bims-librar Biomed News
on Biomedical librarianship
Issue of 2021‒03‒28
fourteen papers selected by
Thomas Krichel
Open Library Society
  1. Library and knowledge staff in England share similar perceptions of the roles and personal characteristics of the clinical librarian.
  2. How do public libraries respond to patron queries about opioid use disorder? A secret shopper study.
  3. Guidelines for developing a systematic literature review for studies related to climate change adaptation.
  4. A Prospective Comparison of Evidence Synthesis Search Strategies Developed With and Without Text-Mining Tools.
  5. NLM-Chem, a new resource for chemical entity recognition in PubMed full text literature.
  6. Artificial intelligence in systematic literature reviews: A case for cautious optimism.
  7. Dataset search in biodiversity research: Do metadata in data repositories reflect scholarly information needs?
  8. Quality of Glioblastoma Multiforme (GBM) Resources Available on the Internet.
  9. Glioblastoma: assessment of the readability and reliability of online information.
  10. Evaluating YouTube as a Resource for Trigeminal Neuralgia Patient Education.
  11. Empowerment of Parents of Children With Cleft Lip and Palate by Objective Scoring of Patient Information Websites.
  12. Content analysis of patient material resources on the internet for oral cancer-An exploratory study.
  13. Share to Seek: The Effects of Disease Complexity on Health Information-Seeking Behavior.
  14. Simplifying language is inclusive and improves access to up-to-date scientific information Response to: Hosseini and Akbarzadeh. Persisting on readability could provoke the risk of misinformation: A COVID-19 pandemic concern.
  1. Health Info Libr J. 2021 Mar 23.
    Library and knowledge staff in England share similar perceptions of the roles and personal characteristics of the clinical librarian.
    Sarah Rudd, Sam Harding.
      INTRODUCTION: Indications on the development of the health library and knowledge workforce (LKS) in England suggest that more staff may need to shift into clinical librarian (CL) roles. Anecdotal evidence suggested that CL roles have changed recently.OBJECTIVES: To examine perceptions of CL tasks and required personal characteristics of CLs, amongst both practising CLs and other LKS staff in England.
    METHODS: An online survey was followed by descriptive statistical and content analysis to identify any differences in perceptions between the CL and non-CL staff groups.
    RESULTS: Response rate: 10% (123/1181). Both staff groups identified literature searching as the top core task and agreed on the main CL roles. Perceptions on the necessary personal characteristics were also similar. Ranking differed for a few tasks: non-CL staff may ascribe more importance to some tasks (evidence synthesis, critical appraisal training and attending ward rounds/team meetings) than the CL staff state. CLs spent more time on staff management, and less time on study skills training than non-CL staff perceived.
    DISCUSSION: Results indicated that CL roles are continuing to develop, but that CLs are more integrated into library administration than some non-CL staff believe.
    CONCLUSION: Shared perceptions around CL roles should help workforce development.
    Keywords:  National Health Service (NHS); United Kingdom (UK); clinical librarianship; health care; health science; librarianship; libraries
    DOI:  https://doi.org/10.1111/hir.12365
  2. Subst Abus. 2021 Mar 22. 1-5
    How do public libraries respond to patron queries about opioid use disorder? A secret shopper study.
    Vivien Wong, Carolyn C Cannuscio, Margaret Lowenstein, Rachel Feuerstein-Simon, Rachel Graves, Zachary F Meisel.
      BACKGROUND: Improving linkage to opioid use disorder (OUD) treatment and services is a public health priority. Public libraries, a community resource for health information, may be well positioned to support and guide people who use drugs, as well as their families and friends. In this study, we sought to evaluate the availability and types of resources offered to patrons inquiring about OUD information, OUD treatment, and naloxone access. Methods: We conducted an audit (secret shopper) study from April 2019 to June 2019 in which an auditor anonymously called Pennsylvania public libraries. We used a purposive sampling strategy to select libraries located in geographically diverse regions across the urban-rural continuum. We categorized responses and verified via phone or website whether referrals to treatment centers and other organizations provided OUD treatment or services. Results: We obtained responses from 100 public libraries located across 48 of the 67 counties in Pennsylvania. Among the libraries that responded, 57 provided health information resources (e.g., books, websites) and 82 provided "next step" referrals to an organization that could provide further assistance. Among the libraries that provided referrals, 39 were to treatment centers, of which 33 were specifically to treatment centers that offer medications for OUD. Of the responding libraries, 28 communicated information about naloxone access. Conclusion: Public libraries can and do connect patrons to OUD treatment and support services; however, there is wide interlibrary variation in the resources presented, demonstrating opportunities for improvement in how libraries engage and refer patrons with substance use needs.
    Keywords:  Opioid use disorder; opioid crisis; public libraries
    DOI:  https://doi.org/10.1080/08897077.2021.1900980
  3. Environ Sci Pollut Res Int. 2021 Mar 21.
    Guidelines for developing a systematic literature review for studies related to climate change adaptation.
    Hayrol Azril Mohamed Shaffril, Asnarulkhadi Abu Samah, Samsul Farid Samsuddin.
      This study proposes a set of GuFSyADD guidelines on steps for developing  suggestions that  enhance of its rigor in systematic literature review (SLR) for studies related to climate change adaptation. The prescribed guidelines are based on the following six steps, (1) guided by review of protocol/publication standard/established guidelines/related published articles, (2) formulation of review questions, (3) systematic searching strategies, (4) appraisal of quality, (5) data extraction and analysis, and (6) data demonstration. Essentially, this set of proposed  guidelines enables researchers to develop an SLR pertaining to climate change adaptation in an organised, transparent, and replicable manner.
    Keywords:  Adaptation; Climate change; Methodology; SLR guidelines
    DOI:  https://doi.org/10.1007/s11356-021-13178-0
  4. J Clin Epidemiol. 2021 Mar 19. pii: S0895-4356(21)00085-8. [Epub ahead of print]
    A Prospective Comparison of Evidence Synthesis Search Strategies Developed With and Without Text-Mining Tools.
    Robin A Paynter, Robin Featherstone, Elizabeth Stoeger, Celia Fiordalisi, Christiane Voisin, Gaelen P Adam.
      OBJECTIVE: We compared the process of developing searches with and without using text-mining tools (TMTs) for evidence synthesis products.STUDY DESIGN: This descriptive comparative analysis included seven systematic reviews, classified as simple or complex. Two librarians created MEDLINE strategies for each review, using either usual practice (UP) or TMTs. For each search we calculated sensitivity, number-needed-to-read (NNR) and time spent developing the search strategy.
    RESULTS: We found UP searches were more sensitive (UP 92% (95% CI, 85-99); TMT 84.9% (95% CI, 74.4-95.4)), with lower NNR (UP 83 (SD 34); TMT 90 (SD 68)). UP librarians spent an average of 12 hours (SD 8) developing search strategies, compared to TMT librarians' 5 hours (SD 2).
    CONCLUSION: Across all reviews, TMT searches were less sensitive than UP searches, but confidence intervals overlapped. For simple SR topics, TMT searches were faster and slightly less sensitive than UP. For complex SR topics, TMT searches were faster and less sensitive than UP searches but identified unique eligible citations not found by the UP searches.
    Keywords:  Comparative Studies; Evidence Synthesis; Information Retrieval; PubMed; Systematic review; Text-mining
    DOI:  https://doi.org/10.1016/j.jclinepi.2021.03.013
  5. Sci Data. 2021 Mar 25. 8(1): 91
    NLM-Chem, a new resource for chemical entity recognition in PubMed full text literature.
    Rezarta Islamaj, Robert Leaman, Sun Kim, Dongseop Kwon, Chih-Hsuan Wei, Donald C Comeau, Yifan Peng, David Cissel, Cathleen Coss, Carol Fisher, Rob Guzman, Preeti Gokal Kochar, Stella Koppel, Dorothy Trinh, Keiko Sekiya, Janice Ward, Deborah Whitman, Susan Schmidt, Zhiyong Lu.
      Automatically identifying chemical and drug names in scientific publications advances information access for this important class of entities in a variety of biomedical disciplines by enabling improved retrieval and linkage to related concepts. While current methods for tagging chemical entities were developed for the article title and abstract, their performance in the full article text is substantially lower. However, the full text frequently contains more detailed chemical information, such as the properties of chemical compounds, their biological effects and interactions with diseases, genes and other chemicals. We therefore present the NLM-Chem corpus, a full-text resource to support the development and evaluation of automated chemical entity taggers. The NLM-Chem corpus consists of 150 full-text articles, doubly annotated by ten expert NLM indexers, with ~5000 unique chemical name annotations, mapped to ~2000 MeSH identifiers. We also describe a substantially improved chemical entity tagger, with automated annotations for all of PubMed and PMC freely accessible through the PubTator web-based interface and API. The NLM-Chem corpus is freely available.
    DOI:  https://doi.org/10.1038/s41597-021-00875-1
  6. J Clin Epidemiol. 2021 Mar 19. pii: S0895-4356(21)00084-6. [Epub ahead of print]
    Artificial intelligence in systematic literature reviews: A case for cautious optimism.
    Saifuddin Kharawala, Anadi Mahajan, Paul Gandhi.
      
    Keywords:  Machine learning; data extraction; natural language processing; systematic literature review; title and abstract screening
    DOI:  https://doi.org/10.1016/j.jclinepi.2021.03.012
  7. PLoS One. 2021 ;16(3): e0246099
    Dataset search in biodiversity research: Do metadata in data repositories reflect scholarly information needs?
    Felicitas Löffler, Valentin Wesp, Birgitta König-Ries, Friederike Klan.
      The increasing amount of publicly available research data provides the opportunity to link and integrate data in order to create and prove novel hypotheses, to repeat experiments or to compare recent data to data collected at a different time or place. However, recent studies have shown that retrieving relevant data for data reuse is a time-consuming task in daily research practice. In this study, we explore what hampers dataset retrieval in biodiversity research, a field that produces a large amount of heterogeneous data. In particular, we focus on scholarly search interests and metadata, the primary source of data in a dataset retrieval system. We show that existing metadata currently poorly reflect information needs and therefore are the biggest obstacle in retrieving relevant data. Our findings indicate that for data seekers in the biodiversity domain environments, materials and chemicals, species, biological and chemical processes, locations, data parameters and data types are important information categories. These interests are well covered in metadata elements of domain-specific standards. However, instead of utilizing these standards, large data repositories tend to use metadata standards with domain-independent metadata fields that cover search interests only to some extent. A second problem are arbitrary keywords utilized in descriptive fields such as title, description or subject. Keywords support scholars in a full text search only if the provided terms syntactically match or their semantic relationship to terms used in a user query is known.
    DOI:  https://doi.org/10.1371/journal.pone.0246099
  8. J Cancer Educ. 2021 Mar 26.
    Quality of Glioblastoma Multiforme (GBM) Resources Available on the Internet.
    Fan Yang, Paris-Ann Ingledew.
      Glioblastoma multiforme (GBM) carries a poor prognosis, and patients often have trouble accessing high-quality resources. The purpose of this study is to systematically evaluate the information available to GBM patients on the Internet. An Internet search using the term "Glioblastoma Multiforme" was performed using three different search engines: Google, Yippy, and Dogpile. A structured rating tool, validated and developed by our research group, was applied to evaluate the top 100 websites with respect to accuracy, coverage, readability, currency, structure, attribution, and interactivity. Among the 100 websites evaluated, definition and treatment were the most accurately written sections (98% and 78% of websites). Etiology/risk factors and diagnosis were the least accurately written sections (40% and 52% of websites). Half of the websites did not cover etiology/risk factors, and 47% did not cover diagnosis. Only 21% of websites provided complete authorship information, and almost half of websites (46%) were affiliated with commercial websites (.com). Sixty three percent of websites were at a post-secondary reading level. The majority of online GBM websites contains accurate but incomplete information. Many websites do not provide authorship information, last modification dates, and reference materials. Readability was generally inappropriate for GBM patients. This research can be useful for clinicians to guide GBM patients to quality online resources.
    Keywords:  GBM; Glioblastoma multiforme; Internet information; Online resources; Patient education
    DOI:  https://doi.org/10.1007/s13187-021-01996-2
  9. Br J Neurosurg. 2021 Mar 26. 1-4
    Glioblastoma: assessment of the readability and reliability of online information.
    Omid Ahmadi, Jacqueline Louw, Heta Leinonen, Peter Yee Chiung Gan.
      INTRODUCTION: Glioblastoma Multiforme (GBM) represents one of the most common and most aggressive forms of brain tumours with a poor prognosis. There is often uncertainty around diagnosis and prognosis amongst patients diagnosed with cancer. Most patients rely on internet to access health-related information. The aim of this study was to assess the readability and reliability of online information on GBM.METHODS: The terms 'Glioblastoma' and 'GBM' were used to search Google and the first 50 websites identified were screened. For each website, the quality of each website was assessed using the DISCERN instrument, the Journal of the American Medical Association (JAMA) benchmark criteria and the Health on the Net Foundation code certification (HON-code). The readability was assessed using the Flesch Reading Ease Score (FRE), the Flesch-Kincaid grade level (FKGL) and the Gunning Fog Index (GFI). The relevant patient information by 4 International patient information websites were also assessed.
    RESULTS: Following screening, 31 websites met the inclusion criteria with only four websites displaying the HON-code (12.9%). The median DISCERN score was 43 (range: 17-70) corresponding to 'fair' quality, and the median JAMA benchmark criteria score was 1. Display of the HON-code certificate or the publication date was associated with higher quality websites. The median FRE score corresponded to 'difficult' to read (34.4). The median GFI score (15.9) and FKGL score (13.3) corresponded to a 'college' level of education reading ability. The Cancer Australia online information was the most readable website while Cancer Research UK had the highest quality information.
    CONCLUSION: The readability and reliability of online information relating to GBM is inadequate. Health professionals need to provide or guide patients to information that is both readable and reliable.
    Keywords:  GBM; Glioblastoma; online information; patient information
    DOI:  https://doi.org/10.1080/02688697.2021.1905772
  10. J Oral Maxillofac Surg. 2021 Feb 20. pii: S0278-2391(21)00189-0. [Epub ahead of print]
    Evaluating YouTube as a Resource for Trigeminal Neuralgia Patient Education.
    David W Wassef, Gregory L Barinsky, Sudeep Peddireddy, Boris Paskhover.
      OBJECTIVE: The objective of this study was to examine the educational value of YouTube as a source of patient information regarding trigeminal neuralgia and its treatment. We also sought to determine the degree of bias that is present in the top videos regarding this condition.METHODS: We selected 6 search terms related to trigeminal neuralgia to examine on YouTube for quality and bias using the DISCERN criteria. Filtering by relevance and total view count, we determined the top 20 results for each search term and evaluated all videos for overall educational quality and creator bias. We categorized the type of content creator and compared overall DISCERN scores and bias scores between creator type and search term.
    RESULTS: There were 80 unique and 40 duplicate videos. There were 10,745,574 total views across all videos, with an average view count of 89,546. The mean DISCERN score for all videos was 1.7, and the mean bias score was 2.2. Based on individual search terms, the highest mean DISCERN score was for "trigeminal neuralgia surgery" (2.1) and the highest mean bias score was for "tic douloureux" (2.8). Among creator types, medical professionals had significantly higher overall (2.2) and bias (2.6) scores.
    CONCLUSIONS: Overall, YouTube is a relatively poor source of unbiased information about trigeminal neuralgia. Among the existing content, medical professionals provide educational material that is the highest quality and the most unbiased.
    DOI:  https://doi.org/10.1016/j.joms.2021.02.013
  11. J Craniofac Surg. 2021 Mar 22.
    Empowerment of Parents of Children With Cleft Lip and Palate by Objective Scoring of Patient Information Websites.
    Madu Rangaraju, Mark Sheldon Lloyd, Khurram Khan.
      BACKGROUND: Whether a new diagnosis or for ongoing care, the Internet is now an established and massively frequented resource for parents and patients with cleft lip and/or palate. The purpose of this study was to assess the correlation between the first 50 ranked websites for cleft lip and palate via the Google search engine versus those ranked with an objective patient information scoring tool.METHODS: The first 50 websites ranked by Google were recorded for the search items "Cleft Lip," "Cleft Palate" and "Cleft Lip and Palate." Quality assessment was performed using the DISCERN score, an objective and validated patient information website scoring tool. The Google rank was compared to the DISCERN rank to assess for correlation. The top five websites for each search item were then ranked by blinded cleft health professionals for quality.
    RESULTS: Based on Google ranking, 36% of websites were the same across the search terms used. The DISCERN ranking scores demonstrated no evidence of positive or negative correlation when compared to Google ranking. In the top 10 DISCERN ranked websites for each search item, 4 websites appear in the top 10 Google rankings.
    CONCLUSION: This is the first study that demonstrates that high-quality information on cleft lip and palate is available on the Internet. However, this may be difficult and confusing for parents and patients to access due to the ranking system used by internet search engines. Cleft healthcare professionals should be aware of these problems when recommending websites to families and patients.
    DOI:  https://doi.org/10.1097/SCS.0000000000007631
  12. Indian J Cancer. 2021 Jan 27.
    Content analysis of patient material resources on the internet for oral cancer-An exploratory study.
    Shreya Bhatia, Gururaghavendran Rajesh, Almas Binnal, S Shreya Sarkar, Chirag Suhane.
      Background: Oral cancer is one of the leading causes of mortality in the world over and is a major public health problem. There are numerous resources on the internet which provide information related to oral cancer. However, they may not be optimal and standardized. The present study was conducted to assess the quality, readability, and content of the online resources for oral cancer.Methods: The content analysis approach was employed for the present study. Google search engine was employed to search for various online resources on oral cancer. The first 50 websites were evaluated for their quality and readability. Flesch-Kincaid readability tests were used to assess the readability of the internet material and consisted of Flesch reading ease and Flesch-Kincaid grade level. The quality of websites was assessed by Journal of American Medical Association (JAMA) benchmarks and HONcode (Health Over Net code).
    Results: A total of 12 (32.43%) of the websites were fairly difficult to comprehend, while none of the websites were easy/very easy to comprehend. A total of 8 (21.62%) websites were readable by only college-level graduates. Overall, 21 (56.76%) of the websites did not have HONcode certification.
    Conclusion: The present study revealed that a majority of the websites were fairly difficult to comprehend and readable by college-level graduates. There is a definite need to monitor the quality of the websites on oral cancer. The present study highlights the need for stringent norms and regulations regarding oral cancer made available to the common man on the internet.
    Keywords:  Internet; oral cancer; patient information; readability
    DOI:  https://doi.org/10.4103/ijc.IJC_464_19
  13. J Med Internet Res. 2021 Mar 24. 23(3): e21642
    Share to Seek: The Effects of Disease Complexity on Health Information-Seeking Behavior.
    Ashwag Alasmari, Lina Zhou.
      BACKGROUND: Web-based question and answer (Q&A) sites have emerged as an alternative source for serving individuals' health information needs. Although a number of studies have analyzed user-generated content in web-based Q&A sites, there is insufficient understanding of the effect of disease complexity on information-seeking needs and the types of information shared, and little research has been devoted to the questions concerning multimorbidity.OBJECTIVE: This study aims to investigate seeking of health information in Q&A sites at different levels of disease complexity. Specifically, this study investigates the effects of disease complexity on information-seeking needs, types of information shared, and stages of disease development.
    METHODS: First, we selected a random sample of 400 questions separately from each of the Q&A sites: Yahoo Answers and WebMD Answers. The data cleaning resulted in a final set of 624 questions from the two sites. We used a mixed methods approach, including qualitative content analysis and quantitative statistical analysis.
    RESULTS: The one-way results of ANOVA showed significant effects of disease complexity (single vs multimorbid disease questions) on two information-seeking needs: diagnosis (F1,622=5.08; P=.02) and treatment (F1,622=4.82; P=.02). There were also significant differences between the two levels of disease complexity in two stages of disease development: the general health stage (F1,622=48.02; P<.001) and the chronic stage (F1,622=54.01; P<.001). In addition, our results showed significant effects of disease complexity across all types of shared information: demographic information (F1,622=32.24; P<.001), medical diagnosis (F1,622=11.04; P<.001), and treatment and prevention (F1,622=14.55; P<.001).
    CONCLUSIONS: Our findings present implications for the design of web-based Q&A sites to better support health information seeking. Future studies should be conducted to validate the generality of these findings and apply them to improve the effectiveness of health information in Q&A sites.
    Keywords:  disease development; health information consumers; information searching; information seeking; multimorbidity
    DOI:  https://doi.org/10.2196/21642
  14. Disaster Med Public Health Prep. 2021 Mar 26. 1-3
    Simplifying language is inclusive and improves access to up-to-date scientific information Response to: Hosseini and Akbarzadeh. Persisting on readability could provoke the risk of misinformation: A COVID-19 pandemic concern.
    Corey H Basch, Jan Mohlman, Grace C Hillyer, Philip Garcia.
      
    Keywords:  COVID-19; misinformation; on-line information; readability
    DOI:  https://doi.org/10.1017/dmp.2021.87
This page is being maintained by Thomas Krichel. It was last updated on 2021‒07‒23 at 09:39:02.