bims-librar Biomed News
on Biomedical librarianship
Issue of 2019–12–22
eight papers selected by
Thomas Krichel, Open Library Society
  1. The Research Role of the Librarian at a Community Health Hackathon - A Technical Report.
  2. Establishing an Open Access Repository for Doctor of Nursing Practice Projects.
  3. A Call for a Public Health Agenda for Social Media Research.
  4. An internet-based survey study of hidradenitis suppurativa patients: use of the internet for disease-related information.
  5. A systematic search and technical review of online information pertaining to medical care for people with disability.
  6. Information regarding Zika virus on the Internet: A cross-sectional study of readability.
  7. Public Health Implications of Image-Based Social Media: A Systematic Review of Instagram, Pinterest, Tumblr, and Flickr.
  8. Paediatric clinician's experiences of parental online health information seeking: A qualitative study.
  1. J Med Syst. 2019 Dec 18. 44(2): 36
    The Research Role of the Librarian at a Community Health Hackathon - A Technical Report.
    Nancy Shin, Kathryn Vela, Kelly Evans.
      A hackathon is a social event that is focused on building small and innovative technology projects. The 2018 Hackathon hosted by the Washington State University (WSU) Elson S. Floyd College of Medicine aimed to solve rural health problems in Washington state. One major modification to the regular format of a healthcare hackathon was the inclusion of research librarians. Librarians with health sciences and business expertise provided research and library services at a designated Research Station, which included literature, patent, and internet searches. Participant and hackathon librarian observations, verbal feedback, and librarian survey results demonstrate the positive value/outcome of library services to the health hackathon winners. The winning hackathon teams used the services by the Research Station extensively. Areas of strength for this event included collaboration between librarians, promotion of library services, and efficient information retrieval. Areas for improvement included making regular contact with hackathon teams during the event and clearer signage and marketing.
    Keywords:  Collaboration; Education, medical; Hackathon; Information services; Librarians
    DOI:  https://doi.org/10.1007/s10916-019-1516-x
  2. J Prof Nurs. 2019 Nov - Dec;35(6):pii: S8755-7223(19)30083-3. [Epub ahead of print]35(6): 467-472
    Establishing an Open Access Repository for Doctor of Nursing Practice Projects.
    Meaghan Heselden, Kate Driscoll Malliarakis, Beverly Lunsford, Anne Linton, Elaine Sullo, Deborah Cardenas, Michael LeGal, Cathie E Guzzetta.
      The Doctor of Nursing Practice (DNP) faculty at the George Washington University (GW) decided to create a digital DNP Project Repository for our students in 2016 based on the American Association of Colleges of Nursing (AACN) 2015 recommendations to do so. We describe the two-year process during which the DNP faculty and the GW librarians at our Health Sciences Library collaborated to create the DNP project repository. This article contains important information that was learned about digital institutional repositories, the criteria used in deciding to make the GW library's Health Sciences Research Commons the home for the repository, along with questions and concerns that arose during the process. Our library internally collaborated to customize the digital collection to meet the needs of DNP students and their project teams. Development included creating the URL for the collection, customizing digital metadata fields, developing submission forms and guidelines, and adding embargo options for projects. A pilot collection of six DNP projects was completed in 2017; and in 2018, the first cohort of 34 students submitted their projects to our repository. Outcomes are reported of the repository launch, lessons learned, and repository submission experiences of two DNP students. We believe our journey may guide others.
    Keywords:  Copyright; DNP project repository; DNP projects; Digital repository; Doctor of Nursing Practice; Institutional repositories; Open access
    DOI:  https://doi.org/10.1016/j.profnurs.2019.06.001
  3. J Med Internet Res. 2019 Dec 19. 21(12): e16661
    A Call for a Public Health Agenda for Social Media Research.
    Sherry Pagoto, Molly E Waring, Ran Xu.
      Research has revealed both the benefits and harms of social media use, but the public has very little guidance on how best to use social media to maximize the benefits to their health and well-being while minimizing the potential harms. Given that social media is intricately embedded in our lives, and we now have an entire generation of social media natives, the time has come for a public health research agenda to guide not only the public's use of social media but also the design of social media platforms in ways that improve health and well-being. In this viewpoint we propose such a public health agenda for social media research that is framed around three broad questions: (1) How much social media use is unhealthy and what individual and contextual factors shape that relationship; (2) What are ways social media can be used to improve physical and mental well-being; and (3) How does health (mis)information spread, how does it shape attitudes, beliefs and behavior, and what policies or public health strategies are effective in disseminating legitimate health information while curbing the spread of health misinformation? We also discuss four key challenges that impede progress on this research agenda: negative sentiment about social media among the public and scientific community, a poorly regulated research landscape, poor access to social media data, and the lack of a cohesive academic field. Social media has revolutionized modern communication in ways that bring us closer to a global society, but we currently stand at an inflection point. A public health agenda for social media research will serve as a compass to guide us toward social media becoming a powerful tool for the public good.
    Keywords:  health communication; health information; online social networks; social media
    DOI:  https://doi.org/10.2196/16661
  4. J Am Acad Dermatol. 2019 Dec 16. pii: S0190-9622(19)33300-6. [Epub ahead of print]
    An internet-based survey study of hidradenitis suppurativa patients: use of the internet for disease-related information.
    Daniel W Cole, Audrey Fotouhi, Joseph Fakhoury, Steven Daveluy.
      
    Keywords:  Acne Inversa; Dermatology; HS; Hidradenitis Suppurativa; Internet; Social Media
    DOI:  https://doi.org/10.1016/j.jaad.2019.12.024
  5. Disabil Health J. 2019 Dec 05. pii: S1936-6574(19)30196-7. [Epub ahead of print] 100877
    A systematic search and technical review of online information pertaining to medical care for people with disability.
    Katherine D Goss, Michael Ioerger, Virginia Young, Reed M Flanders, Margaret A Turk.
       BACKGROUND: Little is known about the availability and technical quality of online information related to the medical care of people with disability, despite the potential of this information to alter clinical interactions and treatment decisions.
    OBJECTIVES: This review examines the utility of internet search engines for finding information related to medical care for people with disability, identifies common sources of this online information, and assesses the presence of technical attributes which allow for its critical evaluation.
    METHODS: Exhaustive systematic searches were conducted on two popular search engines (Google and Yahoo) using six search phrases. Resources were coded to categorize presenting organization, format, and technical quality.
    RESULTS: Only 8.9% of results included information related to medical care for people with disability. Analyzed resources were most often from non-profit organizations (31.7%) in website format (60.2%). The composite technical quality score for all included resources had a median and mode of three on a scale of six.
    CONCLUSIONS: Online information related to medical care for people with disability is not only difficult to locate, but has generally low technical quality. These findings have implications for health information professionals, patients, care providers, and information developers.
    Keywords:  Disability; Medical information; Online information; Technical quality
    DOI:  https://doi.org/10.1016/j.dhjo.2019.100877
  6. Am J Infect Control. 2019 Dec 17. pii: S0196-6553(19)30980-0. [Epub ahead of print]
    Information regarding Zika virus on the Internet: A cross-sectional study of readability.
    Corey H Basch, Joseph Fera, Philip Garcia Bs.
      The purpose of this study was to determine the readability of 100 articles posted on the Internet related to the Zika virus. An on-line readability calculator was used to generate scores on each website from 5 readability tests. Most of the material analyzed was written at a level beyond grade 10. The data in this study make a compelling case that websites containing information on the Zika virus are being written at levels beyond what is recommended. It would behoove those who create health information to consider ways to adapt their materials in a way that is consistent with recommended readability levels.
    Keywords:  Health literacy; Infectious disease; On-line material; Reading level
    DOI:  https://doi.org/10.1016/j.ajic.2019.11.014
  7. Perm J. 2018 ;24
    Public Health Implications of Image-Based Social Media: A Systematic Review of Instagram, Pinterest, Tumblr, and Flickr.
    Isaac Chun-Hai Fung, Elizabeth B Blankenship, Jennifer O Ahweyevu, Lacey K Cooper, Carmen H Duke, Stacy L Carswell, Ashley M Jackson, Jimmy C Jenkins, Emily A Duncan, Hai Liang, King-Wa Fu, Zion Tsz Ho Tse.
       INTRODUCTION: Image-based social media Instagram, Pinterest, Tumblr, and Flickr have become sources of health-related information and tools for health communication. No known systematic review exists that summarizes the existing research and its health implications.
    METHODS: We searched EBSCOhost Academic Search Complete, PubMed, and Web of Science in January 2016, April 2017, and November 2017, with the following keywords: Pinterest, Instagram, Tumblr, or Flickr. Only public health-related, peer-reviewed research articles were included (excluding surveys of self-reported social media use).
    RESULTS: Sixty-six research articles were included. All 12 experimental studies used Instagram. Of the 54 observational studies, 38 studied Instagram; 12, Pinterest; 7, Tumblr; and 6, Flickr; some studies investigated more than 1 platform. More than half of the included articles were related to mental health and substance abuse (n = 39, 59%). Other topics included chronic diseases, infectious diseases, surgery, injury prevention, pharmacovigilance, sexual and reproductive health, and adolescent psychology with functional magnetic resonance imaging.
    DISCUSSION: Public health-oriented research on Instagram, Pinterest, Tumblr, and Flickr is increasing. Most observational studies investigated questions ranging from public perception of diseases or interventions (vaccination) and undesirable media exposure ("echo chamber," distorted body image, underage substance use, and pro-suicide messages) to information dissemination and online engagement (likes and comments). A few studies attempted to use image-based social media as intervention tools, but the results were mainly exploratory.
    CONCLUSION: More research is needed to study how social media users discuss health through sharing images online, and how public health professionals can communicate effectively using image-sharing social media.
    DOI:  https://doi.org/10.7812/TPP/18.307
  8. J Paediatr Child Health. 2019 Dec 17.
    Paediatric clinician's experiences of parental online health information seeking: A qualitative study.
    Lily Shervington, Neil Wimalasundera, Clare Delany.
       AIM: The aim of this research was to explore clinicians' experiences of parents' online health information seeking (OHIS) behaviour about selective dorsal rhizotomy for the management of cerebral palsy.
    METHODS: Using qualitative methodology, clinicians likely to have had experience with parents requesting selective dorsal rhizotomy were invited to participate in semi-structured interviews. Interviews with 13 clinicians were recorded, transcribed and inductive content analysis was used to identify, code and organise the data into themes.
    RESULTS: Participants highlighted how parental OHIS was changing clinical communication. Negative effects included a shift in clinicians' attention from giving advice and guidance to spending time discussing online findings, justifying how this information applies to a particular child and managing parents' judgments about clinical views. Positive effects included more collaboration and sharing of ideas. These results are presented in three main themes: (i) the informed parent; (ii) the clinicians' role; and (iii) a new clinical dynamic.
    CONCLUSION: This research reinforces the notion that OHIS is changing the communication dynamic and clinicians' and parents' roles within the clinical encounter. Of significance was the number of challenges clinicians are facing as a result of online information, including managing parental understanding of non-evidenced information and responding to negative feedback about their practice. This research suggests a need for educational support and ongoing professional development for clinicians to assist them to adjust to new goals and expectations of clinical interactions with 'informed' parents.
    Keywords:  cerebral palsy; information seeking behaviour; internet; online; paediatrics; rhizotomy
    DOI:  https://doi.org/10.1111/jpc.14706
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