bims-librar Biomed News
on Biomedical librarianship
Issue of 2020–12–13
ten papers selected by
Thomas Krichel, Open Library Society
  1. From publication bias to lost in information: why we need a central public portal for clinical trial data.
  2. [A new textual research of Yin Zhongchun and Yi Zang Shu Mu].
  3. Analysing the literature: A research primer for low- and middle-income countries.
  4. Certification information on trustworthy digital repository websites: A content analysis.
  5. Text mining approaches for dealing with the rapidly expanding literature on COVID-19.
  6. Availability Of Covid-19 Information From National And International Burn Society Websites.
  7. Web-based information on the treatment of the mouth in systemic sclerosis.
  8. From information seeking to information avoidance: Understanding the health information behavior during a global health crisis.
  9. Parents' health information seeking behaviour - does the child's health status play a role?
  10. Health information seeking among immigrant families in Western Canada.
  1. BMJ Evid Based Med. 2020 Dec 10. pii: bmjebm-2020-111566. [Epub ahead of print]
    From publication bias to lost in information: why we need a central public portal for clinical trial data.
    Beate Wieseler, Natalie McGauran.
      
    Keywords:  drug development; ethics; evidence-based practice; policy
    DOI:  https://doi.org/10.1136/bmjebm-2020-111566
  2. Zhonghua Yi Shi Za Zhi. 2020 Sep 28. 50(5): 314-316
    [A new textual research of Yin Zhongchun and Yi Zang Shu Mu].
    R X Liu.
      Yi Zang Shu Mu(, The List of Medicine Books), written by Yin Zhongchun, is China's earliest medical bibliographer. The years of birth and death of Yin Zhongchun was unknown. By text research, it is confirmed that Yin Zhongchun was born in the 20th Year of Jiajing in Ming Dynasty (1541) and died in the First Year of Tianqi(1621). The only currently existing block-printed edition of Yi Zang Shu Mu is the Fan Xingzhun Qi Fen Shi edition in the library of China Academy of Chinese Medical Sciences. The copies in Japan lack the words " Proofread by Yun Jian Chen Jiru Meigong" , but have an extra preface written by Chen Yidian. This fact indicates that the original of the Japanese copy might be different from the Chinese edition.
    Keywords:  Chen Yidian; Yi Zang Shu Mu; Yin Zhongchun; copies; edition
    DOI:  https://doi.org/10.3760/cma.j.cn112155-20190212-00010
  3. Afr J Emerg Med. 2020 ;10(Suppl 2): S100-S105
    Analysing the literature: A research primer for low- and middle-income countries.
    Christopher R Carpenter, Bonaventure Hollong, Erin L Simon, Colin A Graham.
      Effective critical appraisal of medical research requires training and practice. Evidence-based medicine provides a framework for standardised review of manuscripts of nearly any research design. Online resources and communities exist to provide free access to electronic search engines and critical appraisal of emergency medicine and non-emergency medicine research. An emerging array of Free Online Open Access medical education (FOAMed) resources also provide opportunities to observe Evidence-based medicine critical appraisal in written or audio format and to actively participate as a learner. This chapter will highlight accessible resources that provide both methodological background and virtual mentoring for readers to develop EBM skills.
    Keywords:  Evidence-based medicine; Librarian search strategies; Patient safety/QI; Social media
    DOI:  https://doi.org/10.1016/j.afjem.2020.04.003
  4. PLoS One. 2020 ;15(12): e0242525
    Certification information on trustworthy digital repository websites: A content analysis.
    Devan Ray Donaldson.
      In 1996, an international group of representatives from national archives and libraries, universities, industry, publishing offices, and other government and private sector organizations first articulated the need for certified Trustworthy Digital Repositories (TDRs). Henceforth, multiple standards for TDRs have developed worldwide and their reviewers provide third party audit of digital repositories. Even though hundreds of repositories are currently certified, we do not know if audit and certification of TDRs actually matters. For example, we do not know if digital repositories are actually better at preserving digital information after certification than they were before. Additionally, we do not know if TDRs preserve digital information better than their counterparts, although TDR standards definitely promulgate this assumption. One way of assessing whether audit and certification of TDRs matters is to study its impact on TDRs' stakeholders (e.g., funders, data producers, data consumers). As an initial critical step forward, this study examines what certification-related information repositories actually include on their websites since repository websites provide a means of disseminating information. Using findings from a content analysis of 91 TDR-certified repository websites, this research examines: 1) written statements about TDR status, 2) the presence of TDR seals and their location, 3) whether the seals hyperlink to additional certification information, 4) the extent to which the certification process is explained, and 5) whether audit reports are shared. Nearly three-fourths of the repository websites provide TDR status statements and put seals in one or more places; nearly 60% post audit reports and link seals to additional certification information; and over one-third explain the certification process. Directions for future research and practical application of the results are discussed.
    DOI:  https://doi.org/10.1371/journal.pone.0242525
  5. Brief Bioinform. 2020 Dec 07. pii: bbaa296. [Epub ahead of print]
    Text mining approaches for dealing with the rapidly expanding literature on COVID-19.
    Lucy Lu Wang, Kyle Lo.
      More than 50 000 papers have been published about COVID-19 since the beginning of 2020 and several hundred new papers continue to be published every day. This incredible rate of scientific productivity leads to information overload, making it difficult for researchers, clinicians and public health officials to keep up with the latest findings. Automated text mining techniques for searching, reading and summarizing papers are helpful for addressing information overload. In this review, we describe the many resources that have been introduced to support text mining applications over the COVID-19 literature; specifically, we discuss the corpora, modeling resources, systems and shared tasks that have been introduced for COVID-19. We compile a list of 39 systems that provide functionality such as search, discovery, visualization and summarization over the COVID-19 literature. For each system, we provide a qualitative description and assessment of the system's performance, unique data or user interface features and modeling decisions. Many systems focus on search and discovery, though several systems provide novel features, such as the ability to summarize findings over multiple documents or linking between scientific articles and clinical trials. We also describe the public corpora, models and shared tasks that have been introduced to help reduce repeated effort among community members; some of these resources (especially shared tasks) can provide a basis for comparing the performance of different systems. Finally, we summarize promising results and open challenges for text mining the COVID-19 literature.
    Keywords:  CORD-19; COVID-19; information extraction; information retrieval; natural language processing; question answering; shared tasks; summarization; text mining
    DOI:  https://doi.org/10.1093/bib/bbaa296
  6. Ann Burns Fire Disasters. 2020 Sep 30. 33(3): 177-181
    Availability Of Covid-19 Information From National And International Burn Society Websites.
    S Al-Benna, A Gohritz.
      National and international burn society websites are an important source of information for patients and burn care professionals. The current COVID-19 pandemic represents an unprecedented global health crisis. The aim of this study was to assess the information available on national and international burns society websites on the current pandemic of COVID-19. National and international burns society websites were assessed with regard to COVID-19 information. Five percent of nations had a burn care society website. Forty percent of these national society websites mentioned COVID-19. None provided their state's guidelines, nor advised to provide only urgent or emergent care. None recommended following WHO guidelines. One-third (33%) of the international societies documented the decision to postpone its congress and provided links to two articles describing burn care during the COVID-19 pandemic. The availability of COVID-19 clinical guidelines and information on national and international burn care society websites is lacking. Burn care society websites must develop relevant COVID-19 information to support burn care professionals on the frontline of care.
    Keywords:  COVID-19; Coronavirus; burns; internet; medical; operative; pandemic; severe acute respiratory syndrome coronavirus 2; societies; surgical procedures
  7. BMC Rheumatol. 2020 Nov 24. 4(1): 61
    Web-based information on the treatment of the mouth in systemic sclerosis.
    Ismail Abdouh, Stephen Porter, Stefano Fedele, Nadia Elgendy, Richeal Ni Riordain.
       BACKGROUND: To categorise the content and assess the quality and readability of the web-based information regarding treatment of the mouth in systemic sclerosis.
    METHODS: An online search using three different search terms regarding the treatment of the mouth in SSc was undertaken using the Google search engine. The first 100 websites from each search were selected for analysis. Data recorded included DISCERN instrument scores along with the Journal of the American Medical Association (JAMA) benchmarks and the presence of the Health on the Net seal (HON). Flesch Reading Ease Scores, Flesch-Kincaid Grade Level, the Simplified Measure of Gobbledygook Index and Coleman-Liau index were calculated to assess readability.
    RESULTS: Fifty seven of the first websites remained for analysis after applying appropriate exclusion criteria. The mean overall DISCERN score was 2.37 (±1.01). Only 4 websites (7%) achieved all four JAMA benchmarks. Only 12 websites (21.1%) displayed the HON seal. The reading level was found to be difficult to very difficult among the majority of websites.
    CONCLUSION: The overall quality of the available online information concerning the treatment of the mouth of systemic sclerosis is questionable and requires a high level of reading skill. Further efforts should be directed toward establishing higher quality, reliable online information sources on the treatment of oral disease relevant to patients with systemic sclerosis.
    Keywords:  Online information; Patient education; Systemic sclerosis
    DOI:  https://doi.org/10.1186/s41927-020-00160-5
  8. Inf Process Manag. 2021 Mar;58(2): 102440
    From information seeking to information avoidance: Understanding the health information behavior during a global health crisis.
    Saira Hanif Soroya, Ali Farooq, Khalid Mahmood, Jouni Isoaho, Shan-E Zara.
      Individuals seek information for informed decision-making, and they consult a variety of information sources nowadays. However, studies show that information from multiple sources can lead to information overload, which then creates negative psychological and behavioral responses. Drawing on the Stimulus-Organism-Response (S-O-R) framework, we propose a model to understand the effect of information seeking, information sources, and information overload (Stimuli) on information anxiety (psychological organism), and consequent behavioral response, information avoidance during the global health crisis (COVID-19). The proposed model was tested using partial least square structural equation modeling (PLS-SEM) for which data were collected from 321 Finnish adults using an online survey. People found to seek information from traditional sources such as mass media, print media, and online sources such as official websites and websites of newspapers and forums. Social media and personal networks were not the preferred sources. On the other hand, among different information sources, social media exposure has a significant relationship with information overload as well as information anxiety. Besides, information overload also predicted information anxiety, which further resulted in information avoidance.
    Keywords:  COVID-19; Information anxiety; Information avoidance; Information overload; Information seeking
    DOI:  https://doi.org/10.1016/j.ipm.2020.102440
  9. BMC Fam Pract. 2020 Dec 10. 21(1): 266
    Parents' health information seeking behaviour - does the child's health status play a role?
    Isabel Baumann, Rebecca Jaks, Dominik Robin, Sibylle Juvalta, Julia Dratva.
       BACKGROUND: Digital media are increasingly abundant providing a wide scope of health information. To date, very little is known about parental health information seeking behaviour for child health outside of English-speaking and Nordic countries. Our study "Digital parental counsellors" examines how parents search for health information in digital media, print media and among "personal contacts", distinguishing between the search for information about general child health and development and child's acute illness, and comparing information seeking behaviour by disability status of the child.
    METHODS: The population-based sample consisted of 769 parents with children aged 0-2 in the German-speaking region of Switzerland returning the study questionnaire (30% response rate). We developed a frequency score of use of different information sources and conducted bivariate and multivariate linear regression analyses to describe parental search behaviour and the association with child's disability status.
    RESULTS: The sample consists of 88% mothers (mean age: 35.7 years SD 4.33). Children's mean age is 16 months (SD 7.1), 49% of the children are female and 6% have a disability. Parents use digital media significantly more frequently to search for information about general health and development questions than about an acute child's illness (p < 0.001). In case of acute child's illness, parents refer to their paediatrician, family members and other personal contacts significantly more frequently than other information sources (p < 0.001). The use of digital media and "personal contacts" does not significantly vary between parents with and without a disabled child, whereas the use of print media does (p < 0.02). Moreover, irrespective of disability, 45% of parents resort to the Internet prior to a paediatric visit and 27% after a visit when a visit did not answer all questions.
    CONCLUSIONS: Despite the high prevalence of digital media, personal contacts are still the most frequent health information resource for parents with young children, irrespective of the child's health. Parents combine all information resources (online, print, personal network) to improve their understanding or check the validity of information received regarding their child's health. It is thus of utmost importance, that the increasingly accessed digital information parents search for is correct, understandable and addresses parent's concerns.
    TRIAL REGISTRATION: BASEC Req-2017-00817 (30 October 2017).
    Keywords:  Digital media use; Disability; Health information; Illness; Information seeking behaviour; Parents
    DOI:  https://doi.org/10.1186/s12875-020-01342-3
  10. J Pediatr Nurs. 2020 Dec 02. pii: S0882-5963(20)30661-8. [Epub ahead of print]58 9-14
    Health information seeking among immigrant families in Western Canada.
    Alleson Mason, Bukola Salami, Jordana Salma, Sophie Yohani, Maryam Amin, Philomina Okeke-Ihejirika, Tehseen Ladha.
       PURPOSE: Studies on immigrant populations' access to healthcare in Canada tend to focus on adults and usually concentrate on specific ethnic groups, particularly South Asians and Chinese. This study sought to present the experiences of immigrant parents when they access health services for their children focusing specifically on the various sources of information that they used to improve their children's health.
    DESIGN AND METHOD: This qualitative study was carried out in Edmonton, Alberta between April to October 2018. Fifty parents, chosen using purposive sampling participated in one-on-one semi-structured interviews. Interviews were recorded digitally, transcribed verbatim, and analyzed thematically.
    RESULTS: We developed three main themes from the data: Accessing social networks for informational support, the role of professionals in accessing health care information, and navigating and evaluating information sources. The study demonstrates that immigrant families consulted various sources of information in order to meet their children's healthcare needs. The most common source was the Internet followed by friends and family members, and health care professionals.
    DISCUSSION: Findings suggest that health information that is disseminated using the Internet needs to be made available in multiple languages to facilitate communication to persons who are not fluent in English nor French. Also, policy makers and health care professionals must increase focus on informal sources of health care information.
    Keywords:  Children; Families; Health information seeking; Immigrants; Internet; Qualitative
    DOI:  https://doi.org/10.1016/j.pedn.2020.11.009
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