bims-librar 2022-03-20 papers

bims-librar

Biomed News

on Biomedical librarianship

Issue of 2022–03–20
eleven papers selected by
Thomas Krichel, Open Library Society

Quality of web-based information on attention deficit hyperactivity disorder.
Readability of Online Patient Education Materials for Glaucoma.
Temporomandibular joint arthrocentesis videos on YouTube: Are they a good source of information?
Readability and Suitability of Online Glaucoma Patient Education Materials.
Evaluation of the quality of online patient information at the intersection of complementary and alternative medicine and hypertension.
Assessment of the Readability of Web-Based Patient Education Material From Major Canadian Pediatric Associations: Cross-sectional Study.
Pre2Pub: An algorithm for tracking the path from preprint to journal.
"YouTube™ as a source of information on placenta accreta: A quality analysis".
An evaluation of the quality of online perinatal depression information.
A large-scaled corpus for assessing text readability.
A systematic review case study of urgent and emergency care configuration found citation searching of Web of Science and Google Scholar of similar value.

Asian J Psychiatr. 2022 Mar 12. pii: S1876-2018(22)00069-7. [Epub ahead of print]71 103071

Quality of web-based information on attention deficit hyperactivity disorder.

Swarndeep Singh, Romil Saini, Rajesh Sagar.

   BACKGROUND AND OBJECTIVE: The limited literature available on quality of online health information about attention deficit hyperactivity disorder (ADHD), reported mixed findings and was more than five years old. This study aimed to assess the content quality, readability, aesthetics, and interactivity of current web-based information on ADHD.
METHODS: We screened first 50 links obtained on searching for ADHD using two popular search engines (Google and Bing), out of which 44 websites were selected for quality assessment. They were analysed using pre-decided study Performa, which included previously validated DISCERN instrument for content quality. Flesch-Kincaid grade level score and Flesch-Kincaid readability index were calculated for assessing readability.
RESULTS: About 61.4% of websites had DISCERN score ≥40, suggestive of good content quality. However, only 38.6% and 13.6% of websites were written at recommended reading level of eighth and sixth grade respectively. The DISCERN score had significant positive correlation with aesthetics and interactivity scores. Websites with the Health On Net (HON) label had better content quality. No significant difference in the readability, aesthetics, and interactivity of websites with and without the HON label.
CONCLUSION: This study underscores the need for improving readability of web-based information on ADHD, and highlight important areas for improving the overall quality of websites. The use of HONCode label might guide general public in gauging the content quality of online health information, but not its readability or presentation.

Keywords:  ADHD; Aesthetics; DISCERN; Interactivity; Internet; Readability

DOI:  https://doi.org/10.1016/j.ajp.2022.103071
J Glaucoma. 2022 Mar 11.

Readability of Online Patient Education Materials for Glaucoma.

Brian T Cheng, Anne B Kim, Angelo P Tanna.

PRCIS: We assessed readability of online glaucoma patient education materials using seven validated instruments. Overall, glaucoma materials were written at a 10th-11th grade level, above the recommended 7th grade reading level.
PURPOSE: Online health information is increasingly used by patients, yet previous studies show online patient education materials are often difficult to understand. As such, the American Medical Association recommends that patient education materials are written at or below a 7th grade reading level. This study aimed to assess the readability of online glaucoma patient education materials.
METHODS: Glaucoma was inputted into the Google search engine, and the first 30 search results were assessed for readability using seven validated readability instruments. Scientific articles, forums, and dictionary entries were excluded. Single sample t-tests were used to assess whether online glaucoma materials were written above the recommended 7th grade level.
RESULTS: Overall, glaucoma materials were written at a mean grade level of 10.33 [standard deviation: 2.02]. Across six grade level readability instruments, these patient education materials were written above the recommended 7th grade reading level (P<0.0001 for all). Glaucoma education materials only on the first page of Google search results were of a similar reading level: mean 10.56 [standard deviation: 2.13]. Last, the readability instruments used in this study showed strong consistency.
CONCLUSIONS: Glaucoma patient education materials are written above the recommended reading level to promote accessibility of education materials. This may contribute to lower patient engagement, worse clinical outcomes, and greater racial and ethnic disparities in glaucoma management. There is a need for reliable, simple glaucoma information to improve patient outcomes.

DOI: https://doi.org/10.1097/IJG.0000000000002012
J Stomatol Oral Maxillofac Surg. 2022 Mar 09. pii: S2468-7855(22)00058-1. [Epub ahead of print]

Temporomandibular joint arthrocentesis videos on YouTube: Are they a good source of information?

Nilay Er, F Gülfeşan Çanakçı.

   BACKGROUND: YouTube has been increasingly used as a source of information by patients in the field of health, but many studies revealed poor information quality. This study evaluated the content and quality of YouTube videos on Temporomandibular Joint Arthrocentesis (TMJA) as an information resource for patients.
MATERIAL AND METHODS: YouTube search with the two keywords "temporomandibular joint arthrocentesis" and "temporomandibular joint lavage" was performed. The first 160 videos were listed for each term according to relevancy. Results were assessed for inclusion and categorized for source, purpose, target, arthrocentesis method described, and the narrator of the videos. An evaluation was performed independently by two oral and maxillofacial surgeons. The quality of videos was analyzed for the content and defined as poor, moderate, and excellent. DISCERN was also performed by scoring between 0 and 5.
RESULTS: A total of 43 videos were evaluated. The most upload source was individual users (46.5%) and the most video upload purpose was information for professionals (37.2%). The method with the most information about was the two-needle technic, which had a rate of 44.2 percent. The average usefulness score of the videos was 3.00 and 57.1% of the videos resulted in poor quality. A statistically significant positive high correlation was found between DISCERN and usefulness scoring (r = 0.793; p < 0.001).
CONCLUSION: The majority of YouTube videos are of poor quality and this situation affects the patients' decisions about treatment. Health professionals should be aware of the content on YouTube and produce high-quality, accurate, and up-to-date information for patient education.

Keywords:  Discern; Internet; Patient information; Quality; Temporomandibular joint arthrocentesis; YouTube

DOI:  https://doi.org/10.1016/j.jormas.2022.03.011
Ophthalmol Glaucoma. 2022 Mar 14. pii: S2589-4196(22)00051-5. [Epub ahead of print]

Readability and Suitability of Online Glaucoma Patient Education Materials.

Cole A Martin, Saima Khan, Rachel Lee, Anna Do, Jayanth Sridhar, Eric Crowell, Eileen Bowden.

PURPOSE: To assess the quality, content, readability, and accountability of information found online for glaucoma.
DESIGN: Cross-sectional study.
PARTICIPANTS: 13 websites containing glaucoma patient education materials were analyzed for this study.
METHODS: An online Google search was conducted using the keyword glaucoma. 13 medical website results were selected for analysis. Each website was assessed by three independent reviewers for suitability, readability, and accountability. The standardized Suitability Assessment of Materials (SAM) tool was used to evaluate the quality and content of information on each website. The Flesch reading ease (FRE), Flesch-Kincaid Grade Level (FKGL), Coleman-Liau Index (CLI), Simple Measure of Gobbledygook Index (SMOG), Automated Readability Index (ARI), and Linsear Write Formula (LWF) scores were used to assess readability of the websites. The Journal of the American Medical Association (JAMA) Accountability Benchmarks were used to evaluate each website's accountability.
MAIN OUTCOME MEASURES: SAM score, FRE, FKGL, CLI, SMOG, ARI, LWF scores, and JAMA Accountability Benchmarks.
RESULTS: The average SAM score for all the websites included in this study was 18 points out of a possible 34 points. Eyewiki.org was the lowest scoring website (11.7 ± 0.6 points), while aao.org and nei.nih.gov were the highest scoring websites (26.0 ± 1.0 points and 26.0 ± 2.6 points, respectively). Three content graders in this study were in moderate agreement (kappa statistic = 0.59). The average Flesch Reading Ease (FRE) scores among all websites was 47.0 (95% confidence interval (CI), 39.3 - 54.7). The average reading grade score among all websites was 11.2 (95% CI, 10.0 - 12.4). Two of the thirteen websites (15.4%) satisfied all 4 JAMA accountability criteria.
CONCLUSIONS: There is significant variation in the content and quality of freely available online glaucoma education material. The material is generally either not suitable or only adequate for use. Most websites reviewed are written at a reading grade level higher than that recommended for patient education materials.

DOI: https://doi.org/10.1016/j.ogla.2022.03.004
Clin Hypertens. 2022 Mar 15. 28(1): 9

Evaluation of the quality of online patient information at the intersection of complementary and alternative medicine and hypertension.

Jeremy Y Ng, Jane Jomy, Alexandra Vacca.

   BACKGROUND: Hypertension impacts 1.1 billion people globally; many patients seek complementary and alternative medicine (CAM), as a result of adverse side effects from antihypertensive medications or because they believe natural options are safer. The internet is increasingly playing a role in patient health information-seeking behavior, however, the variability of information quality across websites is unclear. Thus, the purpose of this study was to assess the quality of websites providing consumer health information at the intersection of hypertension and CAM.
METHODS: Four unique terms were searched on Google, across Australia, Canada, the US, and the UK. The first 20 webpages resulting from each search were screened for eligibility, and were included if they contained consumer health information relating to CAM therapies for the treatment/management of hypertension. To assess the quality of health information on eligible websites, we used the DISCERN instrument, a standardized quality index of consumer health information.
RESULTS: Of 90 unique webpages, 40 websites were deemed eligible and quality assessed. The 40 eligible websites were classified into seven categories: professional (n = 15), news (n = 11), non-profit (n = 5), health portal (n = 3), commercial (n = 2), government (n = 1), and other (n = 3). The mean summed DISCERN score was 52.34 (standard deviation [SD] = 10.69) out of 75 and the mean overall score was 3.49 (SD = 0.08) out of 5. A total of 10 websites had a total DISCERN score of 60.00 and above with an average rating of 4.33. Among these, Medicine Net (69.00) and WebMD (69.00) were determined to have the highest quality information. Websites generally scored well with respect to providing their aims, identifying treatment benefits and options, and discussing shared-decision making; websites generally lacked references and provided inadequate information surrounding treatment risks and impact on quality of life.
CONCLUSIONS: While some websites provided high-quality consumer health information, many others provided information of suboptimal quality. A need exists to better educate patients about identifying misinformation online. Healthcare providers should also inquire about their patients' health information-seeking behavior, and provide them with the guidance necessary to identify high-quality resources which they can use to inform shared-decision making.

Keywords:  Complementary therapies; Consumer health information / standards; Hypertension; Information services / standards; Internet; Patient education as topic / standards

DOI:  https://doi.org/10.1186/s40885-021-00193-z
JMIR Pediatr Parent. 2022 Mar 16. 5(1): e31820

Assessment of the Readability of Web-Based Patient Education Material From Major Canadian Pediatric Associations: Cross-sectional Study.

Alice Man, Courtney van Ballegooie.

   BACKGROUND: Web-based patient education materials (PEMs) are frequently written above the recommended reading level in North America. Poor PEM readability limits the accessibility of medical information for individuals with average literacy levels or lower. Pediatric hospital and association websites have not only been shown to be a preferred source of information among caregivers but have also become a necessity during the COVID-19 pandemic. The readability of Canadian pediatric association websites has not yet been assessed.
OBJECTIVE: The aim of this study is to determine if the content of PEMs from Canadian pediatric associations is written at a reading level that the majority of Canadians can understand.
METHODS: A total of 258 PEMs were extracted from 10 Canadian pediatric associations and evaluated for their reading level using 10 validated readability scales. The PEMs underwent a difficult word analysis and comparisons between PEMs from different associations were conducted.
RESULTS: Web-based PEMs were identified from 3 pediatric association websites, where the reading level (calculated as a grade level) was found to be an average of 8.8 (SD 1.8) for the Caring for Kids website, 9.5 (SD 2.2) for the Pediatric Endocrine Group website, and 13.1 (SD 2.1) for the Atlantic Pediatric Society website. The difficult word analysis identified that 19.9% (SD 6.6%) of words were unfamiliar, with 13.3% (SD 5.3%) and 31.9% (SD 6.1%) of words being considered complex (≥3 syllables) and long (≥6 letters), respectively.
CONCLUSIONS: The web-based PEMs were found to be written above the recommended seventh-grade reading level for Canadians. Consideration should be made to create PEMs at an appropriate reading level for both patients and their caregivers to encourage health literacy and ultimately promote preventative health behaviors and improve child health outcomes.

Keywords:  accessibility; health literacy; online health information; patient education; pediatrics

DOI:  https://doi.org/10.2196/31820
J Med Internet Res. 2022 Mar 01.

Pre2Pub: An algorithm for tracking the path from preprint to journal.

Lisa Langnickel, Daria Podorskaja, Juliane Fluck.

BACKGROUND: The current Corona crisis underscores the importance of preprints, as they allow for rapid communication of research results without delay in review. To fully integrate this type of publication into library information systems, we developed preVIEW - a publicly available, central search engine for COVID-19 preprints that clearly distinguishes this source from peer-reviewed publications. The relationship between the preprint version and its corresponding journal version should be stored as metadata in both versions so that duplicates can be easily identified and information overload for researchers is reduced.
OBJECTIVE: In this work, we investigate the extent to which the relationship information between preprint and corresponding journal publication is present in the published metadata, how it can be further completed, and how it can be used in preVIEW to identify already re-published preprints and filter those duplicates in search results.
METHODS: We first analyze the information content available at the preprint servers themselves and the information that can be retrieved via Crossref. Moreover, we develop the algorithm Pre2Pub to find the corresponding reviewed article for each preprint. We integrate the results of those different resources into our search engine preVIEW, present the information in the result set overview and add filter options accordingly.
RESULTS: Preprints have found their place in the publication workflows, however, the link from a preprint to its corresponding journal publication is not completely covered in the metadata of the preprint servers or in Crossref. Our algorithm Pre2Pub is able to find about 16% more related journal articles with a precision of 99.27%. We also integrate this information in a transparent way within preVIEW so that researchers can use it in their search.
CONCLUSIONS: Relationships between preprint version and its journal version is valuable information that help researchers finding only previously unknown information in preprints. As long as there is no transparent and complete way to store this relationship in metadata, the Pre2Pub algorithm is a suitable extension to retrieve this information.
CLINICALTRIAL:

DOI: https://doi.org/10.2196/34072
Eur J Obstet Gynecol Reprod Biol. 2022 Mar 08. pii: S0301-2115(22)00247-0. [Epub ahead of print]272 82-87

"YouTube™ as a source of information on placenta accreta: A quality analysis".

Claudia Collà Ruvolo, Gianluigi Califano, Alessandra Tuccillo, Sara Tolentino, Elena Cancelliere, Francesco Di Bello, Giuseppe Celentano, Massimiliano Creta, Nicola Longo, Simone Morra, Gabriele Saccone.

   OBJECTIVE: To evaluate the quality of YouTube™ videos on placenta accreta and to investigate if they can be used as a reliable source of information.
METHODS: We queried YouTube™ with terms related to placenta accreta. Patient Education Materials Assessment Tool for audio-visual content (PEMAT A/V), Global Quality Score (GQS), DISCERN score and Misinformation tool were used to assess videos' quality content.
RESULTS: Sixty-four videos were suitable for the analyses. Of those, 42 (65.6%) and 22 (34.4%) were produces by healthcare works and others, respectively. The median PEMAT A/V Understandability and Actionability score was 75 and 66.7%, respectively. According to GQS, 31.2 and 45.3% videos were excellent or good and generally poor or poor, respectively. The median DISCERN score of section 1 was 27 (out of 40), of section 2 was 16 (out of 35) and of section 3 was 2 (out of 5). According to Misinformation tool, the worst described aspect was the one regarding the possible risk factor associated to placenta accreta. Performing the quality assessment according to video authoring entity, videos produced by healthcare workers harbored a higher quality content, relative to the others.
CONCLUSIONS: Currently, the overall consideration of YouTube™ video content on placenta accreta is low. Societies should invest new sources in producing higher quality videos to provide a helpful tool for physician during the counselling with patients.

Keywords:  Bladder; Gynecology; Internet; Social media; Urology

DOI:  https://doi.org/10.1016/j.ejogrb.2022.03.015
BMC Pregnancy Childbirth. 2022 Mar 15. 22(1): 209

An evaluation of the quality of online perinatal depression information.

Madison P Hardman, Kristin A Reynolds, Sarah K Petty, Teaghan A M Pryor, Shayna K Pierce, Matthew T Bernstein, Patricia Furer.

   BACKGROUND: During the perinatal period (including pregnancy and up to 12 months after childbirth), expectant and new mothers are at an elevated risk of developing depression. Inadequate knowledge about perinatal depression and treatment options may contribute to the low help-seeking rates exhibited by perinatal people. The Internet can be an accessible source of information about perinatal depression; however, the quality of this information remains to be evaluated. The purpose of this study was to assess the quality of perinatal depression information websites.
METHODS: After review, 37 websites were included in our sample. To assess overall website quality, we rated websites based on their reading level (Simple Measure of Gobbledegook; SMOG), information quality (DISCERN), usability (Patient Education Materials Assessment Tool; PEMAT), and visual design (Visual Aesthetics of Website Inventory; VisAWI).
RESULTS: Websites often exceeded the National Institute of Health's recommended reading level of grades 6-8, with scores ranging from 6.8 to 13.5. Website information quality ratings ranged from 1.8 to 4.3 out of 5, with websites often containing insufficient information about treatment choices. Website usability ratings were negatively impacted by the lack of information summaries, visual aids, and tangible tools. Visual design ratings ranged from 3.2 to 6.6 out of 7, with a need for more creative design elements to enhance user engagement.
CONCLUSIONS: This study outlines the characteristics of high-quality perinatal depression information websites. Our findings illustrate that perinatal depression websites are not meeting the needs of users in terms of reading level, information quality, usability, and visual design. Our results may be helpful in guiding healthcare providers to reliable, evidence-based online resources for their perinatal patients.

Keywords:  Information quality; Informed decision making; Internet; Perinatal depression

DOI:  https://doi.org/10.1186/s12884-021-04320-4
Behav Res Methods. 2022 Mar 16.

A large-scaled corpus for assessing text readability.

Scott Crossley, Aron Heintz, Joon Suh Choi, Jordan Batchelor, Mehrnoush Karimi, Agnes Malatinszky.

  This paper introduces the CommonLit Ease of Readability (CLEAR) corpus, which provides unique readability scores for ~ 5000 text excerpts along with information about the excerpt's year of publishing, genre, and other metadata. The CLEAR corpus will provide researchers interested in discourse processing and reading with a resource from which to develop and test readability metrics and to model text readability. The CLEAR corpus includes a number of improvements in comparison to previous readability corpora including size, breadth of the excerpts available, which cover over 250 years of writing in two different genres, and unique readability criterion provided for each text based on teachers' ratings of text difficulty for student readers. This paper discusses the development of the corpus and presents reliability metrics for the human ratings of readability.

Keywords:  Corpus linguistics; Natural language processing; Readability; Readability formulas

DOI:  https://doi.org/10.3758/s13428-022-01802-x
Health Info Libr J. 2022 Mar 15.

A systematic review case study of urgent and emergency care configuration found citation searching of Web of Science and Google Scholar of similar value.

Anna Cantrell, Andrew Booth, Duncan Chambers.

   BACKGROUND: Supplementary search methods, including citation searching, are essential if systematic reviews are to avoid producing biased conclusions. Little evidence exists on how to prioritise databases for citation searching or to establish whether using multiple sources is beneficial.
OBJECTIVES: A systematic review examining urgent and emergency care reconfiguration was used to investigate the utility of citation searching on Web of Science (WOS) and/or Google Scholar (GS).
METHODS: This case study investigated numbers of studies, additional studies and unique studies retrieved from both sources. In addition, the time to search, the ease of adding references to reference management software and obtaining abstracts of studies for screening are briefly considered.
RESULTS: WOS retrieved 62 references after deduplication of the results, 52 being additional references not retrieved during the database searching. GS retrieved 134 unique references with 63 additional references. WOS and GS retrieved the same three additional included studies. WOS was less time intensive to search given the facility to restrict to English language papers and availability of abstracts.
CONCLUSIONS: In a single systematic review case study, citation searching was required to identify all included studies. Citation searching on WOS is more efficient, where a subscription is available. Both databases identified the same studies but GS required additional time to remove non-English language studies and locate abstracts.

Keywords:  case studies; database searching; evidence-based medicine; health services research; review and systematic search; search strategies; supplementary searching

DOI:  https://doi.org/10.1111/hir.12428