. In this age of social and electronic media, there is a plethora of online information available. While access to healthcare information has increased, most of these websites remain beyond the comprehension of their target audience. Objective To assess the readability and quality of online information regarding osteoporotic vertebral fractures. Methods A search for the terms osteoporotic vertebral fractures, osteoporotic spinal fractures, and fragility spinal fractures was performed using the top five search engines. Eighty-three websites were identified and analyzed. Quality assessment was done using the DISCERN and Journal of the American Medical Association (JAMA) tools while readability was analyzed using the Flesch Reading Ease Score (FRES), Flesch Kincaid Grade (FKG), and Gunning Fog Index (GFI). Results The mean DISCERN score was 39.55 while the mean JAMA was 2.2. Readability testing revealed a mean FRES score of 49.26 with 16 websites having a score of > 60, FKG 8.38, and GFI of 9.51. 33 websites had an FKG score of 8 or below 8. Conclusion The above results indicate that web-based information relating to osteoporotic vertebral fractures is of variable quality and readability. Although 40 % of websites are at the eighth grade or below level, only 16 % of websites are above the FRES score of 60, which makes online information difficult to comprehend by an average patient.
    Keywords:  fragility spinal fractures; online health information; orthopedic surgery; osteoporotic spinal fractures; osteoporotic vertebral fractures
    DOI:  https://doi.org/10.7759/cureus.26029
  10. Foot Ankle Spec. 2022 Jul 17. 19386400221109423
    Quality and Readability of Information Regarding Total Ankle Arthroplasty Available to Patients on the Internet.
    Sydney Smith, Daniel C Jupiter, Vinod K Panchbhavi, Jie Chen.
      This study sought to evaluate the reliability, comprehensiveness, and readability of ankle arthroplasty information available on the Internet. We evaluated websites based on category, Journal of the American Medical Association (JAMA) criteria, Health on the Net (HON) code, DISCERN score, an author-created Ankle Replacement Index (ARI), and readability metrics. Based on the ARI, 80 (62.5%) websites provided poor information. The mean reading level was 8.96 ± 2.66, which is above the recommended sixth-grade reading level for patient information. Academic websites had the highest mean DISCERN, ARI, and JAMA scores, and a midrange reading level. The government category had high DISCERN and JAMA scores, a fair ARI score, and the lowest reading level. We found significant correlation between website class and DISCERN score, as well as HON code and DISCERN score. Our results suggest that academic and government websites provide more reliable, complete information than other categories and that websites with an HON code contain more reliable information than those without. We recommend that physicians create handouts to point patients to reliable resources and encourage them to critically evaluate information they read online. We also encourage physicians to take part in evaluating and updating information on their practice websites.Level of Clinical Evidence: N/A.
    Keywords:  Internet-based intervention; ankle replacement arthroplasty; information dissemination; osteoarthritis; patient education
    DOI:  https://doi.org/10.1177/19386400221109423
  11. Int Orthod. 2022 Jul 16. pii: S1761-7227(22)00074-2. [Epub ahead of print] 100663
    Orthodontic clear aligners and TikTok videos: A content, reliability and quality analysis.
    Maurice J Meade, Eva A Meade, Craig W Dreyer.
       BACKGROUND AND OBJECTIVES: The social media platform, TikTok, has the potential to disseminate orthodontic information to an enormous global audience. The aim of this investigation was to assess the content, reliability and quality of videos regarding orthodontic clear aligners (OCAs) on the TikTok platform.
    METHODS: Three search terms were used to identify relevant videos. Characteristics such as video source and the number of views were documented. An 8-point information domain score was applied to categorise the videos as "not useful", "slightly useful", "moderately useful" and "very useful". The DISCERN tool and the Global Quality Score (GQS) were used to evaluate video reliability and quality. Intraclass coefficients (ICC) were computed for intrarater reliability. Statistical analyses were via IBM® SPSS®, version 27.0.0.0 (SPSS Inc. Chicago, IL, USA).
    RESULTS: Of the 117 videos that satisfied inclusion/exclusion criteria, most were uploaded by laypersons (44.4%) and orthodontists (35.9%). The assessed videos had over 300 million views. The overall mean (SD) number of information domains present in the videos was 1.85/8 (1.73). Most videos were deemed "slightly useful" (54.7%) or "not useful" (26.5%). The overall mean (SD) DISCERN score was 1.8/5 (1.28). The overall mean (SD) GQS was 2.48/5 (0.86). Higher DISCERN scores correlated with higher GQS (r=0.73; P<0.01). ICC scores (0.92-0.94) indicated excellent intrarater reliability.
    CONCLUSIONS: The content, reliability and quality of videos found on TikTok related to OCAs was poor. The orthodontic profession must direct patients to reliable and high-quality resources as well as uploading content onto TikTok to counteract the deficiencies highlighted in this study.
    Keywords:  Invisalign; Orthodontic clear aligners; Orthodontics; Quality of information; Social media; Tik Tok
    DOI:  https://doi.org/10.1016/j.ortho.2022.100663
  12. J Biomed Inform. 2022 Jul 15. pii: S1532-0464(22)00150-2. [Epub ahead of print] 104134
    Call for Papers: Semantics-enabled Biomedical Literature Analytics.
    Halil Kilicoglu, Faezeh Ensan, Bridget McInnes, Lucy Lu Wang.
      
    DOI:  https://doi.org/10.1016/j.jbi.2022.104134
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