bims-librar Biomed News
on Biomedical librarianship
Issue of 2019‒08‒25
twelve papers selected by
Thomas Krichel
Open Library Society


  1. J Am Acad Dermatol. 2019 Aug 20. pii: S0190-9622(19)32609-X. [Epub ahead of print]
    Borba AJ, Young PM, Read C, Armstrong AW.
      
    Keywords:  YouTube; accuracy; acne; acne vulgaris; adolescents; dermatology; engagement; health; information; internet; online; quality; social media
    DOI:  https://doi.org/10.1016/j.jaad.2019.08.035
  2. Stud Health Technol Inform. 2019 Aug 21. 264 328-332
    Sahoo SS, Valdez J, Rueschman M, Kim M.
      OBJECTIVE: To characterize the scientific reproducibility of biomedical research studies by query and analysis of semantic provenance graphs generated from provenance metadata terms extracted from PubMed articles.METHODS: We develop a new semantic provenance graph generation algorithm that uses a provenance ontology developed as part of the Provenance for Clinical and Health Research (ProvCaRe) project. The ProvCaRe project has processed and extracted provenance metadata from more than 1.6 million full text articles from the PubMed database.
    RESULTS: The semantic provenance graph generation algorithm is evaluated using provenance terms extracted from 75 selected articles describing sleep medicine research studies. In addition, we use eight provenance queries to evaluate the quality of semantic provenance graphs generated by the new algorithm.
    CONCLUSION: The ProvCaRe project has created a unique resource to characterize the reproducibility of biomedical research studies and the semantic provenance graph generation algorithm enables users to effectively query and analyze the provenance metadata in the ProvCaRe knowledge repository.
    Keywords:  Biomedical Ontologies; Health Information Systems; Knowledge Bases
    DOI:  https://doi.org/10.3233/SHTI190237
  3. Stud Health Technol Inform. 2019 Aug 21. 264 93-97
    Dhoju S, Rony MMU, Kabir MA, Hassan N.
      Media outlets play crucial roles in disseminating health information. Previous studies have examined how health journalism is practiced by reliable and unreliable media outlets. However, most of the existing works are conducted over a relatively small set of samples. In this study, we investigate a large collection (about 30 thousand) of health-related news articles which were published by 29 reliable and 20 unreliable media outlets and identify several differences in health journalism practice. Our analysis shows that there are significant structural, topical, and semantic disparities in the way reliable and unreliable media outlets conduct health journalism. We argue, in this age of 'fake news', these findings will be useful to combat online health disinformation.
    Keywords:  Health Communication
    DOI:  https://doi.org/10.3233/SHTI190190
  4. Reprod Health. 2019 Aug 22. 16(1): 128
    Javanmardi M, Noroozi M, Mostafavi F, Ashrafi-Rizi H.
      BACKGROUND: Appropriate health information seeking behavior can play an effective role in self-care and promotion of women's quality of life during pregnancy. However, different barriers can impede pregnant women while accessing health information. The aim of this research was to explain challenges to access health information during pregnancy.METHODS: The present qualitative study was carried out on 28 participants who were selected using the purposeful sampling technique. Data were collected through in-depth interviews, field notes, and daily notes; data were analyzed using conventional content analysis.
    RESULTS: The main barriers to access health information during pregnancy were as follows: many duties of women at home as well as out-of-home education and employment, inability to make distinction between correct and incorrect information, insufficient interactions between women and healthcare providers, failure to access to various information resources, common complaints of pregnancy, and stress and anxiety of confronting the problems during pregnancy.
    CONCLUSION: Based on the results, pregnant women experienced personal, social, and structural barriers when accessing health information. Therefore, policymakers and health planners should remove the barriers, encourage self-care, and enhance the quality of life for pregnant women, thus, promoting their health status in the end.
    Keywords:  Barriers; Information seeking behavior; Pregnant women; Qualitative study
    DOI:  https://doi.org/10.1186/s12978-019-0789-3
  5. Stud Health Technol Inform. 2019 Aug 09. 265 175-180
    Lesselroth B, Monkman H.
      Patient-centered healthcare requires development of materials for health consumers that increase health literacy, enrich the provider-patient dialog, empower shared decision-making, and improve downstream outcomes. Unfortunately, evidence suggests current methods of communication, including print and electronic media, are inadequate. The Narrative Theory of Learning is grounded in the premise that humans define their experiences and form cognitive structures (e.g., new learning, novel concepts) within the context of narratives. Simply put, humans remember stories better than fragmented bits of information. Therefore, we propose leveraging the power of narratives and stories to improve the efficacy and impact of consumer health applications. We describe several examples of future technologies that could incorporate narrative techniques and present a call to action for future research and development.
    Keywords:  Usability engineering; consumer informatics; health information technology; health literacy; implementation science; quality improvement
    DOI:  https://doi.org/10.3233/SHTI190159
  6. Stud Health Technol Inform. 2019 Aug 21. 264 1895-1896
    Alonso Galbán P, Vialart Vidal N.
      The WHO Strategy and Plan of Action on eHealth 2012-2017 highlights knowledge management and digital literacy as key elements for quality of care, health promotion and disease prevention, insofar as they guarantee training and better access to information in an equitable manner. This work proposes a digital literacy program for the development of skills in social media use for information management, communication and eLearning, aimed at Cuban health professionals.
    Keywords:  Health Informatics; Information Management; eHealth
    DOI:  https://doi.org/10.3233/SHTI190701
  7. Stud Health Technol Inform. 2019 Aug 21. 264 1550-1551
    Moen H, Peltonen L, Suhonen H, Koivumäki M, Salakoski T, Salanterä S.
      We report on the pilot evaluation of an experimental query-based search functionality that enables phrase-level query rewriting in an unsupervised way. It is intended for supporting search in clinical text. Qualitative evaluation is done by three clinicans using a prototype search tool. They report that they find the tested search functionality to be beneficial for making query-based searching in clinical text more efficient.
    Keywords:  Electronic Health Records; Information Storage and Retrieval; Natural Language Processing
    DOI:  https://doi.org/10.3233/SHTI190529
  8. JAMA Ophthalmol. 2019 Aug 22.
    Kloosterboer A, Yannuzzi NA, Patel NA, Kuriyan AE, Sridhar J.
      Importance: Diabetic retinopathy is a global leading cause of blindness. Patients increasingly use the internet to search for health-related information that may affect medical decision-making, but to date, no standard exists across published websites.Objective: To assess the quality, content, and readability of information found online for diabetic retinopathy.
    Design and Setting: This cross-sectional study analyzed 11 medical sites with information on diabetic retinopathy. Twenty-six questions were composed to include information most relevant to patients, and each website was independently evaluated by 1 vitreoretinal surgeon and 2 vitreoretinal fellows. Readability was analyzed using an online readability tool. The JAMA benchmarks were used to evaluate the quality of each site. Data were collected from December 2018 to January 2019 and analyzed in February 2019.
    Main Outcomes and Measures: A 26-question survey, JAMA benchmarks, Flesch reading ease score, Flesch-Kincaid grade level, Gunning Fog Index, Coleman Liau Index, and Simple Measure of Gobbledygook Index.
    Results: The mean (SD) questionnaire score for all websites was 55.76 (13.38) (95% CI, 47.85-63.67) of 104 possible points. There was a difference between the content quality of the websites (H = 25.811, P = .004). The mean (SD) reading grade for all websites was 11.30 (1.79; 95% CI, 10.24-12.36). No correlation was found between content accuracy and the mean reading grade (r = 0.445, P = .17) or Google rank (r = -0.260, P = .43). No website achieved the full 4 JAMA benchmarks, and only 1 website achieved 3 of the 4 JAMA benchmarks. No correlation was found between the accuracy of the content of the website and JAMA benchmarks (r = 0.422, P = .20). The interobserver reproducibility was similar among the 3 observers (r = 0.87 between observers 1 and 2, r = 0.83 between observers 1 and 3, and r = 0.84 between observers 2 and 3, P < .001).
    Conclusions and Relevance: These findings suggest that freely available information online about diabetic retinopathy varies by source but is generally of low quality. The material presented seems difficult to interpret and exceeds the recommended reading level for health information. Most websites reviewed did not provide sufficient information using the grading scheme used to support the patient in making medical decisions.
    DOI:  https://doi.org/10.1001/jamaophthalmol.2019.3116
  9. Stud Health Technol Inform. 2019 Aug 21. 264 1678-1679
    Höffner K, Jahn F, Lörke A, Pause T, Schneider B, Ammenwerth E, Winter A.
      Given a care delivery organization, its health information system can be defined as the part of the organization that processes and stores data, information, and knowledge. There is an enormous number of frameworks, textbooks and articles that describe the scope of health information system management from the perspective of medical informatics. Transforming this knowledge to Linked Open Data results in a structured data representation that is accessible for both humans and machines, the Semantic Network of Information Management in Hospitals (SNIK). We present interfaces that are useful for researchers, practitioners and students, depending on their objectives and their Semantic Web skills.
    Keywords:  Health Information Systems; Information Management; Semantic Web
    DOI:  https://doi.org/10.3233/SHTI190593
  10. OTO Open. 2019 Jul-Sep;3(3):3(3): 2473974X19861567
    Fagan JJ.
      Accessing educational and scientific material is key to improving otolaryngology care in developing countries. Yet current financial models of publishers restrict access to academic information. This article describes the author's experience with self-publishing 2 open access textbooks, Open Access Atlas of Otolaryngology, Head and Neck Operative Surgery and Open Access Guide to Audiology and Hearing Aids for Otolaryngologists, as well as the African Head and Neck Society (AfHNS) Clinical Practice Guidelines for Head and Neck Cancer in Developing Countries and Limited Resource Settings. The author outlines the simplicity, advantages, and popularity of this form of publication and why societies and individuals should embrace open access publishing to benefit especially those studying and practicing in developing countries. He discusses some of the challenges related to open access publishing and calls for medical societies to become involved in evaluating the quality of open access texts and videos for their members.
    Keywords:  ENT; audiology; developing world; guidelines; medical; open access; otolaryngology; publishing; surgery atlas
    DOI:  https://doi.org/10.1177/2473974X19861567
  11. J Assoc Inf Sci Technol. 2019 Jul;70(7): 643-659
    Pluye P, El Sherif R, Granikov V, Hong QN, Vedel I, Galvao MCB, Frati FEY, Desroches S, Repchinsky C, Rihoux B, Légaré F, Burnand B, Bujold M, Grad R.
      The Internet has become the first source of consumer health information. Most theoretical and empirical studies are centered on information needs and seeking, rather than on information outcomes. This review's purpose is to explore and explain health outcomes of Online Consumer Health Information (OCHI) in primary care. A participatory systematic mixed studies review with a framework synthesis was undertaken. Starting from an initial conceptual framework, our specific objectives were to (a) identify types of OCHI outcomes in primary care, (b) identify factors associated with these outcomes, and (c) integrate these factors and outcomes into a comprehensive revised framework combining an information theory and a psychosocial theory of behavior. The results of 65 included studies were synthesized using a qualitative thematic data analysis. The themes derived from the literature underwent a harmonization process that produced a comprehensive typology of OCHI outcomes. The revised conceptual framework specifies four individual and one organizational level of OCHI outcomes, while including factors such as consumers' information needs and four interdependent contextual factors. It contributes to theoretical knowledge about OCHI health outcomes, and informs future research, information assessment methods, and tools to help consumers find and use health information.
    DOI:  https://doi.org/10.1002/asi.24178
  12. Adv Med Educ Pract. 2019 ;10 563-570
    Shiferaw KB, Mehari EA.
      Background: Health-care professionals should be able to identify and use reputable health care-information sources from the Internet and other relevant sources of information, in order to make good medical decisions. The level in health professional eHealth literacy and the extent of Internet use in a resource-constrained setting is not well documented. The aim of this study was to assess the extent of Internet use and eHealth literacy among a cross section of health-care professionals at the University of Gondar Comprehensive Specialized Hospital, northwest Ethiopia.Methods: An institution-based cross-sectional study was conducted to assess Internet use and eHealth literacy among health professionals working at the hospital from November 20 to January 17, 2018. Descriptive analysis was used to describe Internet use and eHealth literacy. Multivariable logistic regression was done to identify which factors were associated with the eHealth literacy of participants.
    Results: In total, 291 study subjects were approached and included in the study, with a response rate of 98.6%. The majority of respondents were female (53.7%) and the mean age was 30.09±5.025 years. Only 47.4% of survey respondents said that they used the Internet regularly for professional/medical updates. The mean eHealth literacy was 27.840±5.691. The majority of participants with high eHealth literacy were aged 21-29 years. and females were slightly more literate regarding eHealth than males (33.1%). Age, type of profession, salary, and years of experience were significantly associated with eHealth literacy.
    Conclusion: The present data confirm that Internet use and eHealth literacy of health professionals is noticeably good, which clearly suggests that there is an opportunity for eHealth to be integrated in the health-care system in tertiary-health facilities in northern Ethiopia if appropriate training and education is provided.
    Keywords:  Ethiopia; Internet use; eHealth literacy; health professionals
    DOI:  https://doi.org/10.2147/AMEP.S205414